Autism Book Breaks Neurodiversity Taboos

Dianne Dempsey of The Age has reviewed Dear Gabriel: Letter to An Autistic Son a book by Norwegian Publisher Halfdan W Freihow which is sure to receive angry reviews from members of the Neurodiversity club. The book is written as a letter to Freihow's autistic son and it breaks two of Neurodiversity's most sacrosanct taboos.

In the first instance, Freihow as the father of an autistic son and as a parent can not actually know anything about autism. Bettelheim's heirs in the Neurodiversity/"Autism" Rights movement do not believe that a parent should express independent opinions about their own child's autism.

Secondly, the book breaks Neurodiversity's ultimate commandment "thou shalt say nothing negative about autism":

His son, while blighted, is beautiful, his wife a saint but Freihow says there are terrible days when Gabriel cries and rages until they are all overwhelmed by exhaustion and despair and the whole house explodes. Freihow says that the only reason he and his wife are still together is because they spend so much time apart. It is not only Freihow's finely tuned sensibilities but the brutal honesty with which he writes that gives his book its strength and credibility.

If the book review is accurate then Freihow is following a path walked by the parents of the Autism Everyday Video, a path which saw those parents demonized by the "Autism Rights"/Neurodiversity ideologues for speaking honestly about their children, their autism disorders and autism's impact on a family.

I look forward to reading Dear Gabriel: Letter to An Autistic Son.

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Autism Mother Marni Wachs Discusses Neurodiversity

Note: I received the following thoughtful comment on autism and neurodiversity from Marni Wachs, an autism mother, and, with her permission, I am posting it here as a "guest blogger" commentary.



Harold Doherty

Re: Jim Sinclair' s Work "DON'T MOURN FOR US: a message for parents of autistic children"


I admire and appreciate the important and necessary work of Jim Sinclair for both autism, and in general for people with disabilities. It is an extremely well-written and concise expression of rights of those with disabilities, the folly of many parents in missing the individual beauty and development of their own child in the constant misguided comparison with an incomparable standard, and the need for public accommodation and acceptance of autism as a different way of being. I myself have used that expression, "a different way of being"' in conversation, and it describes autism well, without defining it as less-than.

I do not, however, accept the entire message and implications of the neurodiversity perspective. I understand the need for a concise theory, but sometimes the neat and tidy package does not fit some of the intricacies of reality.

I do not accept a logic chain that precludes reasonable treatment efforts particularly early education / intervention from being defined as anything but unacceptance, of one’s child and autism in general. I fully love and accept my child, regardless of the abilities he has now or in the future. I don’t accept that it makes me a lesser parent in that I am sending the message that my son is “not good enough” or I don’t accept him as he is. I am a full parent to my children. The same parenting ideals hold for my daughter who is neuroytpical. I am parenting her, based on my love, her needs and what will help her to live a full and happy life. I have always worked hard as a parent to educate her. Does that then imply that I do not accept her? Of course not, it means that I want to educate, stimulate, give options for how to be in the world, teach skills to foster communication and connection with others, as much independence as possible by trying to be the best possible
parent.

If you logically extend Jim Sinclair’s argument, then no child is accepted if they are being educated. If we accepted children as they are, then we would not need to alter their natural state of being by educating them. Would the neurodiversity perspective have me feel guilty or wrong for parenting appropriately as per my definition of good parenting?

Sinclair’s stance works well for natural disabilities, but autism may not always necessarily be the natural sate of being for a particular individual. I do believe there may be some on the spectrum who have autism from a genetic basis, or that autism began before birth, which may indeed fall completely under the neurodiversity umbrella. However, the possibility of environmental triggers playing a role in autism exists, which would mean the possibility exists for reversal or treatment of same, as an unnatural state of being in certain cases. I love my son whether he was born with autism, developed it in utero, or was injured environmentally at some point which triggered or enhanced it. Just as parents whose children have cancer fully love and accept them, but still want to find a cure or treatment, as well as give them an enriching and happy life, how ever the condition progresses, so I want for my son. As for using cancer as a comparison, the comparison begins and ends with the way I have used it specifically in the above example.

I agree with Mr. Sinclair that rigid insistence that the child with autism communicate with neurotypical people in only a neurtotypical fashion is selfish and narrow-minded, as well and limiting to the parent-child relationship and the child’s development. I agree with the need for those with autism to have allowances, accommodations, ways and places to be in the world. Education of the public regarding the rights of those with autism is sorely needed.

I applaud the work and feel that the neurodiversity perspective is a necessary part of public education and awareness, but I wish the perspective did not require a scapegoat to secure the strength of its message. Parents benefit from such guidance to a point, but not the accompanying pressure and judgment.

Words cannot define the overwhelming love I feel for my son, and no “perspective” will tell me that I am not acting in his best interests, and that I as his parent, am in the appropriate position to do so.

Finally, I fully and unconditionally love and accept my son (and always will), and I want the very best education and treatment for him. The two concepts are not mutually exclusive.

Marni Wachs
Winnipeg, Manitoba

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autism's gadfly, A Name Well Chosen, A Blog Worth Visiting

If you want to read a good "autism" blog check out autism's gadfly hosted by Jonathan Mitchell. He is truly a straight shooter who calls it the way he sees it. And doesn't mind, or maybe enjoys, challenging anyone's autism beliefs and opinions. Although Jonathan is an adult with autism he is not anti-cure and does not embrace the Neurodiversity/Autism Rights ideologies - the full title of his blog is "autism's gadfly I don't need no stinkin' neurodiversity"

I enjoy reading Jonathon's comments even though we disagree on many points, particularly ABA. As he puts it on his web site Jonathon is pro-cure, anti-neurodiversity, anti-special ed, anti-ABA. Not being a fan of the Neurodiversity/alleged Autism Rights Movement I enjoy the shots he takes at the leaders of those "movements" although I wince when he calls parents well intentioned but misguided for advocating for specific treatments, including ABA.

Good Morning America should do their viewers a favor and grant Jonathan the equal time he requested as an autistic person who does not share the Neurodiversity views advocated on their show by alleged Autism Rights advocate Ari Ne'eman. (Mr. Ne'eman was also accompanied by autism parent Kristina Chew who has embraced the sweet surrender of the anti-cure Neurodiversity movement.)

Not all autistic persons, even those who are high functioning, share Mr. Ne'eman's views. And not all agree with the heated rhetoric of Michelle Dawson. autism's gadfly is one that does not. His unique perspective is well worth reading.

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Autism Reality - Missing Autistic Girl Found Safe in Michigan

The Grand Rapids Press reports that a 9 year old autistic Michigan girl who doesn't speak was found Thursday May 15 on the front porch of a residence following a two-hour search by officers and neighbors and reunited with her parents. The girl was reunited with her parents, who called authorities about five minutes after she slipped out of their house.

The "autism is beautiful, autism is a culture" ideologues of the Neurodiversity cult don't say much when autistic children go missing or otherwise place themselves in harm's way. Of course common sense and extremist ideology rarely go hand in hand. And it is hard to blather about the "joy of autism" when an autistic child who can not speak has gone missing.

Thankfully this story had a happy ending and the girl is safe at home with her parents.

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World Autism Awareness Day Has Come and Gone - Now What?

History has been made. The first World Autism Awareness Day has come and gone. CNN, to their credit, featured many more faces of autism, albeit briefly. CNN, to its discredit, returned to its fixation with "atypical" autistic person Amanda Baggs and her neurodiversity, "WE don't want a cure", ideology. But there is no denying that people around the world had their awareness of autism raised to one extent or another. Visits to autism blogs like this one doubled or more on April 2, 2008. OK, we have more autism awareness, now what?

For this father of a 12 year old boy with Autistic Disorder with profound developmental delays the fight will continue to help improve his situation in life and hopefully that of some other autistic children and adults here in New Brunswick and possibly elswewhere in Canada by fighting for government funded ABA intervention for autistic children wherever they live in Canada, continuing to fight for Teacher Aides and Resource Teachers trained at the University of New Brunswick Autism Intervention Training program and fighting for improvement in adult autistic residential care and treatment.

If you are an autistic adult, or parent or family member of an autistic child or severely autistic adult you probably already know what you are fighting for, you probably know what has to be done to help yourself or the autistic loved one in your life.

If you are the parent of a newly diagnosed autistic child though you will want to consult your local professionals with autism expertise. If you do you will most likely be told that there are a number of autism interventions but that there is one above all that has been studied and stood the test of time and been proven effective in helping autistic children - Applied Behavior Analysis:


“ABA is the application of a scientifically-based approach to teaching and behaviour management. Its greatest goal is to teach children the skills that will allow them to be as self-supporting as anyone else in society, to be able to make choices for their own lives.


Dr. Mickey Keenan, University of Ulster, School of Psychology


ABA has more research support than any other treatment or therapy for this population. It incorporates proven strategies such as shaping, prompting, and positive reinforcement. Numerous task forces around the country have endorsed ABA as the preferred therapy for children with autism. There are hundreds of objective research studies that have shown ABA to be an effective method for teaching language, social, and independence skills, and for reducing problem behaviors. There are few, if any, research studies examining sensory integration, floor time, music therapy, and special diets.


Alan Harchik, Ph.D., BCBA, the May Institute


The effectiveness of ABA-based intervention in ASDs has been well documented through 5 decades of research by using single-subject methodology21,25,27,28 and in controlled studies of comprehensive early intensive behavioral intervention programs in university and community settings.29–40 Children who receive early intensive behavioral treatment have been shown to make substantial, sustained gains in IQ, language, academic performance, and adaptive behavior as well as some measures of social behavior, and their outcomes have been significantly better than those of children in control groups.31–40

American Academy of Pediatrics, Management of Children With Autism Spectrum Disorders, October 29, 2007

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Low Functioning Autism, Laurent Mottron and Common Sense

Dr. Laurent Mottron is an icon of sorts of the Neurodiversity movement. A prominent autism researcher who has published voluminously if somewhat narrowly on autism subjects (tending to focus primarily on autistic savants, Aspergers syndrome and High Functioning Autistic persons) he has nonetheless lent his high functioning autism expertise to advocate in Canada against government funding of ABA treatment for autistic children whether they are low functioning or not. Together with anti-ABA activist Michelle Dawson, the good Dr. Mottron is one half of the Quirks and Quarks duo that has made representation to the Supreme Court of Canada (Auton case, Mottron filed an affidavit in support of Dawson's request for intervenor status), the Canadian Senate committee studying autism treatment and financing in Canada and numerous media interviews about the views of "autistics". His views about low functioning and high functioning autism though appear to have escaped examination by his Neurodiversity admirers who mock use of terms such as low functioning or high functioning autism.

Dr. Mottron's anti-ABA advocacy, his articles designed to show hidden and perhaps superior intelligence of autistic persons, and his collaboration with Michelle Dawson, have made him a darling of the Neurodiversity movement as in the following comments by Neurodiversity blogger Autism Diva:

"Autism Diva must say though, that the real heart breaker of Fracophone 'oh-TEEZM" researchers is LauRENT MotTRON. (sigh, sigh) Mottron is at the Hopital des Rivieres des Prairies (?) and Fombonne is at McGill with Szatmari. (not so cute, not French)

Autism Diva met Dr. Mottron a year and a half ago. He doesn't have pretty hair like Fombonne, but he's the best homme in autism research, English speaking or French."

Yet despite his intellectual, and other, appeal to the Neurodiversity movement Dr. Mottron has acknowledged throughout the course of his research career that there are important distinctions to be drawn between low functioning autism and higher functioning autism, Aspergers and autistic savants. At least he has made those distinctions in many of his research articles. Any search of Google Scholar with the terms "autism" and "Mottron" will turn up numerous summaries mentioning function level distinctions of the autistic subjects of his studies. (The good Dr. Mottron has tended to focus his studies on higher functioning autistic subjects. It is not clear if any of his findings have been questioned as to whether they would apply to lower functioning autistic persons). Here are but a few examples where Dr. Mottron has used the high functioning label to characterize his autistic subjects:

… and Global Processing of Music in High-functioning Persons with Autism: Beyond Central Coherence? - all 9 versions »
L Mottron, I Peretz, E Ménard - The Journal of Child Psychology and Psychiatry and Allied …, 2000 - journals.cambridge.org
... enhanced pitch processing is highly compatible with the exceptional pitch-processing
abilities exhibited by musical savants with autism (Mottron, Peretz, et al ...
Cited by 86 - Related Articles - Web Search

Do high functioning persons with autism present superior spatial abilities? - all 5 versions »
MJ Caron, L Mottron, C Rainville, S Chouinard - Neuropsychologia, 2004 - Elsevier
... for participants with autism exhibiting atypical gain in cued recall condition
relatively to free recall condition ([Bennetto et al., 1996 and Mottron et al ...
Cited by 24 - Related Articles - Web Search

Face perception in high-functioning autistic adults: evidence for superior processing of face parts, … - all 2 versions »
A Lahaie, L Mottron, M Arguin, C Berthiaume, B … - Neuropsychology, 2006 - ncbi.nlm.nih.gov
... Lahaie A, Mottron L, Arguin M, Berthiaume C, Jemel B, Saumier D. Hopital
Riviere-des-Prairies, Montreal, PQ, Canada. Configural processing in autism was ...
Cited by 14 - Related Articles - Web Search


Journal of Cognitive Neuroscience
February 15, 2003, Vol. 15, No. 2, Pages 226-235
Posted Online March 13, 2006.
(doi:10.1162/089892903321208169)
Enhanced Pitch Sensitivity in Individuals with Autism: A Signal Detection Analysis
These findings confirm that pitch processing is enhanced in “high-functioning” autism. Superior performance in pitch discrimination and categorization extends previous findings of enhanced visual performance to the auditory domain. Thus, and as predicted by the enhanced perceptual functioning model for peaks of ability in autism (Mottron & Burack, 2001), autistic individuals outperform typically developing population in a variety of low-level perceptual tasks.


Given Dr. Laurent Mottron's persistent use of functioning levels to describe autistic persons in his research it is not clear where the Neurodiversity movement finds its inspiration for its misguided attempts to obscure the distinctions between lower functioning autistic individuals and those like Neurodiversity bloggers who demonstrate great command of language and ability to function in the real world. Parents, including me, who must keep a 24/7 watch on their autistic children for fear that they will, as my son once did, cross a busy street oblivious to the dangers of automobile traffic. are often outraged at such absurd Neurononsense. The story I blogged of autistic 7 year old Samantha in Scotland who inflicts serious injury on herself by beating her head with her hands and other objects surely would be described by anyone with an ounce of common sense as Low Functioning Autistic.

Parents and others who function in the real world can distinguish between the functioning levels of children who are a danger to themselves, or the middle aged woman in a New York residential facility who could not communicate the abuse to which she was being subjected by staff and those who attend colleges for gifted students such as Simon's Rock College or become legal , political and media advocates. In the Neurodiversity world? That is another story.

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Autism Rising in Oregon

More than 7,000 Oregon students have autism, triple the count 10 years ago and 11 percent higher than just a year ago, the state reported Wednesday."

The Oregonian, March 13, 2008

Neurodiversity believers will automatically state that increases in autism in Oregon are due to changes in the definition, diagnostic criteria , and increased public awareness of autism disorders. They are partly correct in that such factors have occurred. And it is very reasonable to assume that such factors account for some of the increases in Oregon and elsewhere. But it is not reasonable to assume that the startling increases in autism disorder diagnoses is attributable entirely to definition change and social factors.

The belief that these increases are due entirely to changes in how we view autism is a faith based belief unsupported by credible studies or data. It amounts, without evidence, to a rejection of the possibility that environmental factors, not just thimerosal, but any environmental factors, are causing or contributing to the rise, across Canada, the US, and Europe to the startling increases in autism diagnoses. The presence of mercury, lead, aluminum, and a long list of chemicals and plastic components in our drinking water, and our environment generally, are ruled out as possible causes or contributing factors to the rise of autism.

The true believers of the neurodiversity movement are free to cling to their beliefs. I prefer to keep an open mind and, until more study is done, and more information is available, work on the assumption that the very dangerous substances in our environment might be having harmful effects on our children. Increases in autism disorder diagnoses might be one of those harmful consequences of our increasingly toxic environment.

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Autism and Mercury Debate - Is the Focus Too Narrow?

I do not get too deeply involved in the blogger-internet debates over whether thimerosal causes, or contributes to autism. As a father of a boy with Autism Disorder, and a humble small town lawyer, I rely on expert sources to interpret the data and report their conclusions, and the reasoning behind their conclusions, in a way that I can follow. I do not try to "argue" the positions of the scientific researchers into submission. To date, it is my understanding that the data does not support a vaccine/mercury/thimerosal connection to autism although further research and further data could modify that conclusion.

I do read blogger and mainstream media commentary on the debate although I rarely find that these sources offer much real information and seldom depart from the "does thimerosal cause autism or does it not" dynamic. A full discussion of the issues is lacking. I have previously commented on other environmental contaminants as possible environmental causes or triggers of autism. There seems to be little consideration of the long list of environmental contaminants as possible autism causes or triggers. With that perspective, I was very interested when I found this online article discussing media coverage of the autism-vaccine debate The Wrong Debate Over Autism Why focusing on thimerosal misses a larger story in the Columbia Journalism Review.

In The Wrong Debate Over Autism Russ Juskalian, a student in the M.A. Science journalism program at Columbia University and a freelance writer, reviews media treatment of the vaccine/autism debate and suggests that the discussion may be too narrowly focussed. While acknowledging the importance of full, and continuing, investigation of the mercury and autism issue, Juskalian asks whether the intense, narrow focus on mercury has distracted from other possible environmental causes or triggers of autism:

" the whole issue of whether vaccines containing thimerosal or mercury cause autism served as a distraction from the ongoing efforts to tease apart the causes of this enigmatic disorder. That’s not to say the vaccine issue shouldn’t be covered at all, but that there are many more important—if less emotionally driven—questions related to autism that deserve further investigation.

Is autism caused by environmental factors? Can it be triggered by these factors? How does epidemiology try to solve these riddles? Are some people genetically predisposed to respond to environmental factors (like mercury)? Can we find a way to screen for these predispositions (like Poling’s metabolic condition)? What else is in our environment that poses a risk?"

Juskalian references Silent Spring by Rachel Carson and the long list of environmental contaminants that have been identified. He also mentions the recent AP information concerning the numerous pharmaceuticals in American tap water. Another relevant news item which could be added to Mr Juskalian's sources is the very recent report by Canadian Press that thirty per cent of Canadian dentists missed a voluntary 2007 target to better control how they release mercury into the environment.

It might be helpful for active participants in the mercury autism debate, and media outlets covering the debate, to read Mr. Juskalian's article, pause and ..... reconsider their approach to these issues. Neither an entrenched belief that vaccine mercury causes autism nor the equally entrenched belief of the Neurodiversity camp that there are no environmental causes of autism provide a wide enough lens to see the whole autism picture.

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Jenny McCarthy Honored for Autism Efforts

In news that might anger the Neurodiversity blogger bees Access Hollywood reports that actress Jenny McCarthy has been honored for her efforts towards autism. At the 2008 Gridiron Glamour event – a celebrity fashion show/benefit auction designed to raise money for autism research Ms McCarthy received the 2008 Trailblazer Award for the attention she has brought to autism with her book and for her honesty. The Gridiron Glamour event itself raises funds for autism research.

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"House Autistic" Or More Neurodiversity Trash Talk

One of the unspoken truths about the neurodiversity "movement" is the extent to which ND adherents engage in Trash Talk in the form of offensive terminology like "curebie" "idiot" and even "retard" when referring to people whose views challenge their ND ideology.

Yesterday I posted about an autistic blogger named Jonathan Mitchell who wrote an article on his site urging other autistic persons and persons with an interest in autism to reject ND ideology to Just Say No to neurodiversity. I received a heated, and somewhat confused, response from someone who identified himself as "Robert Montgomery" although he provided no email address, link or url to confirm that name and I learned for the first time that autistic persons who disagree with the ND ideology are dismissed by neurodiversity adherents as "house autistics". They are also, apparently, dismissed as being liars about their past.

This particular "Robert Montgomery" seemed very upset that I had posted a comment about an autistic individual, Jonathan Mitchell, who dared reject the neurodiversity ideology. In fact he was so upset he posted his comment in response to the wrong article, posting incorrectly under my CNTNAP2 Gene And The Unravelling Of Autism Spectrum Disorders article. This alleged Robert Montgomery accuses Mr Mitchell of being a "house" autistic and declares that "sadly, like most house autistics, they lie about their past."

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Robert Montgomery said...

There's one serious flaw to Jonathan's argument. Not many special education opportunities were available in the 1960's. I think Jonathan needs to change his story. The majority of students with recognized disabilities, and I would presume feces smearing would have been considered a disability even in the 1960's, were in segregated institutions. The IDEA wasn't passed into law until Jonathan would have been 22 years of age. Nice try though Jonathan.

This is from the Georgetown University Press:

As the United States entered the 1960s, American public schools faced challenges in several areas. Discussions regarding social and economic inequality led to intense national soul-searching, with the sweeping implications of the Supreme Court’s 1954 Brown vs. Board of Education of Topeka decision affecting developments in law, politics, social policy, and certainly education. The federal government under President John F. Kennedy determined that much greater involvement on its part was necessary to stimulate action and ensure the enforcement of law, the protection of civil rights for all Americans, and the fulfillment of the promise of public schooling. Among educational professionals, questions about the rigor and direction of curriculum and instruction dominated educational discourse after the launch of the Sputnik satellite by the Soviet Union in 1957, leading to reform efforts in the teaching of most subject areas, science and mathematics. As deliberations about the appropriate purposes, character, and methodology of education intensified, special education found itself linked, directly and indirectly, to changes in the teaching of content and subject matter, the organization and structuring of schools, and the classification and categorization of students.

From 1960 through 1968, special education would continue its dramatic evolution, encountering significant challenges to its assumptions, structures, and operations. It maintained its remarkable expansion in terms of its number of programs offered and students served, even while special educators constantly maintained that an unacceptably low percentage of students who needed special education services were actually receiving them. The introduction and solidification of learning disabilities as a recognized category of disability rearranged and expanded the identified population of children with disabilities; the linking of disability with poverty, cultural deprivation, and minority status substantially altered views on the etiology and diagnosis of disability, especially in the area of mental retardation, shifting the ways in which discussions of special education services and purposes were framed. The number of people with disabilities housed in residential institutions kept increasing, leading to severely overcrowded conditions and serious charges that care and treatment of the residents all too frequently was cruel and inhumane. Such developments took place in the context of rapidly expanding federal involvement as well as heated debate about the propriety of segregated schools and settings, including those for students with disabilities.

Harold, really, a cursory knowledge of the disability movement in the US would have tipped you off that this man could have never spent 8 years in special education.

But like John Best, your not really interested in facts and I my guess would be that this comment too will never be posted on your website. That's ok, because I'm taking screen shots of them to show the world that your a dishonest person not interested in truth.

I'm sure you think your clever because you found a "house" autistic who supports your hatred of autism and autistic people who disagree with you. But sadly, like most house autistics, they lie about their past.

7:33 PM

I personally don't know what Mr. Mitchell meant by his reference to Special Education or whether, as Mr. Montgomery contends. no such "Special Education" could have existed at the time Mr. Mitchell would have attended school but I assume that Mr. Mitchell is telling the truth about a non-controversial matter of that nature. Obviously Mr. Montgomery, at least in whatever state of mind he was in at the time he posted the above note, is very quick to jump to conclusions about other peoples' honesty and character.

I have long known of, and been on the receiving end of, the heated nature of many internet autism debates. Mr. Montgomery's post though seems beyond the pale even by those standards. Hopefully his views of Mr. Mitchell and any other autistic person who presume to disagree with Neurodiversity doctrine are not shared by other Neurodiversity adherents.

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Autistic Blogger Jonathan Mitchell Says NO To Neurodiversity

One of my major complaints about the Neurodiversity movement is the tendency of some high profile autistic media personalities to speak on behalf of all autistic persons, including my son who has limited understanding of language, and limited ability to communicate. The "ND" autistic media stars tend to be anti-cure, anti-treatment with respect to autism. They do not like people discussing any of the negative realities of autism, and don't like autism to be associated in any way with intellectual disability. But not all autistic persons share the ND views. Jonathan Mitchell is an autistic blogger whose views differ from the ND club and encourages others to say NO to Neurodiversity in NEURODIVERSITY: JUST SAY NO on his blog site Jonathan Mitchell. I have extracted some of Mr. Mitchell's comments but I encourage people to visit his site and read it in its entirety:

A number of high functioning autistics claim that there is a consensus among all autistic persons that finding a cure for autism would be a horrible thing. Autism is a part of who they are and to take away the autism is to take away the person. They go further to claim that autism is not really a disorder but just a different form of brain wiring--some call this philosophy "neurodiversity".

Some of them do acknowledge that autism is a disability. However, there is a distinction between a medical model of disability-wherein the person has a disease state and the social model of disability--the disabled person would not be at a disadvantage if society made accommdoations for them.

I am a diagnosed autistic, nonverbal, feces smearing at age 3, 8 year veteran of special education yet I do not share this view. I long for a cure for autism though a cure at age 52 is not the same as at age 3, even in the unlikely event of a cure being found in my lifetime. Somehow I got missed when they took the census. So they are incorrect about all autistics.

Is this a viable philosophy that will help autistics and their families? Is there a consensus for this philosophy among most autistic persons? Are the people who espouse this philosophy typical of autistic people in general? I would like to address these questions in this journal entry.

...

I hope that if any person touched by autism happens to read this and someone from the neurodiverse crowd gives them a homily trying to convince them of their way of thinking that they will, in the words of Nancy Reagan, just say no.

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DeSoto and Hitlan Rebut (Crush?) Autism Street Critique of Autism-Mercury Data Reanalysis Article

Catherine DeSoto and Robert Hitlan have published an FAQ site Frequently Asked Questions about DeSoto and Hitlan (2007) to answer questions and refute some inaccurate, misleading and even erroneous critiques of their important article published in the November 2007 article of the Journal of Child Neurology Blood levels of mercury are related to diagnosis of autism: A reanalysis of an important data set. Most of the FAQ deals with questions raised on Autism Street in A Tale of Two Tails by bloggers Interverbal and Do'C. The two bloggers published a critical review of he DeSoto and Hitlan paper on Autism Street. The Desoto-Hitlan FAQ site exposes many information gaps in the Interval-Do'C critique.

DeSoto and Hitlan responded very politely to the critique and the FAQ site is important reading for anyone with a serious interest in autism, although it will undoubtedly be difficult for many of the 87 Autism Street cheerleaders who published their gloating sarcastic commentaries to read with an open mind. Interverbal posted an interesting comment:

Comment by Interverbal — 18 November, 2007 @ 4:06 pm At this time I don’t think we have any plans to write a letter to the editor. Speaking only for myself, I am anxious to see how Ip et al respond to DeSoto & Hitlan.

As one who does not share Interval's and Do'C's knowledge of statistical methodologies I might have been confused in saying that I too look forward to any reply by Ip et al. As I read DeSoto and Hitlan's FAQ it appears to me that they are saying that Ip et al already acknowledged their errors by the time the DeSoto article was published in November:


Q. Why did you take the time to write about a mistake that had already been corrected by the authors?

A. We didn’t. The mistake had not been found until we found it. We are the correctors. Again, some blog sites have unfortunately served to confuse this issue.

Q. What was really so wrong with the Ip 2004 article?


A. Based on their retraction which appeared in the same issue issue as our article, the mean for the autistic group was wrong, the standard deviations were wrong for both groups, the stated statistical significance in 2004 was way off. The means as they reported them in 2004 result in a significant t test by any standard…meaning that the autistic group had significantly more mercury in their blood than the control group. This is indisputable (or should be). It would not matter if a one tailed or a two tailed test was used. All interested parties should use their original data from the 2004 article and calculate the t value and p value (or put the numbers into an online t test calculator-- see "how can I check the original numbers myself?"). Their original stated level of statistical probability was off by almost 10 fold.


The data set they provided in 2007 misses conventional significance by a hair using their original statistical technique. Some blog sites such as Age of Autism have also pointed out that Ip et al overstated their findings in 2004. This means that the conclusions they made reached way beyond their findings. This is less serious compared to flubbing your stats, but I will note it for completeness.


If I am right in my reading of the DeSoto and Hitlan FAQ site commentary then I assume that Interval and Do'C will publish a retraction of their analysis on Autism Street. I will hold my breath until then. No, no ... on second thought ... I better not. I don't know if Interval and Do'C have the integrity to admit error. My lungs could explode, or I could implode, waiting for the retraction.

Too bad Interval didn't write that letter to the editor.

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Offensive Autism Language at "Aspies for Freedom"

On December 29 I commented on the offensive language and hypocrisy demonstrated by neurodiversity blogger Do'C at Autism Street in Offensive Language On Autism Street where he referred to Donald Trump and Jenny McCarthy as "celebrity idiots". Now another neurodiversity blogger fresh off the suppression of the Ransom Notes campaign is insulting Autism Speaks with the following caption: autism speaks are retarded.

The blogger MATTHE was quick to receive chuckles from his fellow "Aspies for Freedom":


autism speaks are retarded Author Message matthe


Posts: 37
Group: Registered
Joined: Dec 2007
Status: Offline
Post: #1 autism speaks are retarded
any comments? Today 01:14 PM Lestat


Posts: 502
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Joined: Apr 2006
Status: Online
Post: #2 RE: autism speaks are retarded
No need for comment, you are preaching to the choir here mate The light blinds
So behold darkness as our new light
In our darkness we can see
So with others blindness
We take flight. Today 03:28 PM flardox


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Post: #3 RE: autism speaks are retarded
Lestat Wrote:No need for comment, you are preaching to the choir here mate


I like the comment!


short and simple yet profound
I'm watching always watching..... Today 08:03 PM shamshir1218

Posts: 233
Group: Registered
Joined: Aug 2007
Status: Online
Post: #4 RE: autism speaks are retarded
*chuckles at the thread*

It is funny because it is true!!! This person's views are not representative (Gareth)
Please do not remove this notice
The way of the warrior is my path.

Apparently mocking those with intellectual disabilities, by using terms used to describe them in the past as insults, is OK with the neurodiversity blogging crowd. Don't hold your breath waiting for Ari Ne'eman , Estee Klar-Wolfond, and Kristina Chew, all of whom condemned the Ransom Notes language, to express their outrage at their fellow neurodiversity bloggers derogatory mocking of the intellectually impaired. Pomposity they can do. Sincerity, genuine concern for the intellectually disabled; even those who are autistic? Not so good.

autism

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Autism Mom Jenny McCarthy On Chicago Sun-Times Ten Women Who Inspired in 07 List

In a move that will undoubtedly provoke angry outbursts from Autism Hub bloggers the Chicago Sun-Times has named Autism Mom and Celebrity Autism Activist Jenny McCarthy as one of the The ten women who inspired us in '07. Paige Wiser and Lisa Donovan of the Sun-Times noted that:

Jenny McCarthy

The zany blond struck a serious note this year, going public with her son's autism diagnosis. Her book Louder Than Words: A Mother's Journey in Healing Autism was honest, informative, down-to-earth and sometimes painful. McCarthy took a gamble, going public with her problems and shattering her fantasy image. Mothers everywhere thank her.

I do not subscribe to Ms McCarthy's views about autism causes and treatments but I try to keep an open mind and science is not, despite the views of neurodiversity bloggers to the contrary, a process by which possibilities are closed forever. New evidence, new studies may well support her anecdotal evidence about autism cause and treatment.

I do admire Ms McCarthy for speaking out about her son's condition and her efforts to help him. She must have known that as a beautiful actress she would be subjected to scorn and ridicule in some corners for presuming to enter the public debate on issues that affect her son so profoundly. But she did it anyway and encouraged many other parents in doing so. And she probably brought more attention to autism disorders and autism issues than the entirety of the Autism Hub's neurodiversity bloggers will ever do in their lifetimes.

autism

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2007 Autism Blog of the Year - About.com Autism

My personal pick as Autism Blog of the Year 2007 [excluding Facing Autism in New Brunswick ] is the About.com Autism Blog hosted by Lisa Jo Rudy. Ms Rudy's views often reflect the "neurodiversity" perspective; an autism perspective which I do not share. The neurodiversity emphasis can be quickly seen in the links on the related sites portion of the blog where links are provided to the neurodiversity network of alleged "autism" bloggers. Yet, Ms Rudy has clearly been trying to present all views on controversial autism subjects including the recent battle by the neurodiversity community which successfully bullied the NYU Ransom Notes campaign into submission. The parents whose concerns inspired the Ransom Notes campaign lost a voice with that defeat but the blame for that does not lie with Ms Rudy who tried to present all sides of the issue.

Another example of Ms Rudy's attempt to present all autism perspectives is the recently posted series on autism treatments. Most of the treatments presented are not evidence based as effective autism treatments. For that reason I would not endorse them personally but I think it is worthwhile to review and discuss these matters publicly.

For trying to fairly present all sides of the many controversial autism debates my personal choice for Autism Blog of 2007 is About.com Autism. Sorry, I don't have a fancy Web 2.0 badge to offer Ms Rudy for this "award" but I do offer my appreciation.

autism

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TAAAPP - Autism's Confused Anti-Cure, Anti-Parent Movement

Despite the increasing body of knowledge revealing the neurological bases of autism, despite the fact that people who call themselves autistic either have, or are adopting by self-diagnosis, a medical diagnosis which defines autism as a disorder, despite the severe self inflicted injuries which threaten the health and lives of some autistic persons, despite the lives lived dependent on others in various dependent residential care facilities and institutions there are those, particularly on the internet who claim that autism is not a disorder and should not be cured.

There are some in the autism anti-cure movement who acknowledge that it is a disorder, particularly when they are seeking disability accommodation from employers or the provision of government services, but who still say that autism should not be cured. Implicit in this perspective is an anti-parent theme which emerges fully when parents describe candidly and honestly the realities faced by their autistic children particularly the more severely autistic children. Speculating about whether historical figures such as Einstein or Van Gogh were autistic is fine with the anti-cure movement. Touting any autistic savant, or accomplished autistic persons like Temple Grandin is politically correct but woe to the parent who dares speak honestly on behalf of their autistic child.

An interesting example of The Autism Anti-Cure Anti-Parent Perspective which I will refer to by the acronym TAAAPP can be found at Autism is NOT a disorder that NEEDS to be CURED a blogsite operated by someone called Cathy who does not disclose her interest in autism other than her obvious admiration for Michelle Dawson. Cathy only began blogging this month and has only blogged once - "comments re Facing Autism in New Brunswick". This comment contains two of the themes which identify the TAAAPP, anti-autism cure and anti-parent and I reproduce it here in its entirety:

comments re Facing Autism in New Brunswick

I have read this article in which Michelle Dawson(autistic) is mentionned and Erin Anderssen (mother of autistic individual).

I guess my main frustration is that individuals such as Erin are looking to somehow modify their childs behaviour. We live in a society that unfortunately is not tolerant of individuals.

I believe that Autism is not a disease to be cured. When is society going to change their way of thinking and allow for all differences, not just acceptable ones.

As far as specialized clinic's and residential care, shame on you parents that give up and take the easy road out.

Erin maybe if you spent more time with your son, rather than trying to denounce Michelle Dawsons "Scathing remarks" as you so put it, you might be surprised at the outcome.

Apart from Cathy's anti-cure belief she also expressly articulates, in the highlighted comments the anti-parent hostility that underlies much of the TAAAPP and Neurodiversity ideology. She expressly denounces parents who seek specialized clinical care and residential living for their autistic children. I am not sure if Cathy intended to denounce Erin Andersson of the Globe and Mail, or if her comments were directed at me personally, but she again makes it clear that parents should not be weighing in on autism issues on behalf of their autistic children - unless of course they agree with anti-cure icon Michelle Dawson. Cathy's logic is, unfortunately, confused by any measure, but it is a clear and concise reflection of the confused logic of Autism's Neurodiversity and TAAAPP ideologies.

For Cathy's benefit though I will plead guilty, guilty to her charge of trying to modify my son's behavior. Guilty of trying to modify his behavior to prevent him from banging his head on the wall until he injures himself, guilty of trying to modify his behavior to prevent him from biting his hands, wrists and ankles. I plead guilty to trying to modify his behavior to prevent him from walking into automobile traffic unaware of the consequences. I plead guilty to advocating for government funded pre-school, evidence based, autism interventions for my son and other autistic children. I plead guilty to advocating for autism trained teacher aides, resource teachers and autism suitable modified learning environments for my son and other autistic children.

Cathy, I thank you for showing me how intolerant I am in imposing on my autistic son Conor my beliefs that he should enjoy as full, enriched and rewarding a life, with as much independence, as possible.

autism

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Autism's Worst Anti-ABA Rhetoric Award 2007

The anti-ABA ideologues who lobby incessantly to keep parents from gaining access to proven effective Applied Behavior Analysis intervention for their autistic children have produced some incredible excesses over the years. Particularly noteworthy is the ludicrous claim that helping autistic children by ABA methods infringes the civil rights of autistic persons. According to the anti-ABA internet crowd helping a child make the gains reported in the recent American Academy of Pediatrics autism reports is actually a violation of the human rights of autistic persons; an imposition of the values of the Neurologically Typical on autistic children. A comment today on Ed's Autism Page is so outrageous it deserves a new award "Autism's Worst Anti-ABA Rhetoric Award, 2007".

In Behavioral Reformation the host of Ed's Autism Page actually equates behavior modification with some of the major acts of oppression and aggression committed by European and American powers in the last 400 years including the aggression against the native inhabitants of the American continents, enslavement of African people, and the violence against those accused of withcraft. Ed, an autistic adult, makes it clear that this authoritarian based behavior modification is exactly what is being used today to oppress autistic persons:

Rather than accept public responsibility, overcomers of what are considered afflictions of thought, perception, or behavior, are glorified and if the one whose behavior is seen as "abnormal" cannot be punished in a way that society will readily agree with, the force that dictates the person's behavior must be seen as either demonic, provoked by disease, or promoted by genetic defect that must be eliminated.

What is important to remember is that once a behavior can be described to the public as wrong instead of different, it can and does lead to the worst and most savage methods of the behavior modificationists. Those who modify behavior that is different in the justified name of "correcting what is wrong" go unpunished and their methods (once justified in this way) are not only accepted, they are promoted. These are the REAL wrongs that need to be researched, investigated, and fixed!

It takes a lot to beat the rhetorical excesses of those who ascribe all manner of evil to allegedly misbehaving behaviorists but the host of Ed's Autism Page seems to have pulled it off. Is it possible to talk to the host of Ed's Autism Page and suggest that using behavior modification to eliminate self aggressive behavior by an autistic child is not really oppressing the autistic child ?

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Autism Reality NB Thanks "Neurodiversity" Visitors

I want to take the opportunity today to thank the many Neurodiversity visitors that I have received on this blog site since it began 15 months ago. Neurodiversity is a very loose and somewhat fractured group or persons, largely internet commentators, who are opposed to efforts to cure or treat autism. And they have often criticized me specifically and other parent autism advocates seeking to help their autistic children.

Even within Neurodiversity groups there is a significant divide between those ND members who acknowledge that autism is in fact a disability that restricts to one extent or another the lives of persons with autism and those who feel that autism is just another natural, in some ways superior, variation of the human condition. There are arguments over whether it is appropriate to use expressions like "persons with autism" as opposed to "autistic persons". Some argue that it is inappropriate to refer to autistic persons by common sense expression like "low functioning" or "severely autistic". It is not clear how they would have us distinguish between people like my 11 year old son who has limited communication ability and limited understanding of everyday realities - and dangers - and those autistic persons, some self diagnosed, or diagnosed as adults, who write complex internet essays, testify before government bodies and court proceedings. But then their focus lies not with helping less fortunate autistic persons achieve positive gains in intellect, communication, knowledge, writing or understanding.

To the contrary, what unites all members of the "Neurodiversity" movement is their opposition to attempts to treat or cure OTHER autistic persons, including autistic children. I have capitalized OTHER for a reason. No one is forcing adult autistic persons to undergo treatment. What unites the ND ideologues is their determined opposition to any realistic effort to help other peoples' autistic children. They can dress it up any way the want but the truth is that ND ideologues oppose ABA for autistic children; other peoples' children. ABA is an evidence based intervention demonstrated by the quantity and quality of evidence over five decades of research to be effective in helping autistic children make substantial, sustained gains in IQ, language, academic performance, and adaptive behavior as well as some measures of social behavior, and their outcomes have been significantly better than those of children in control groups.

(Italicized Portion from American Academy of Pedatrics; Management of Children With Autism Spectrum Disorders, 2007)


What unites the ND group is their opposition to the only method demonstrated to produce substantial, sustained gains in IQ, language, academic performance, adaptive behavior and some measures of social behavior for autistic children. This is wh