Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Friday, July 04, 2008

Jonathan Howard Runs The Dream and Raises Autism Awareness in Ottawa


Jonathan Howard Meets Liberal Leader Stéphane Dion
Photo from Run the Dream - Jonathan's Blog


Jonathan Howard Runs the Dream across Canada to raise funds to support people with autism and raise autism awareness. He began in March in St. John's, Newfoundland and hit Fredericton, New Brunswick where I met him on June 5. I had the opportunity to talk with Jonathan at that time and I was very impressed. He is a sincere and dedicated young man of 24 who has committed the better part of a year of his life to help people with autism.

Jonathan has met, and raised autism awareness, with provincial premiers along the way. This week, as detailed in his hometown journal, The Mississauga News, Jonathan arrived at Ottawa where he was joined on his run by Kathleen Provost, executive director, Autism Society Canada, and Senator Jim Munson. Jonathan also met with federal Liberal Leader Stéphane Dion. Jonathan reports on his blog that he had extended an invitation to meet with Prime Minister Stephen Harper. Jonathan, very diplomatically, states:

For those wondering- What about the Prime Minister Stephen Harper? The invitation was sent a week ago and I am still awaiting a response. Lets Hope!


Far be it from me to challenge Jonathan in the Hope department. If anyone can get Mr. Harper to wake up to the realities of autism in Canada it just might be him.

Keep up the good work Jonathan!

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Thursday, July 03, 2008

Autistic Children Grow Up


Autistic children grow up.


They get taller, bigger, stronger. And like other parents we must adapt as they do, both to continue to enjoy their presence in our lives and to help them develop to their fullest potential. For some parents of autistic children the physical growth of their children also represents a point of departure; they must part company with their autistic children whose behavioral challeges can no longer be accommodated coming from the large, powerful frame of an adult. The brutal reality is that some parents (particularly mothers) and siblings are physically attacked by the autistic children, brother or sister for whom they care so deeply.

I have read on the internet heart wrenching stories of parents who have had to make the agonizing decision to send their autistic child/adult to live in residential or institutional care. As a lawyer I have provided some pro bono legal services to parents struggling with the challenges of caring for autistic children who have been aggressive to them and had become a risk to family members. Such realities are not the usual autism fare of CNN, New York Magazine or Good Morning America. They are real none the less for the parents who care for these children and mourn, (yes Jim Sinclair MOURN), the premature loss of their children.

Above are pictures of our son Conor, 12, with his mother, Heather (also author of Goody Bledsoe, see right side of page). Conor, diagnosed with Autistic Disorder, is now slightly taller than his mother. He grew like a weed this past year, with the usual changes that accompany that stage of life. When Conor is outside the house by himself, in the yard or on one of the steps, we check constantly. Sometimes visually, sometimes by asking him to say "Hi". On one such occasion I was startled by the deep man's voice that answered. It was Conor's voice, no longer the voice of a boy.

Conor is aggressive on occasion. We have "managed" the aggressive aspects of his behavior, thanks in large part to Applied Behavior Analysis therapy which has also helped Conor with so many areas of life. But there are still times when it is difficult. And we know that a day will likely be coming when we will no longer be able to have him with us in our home. As Conor grows bigger and stronger and we grow older and weaker.

In the meantime though we enjoy Conor and all that he has brought to our lives. We do not subscribe to the misguided "autism is beautiful" ideology that urges people to find joy in their child's neurological disorder. We accept the realities of Conor's autism, we face those realities and we try to do something about them, to help Conor overcome them to the fullest extent possible. We do so with great joy, the joy of Conor, a fun loving, affectionate but challenging blessing in our lives. For as long as we can.

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Wednesday, July 02, 2008

7 Year Old Autistic Boy Wanders Away From Camp And Into Traffic

Not long after autistic adult Keith Kennedy wandered away from a camp in Wisconsin 7 year old autistic boy Colin Hays wandered away from camp in Maryland - where he was spotted by his mother a short time after she had dropped him off for the day wandering the shoulder of a busy highway. As reported by myfox washington d.c.:

"he ... crossed over busy Montgomery Road and walked over a highway bridge. Then, he climbed down and wound up walking on a highway on ramp shoulder .... The posted speed limit on the ramp is 40 miles an hour, but traffic routinely travels at speeds of 50 or faster.

Colin's mother says she was walking about four feet from the whizzing cars when she happened to drive by. "My heart stopped, I slammed on the brakes," said Kristen Detwiler, the boy's mom. "I stopped my car, left the car on the middle of 100. I ran out in a skirt and heels and started chasing him screaming, "Colin, stop! It's Mommy! Stop!'" Detwiler was able to successfully rescue her son from the dangerous situation. "

I can imagine the fear felt by Kristen Detwiler when she saw her son in danger.

I admire her courageous action in rescuing him.

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The Adult Autism Crisis

In What Happens When They Grow Up, Newsweek, to its credit, focuses on the very real adult autism residential care crisis which exists in the United States (and in Canada). Newsweek is unable to provide any real solutions but hopefully the article will help focus the public discussion of autism on the very serious crisis confronting adults with autism disorders who can not care for themselves.

Not all "autistics" grow up to become researchers, Supreme Court of Canada litigants and college students, appear repeatedly on CNN with Dr. Gupta, or start "Autistic"rights movements. Some are more severely impaired, lacking basic communication skills and an understanding of the world and how to function in it.

Here in New Brunswick we have much to be proud of in terms of autism service delivery for autistic pre-schoolers and our schools are rapidly becoming a model second to none in North America for educating autistic students. But our autistic adult services are abysmal.

In New Brunswick our autistic adults in need of residential care are placed in privately operated group homes. The homes are not set up specifically for autistic adults and the staff are not trained to deal with autistic adults. The more severely autistic adults and older autistic youths in New Brunswick have been kept on the grounds of a correctional facility, on the ward of a general hospital, left with overwhelmed parents or exported to facilities elsewhere in Canada and the United States.

The adult autism crisis is not unique to New Brunswick but, unlike our services for preschool and school age autistic children, the adult care autism crisis here in New Brunswick is amongst the serious in North America. By literally exporting our autistic adults we are admitting that we have failed some of our most vulnerable New Brunswickers.

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Tuesday, July 01, 2008

Is Fragile X the Treatable Type of Autism?

In The Fragile X Factor TIME in partnership with CNN examines Fragile X in the family of Cari and Andrew Wheeler of Madera Ranchos, California including son Max, 7 , who is mildly autistic and mildly retarded. In addition to Max his mother is experiencing premature menopause and his grandfather is suffering from neurological decline. The conditions of all three are impacted by the Fragile X syndrome and the defective X chromosome gene they carry. All three are featured and their common Fragile X syndrome described.

The article also focuses on fenobam, a potential drug treatment for FXS and other types of autism. Pediatrician Randi Hagerman, medical director of the MIND Institute, and a team at Chicago's Rush University Medical Center have begun trials with fenobam. Neuroscientist Mark Bear of MIT is expected to begin trials with two other drugs in 2008. Hagerman is particularly optimistic:

"We're looking at a medication to reverse the retardation and I think we can achieve it."

Hagerman's husband Paul also studies Fragile X and urges parents with an autistic child to consider testing for Fragile X. In his opinion autism caused by Fragile X will be known as the "treatable type".

If the drugs fulfil their potential and are indeed found to be an effective treatment for Fragile X related autism some neurodiversity oriented parents may have to reconsider their "Autism is Beautiful" hostility toward autism cures. It is one thing to oppose a hypothetical treatment or cure. It would be something altogether different for parents to refuse actual proven treatments that could cure their autistic children and give them a chance at a richer life.

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Washington Post Omits Historic Date, Important Information, From Autism Key Dates List

The Washington Post has published a list of Some Key Dates in Autism History. The list has an important omission and is inaccurate or misleading on some controversial assertions. The article also repeats, without qualification, some oft repeated official positions that are not entirely accurate or are subject to serious dispute.

1) 1987 Lovaas Study On Effectiveness of ABA

The
article, by Brittney Johnson, makes no mention of the publication in 1987 of the Lovaas study indicating that 90% of children substantially improved when utilizing Applied Behavior Analysis, compared to a control group with close to half attaining normal IQ and testing within the normal range on adaptive and social skills.


2) Alleged Thimerosal Removal

2000 In response to broad government concerns, vaccine makers remove thimerosal, a mercury-based preservative, from all routinely given childhood vaccines.


That statement is not entirely accurate. As stated by Dr. Robert Schecter, lead author of the recent California epidemiological study on rising autism incidence:

"Autism rates increased consistently ... throughout this period, despite the exclusion of mercury from nearly all childhood vaccines,"[Bold highlighting added -HLD]

As for Haley's argument that some children still might be getting some mercury from vaccines, Schechter said that could be true.

"I would not claim that children are getting no mercury from vaccines," Schechter said."

- Lexington Herald Leader, February 4, 2008


3) 2004 IOM Report - No credible evidence of a link between thimerosal and autism . . . or between the measles-mumps-rubella vaccine and autism.


2004: The Institute of Medicine, which advises the government on scientific matters, finds no credible evidence of a link between thimerosal and autism . . . or between the measles-mumps-rubella vaccine and autism.

The 2004 IOM report and the processes used in preparing it have been criticized; including recently by former NIH Head Dr. Bernadine Healy who stated that the IOM expressly discouraged research and investigation of a possible vaccine/thimerosal link to autism and that the IOM report authors did so because of fear of vaccination rejection by the general population. Dr. Healy's contentions appear to be supported by some of the IOM report statements at page 152.

4) Autism Spike

2007: The Centers for Disease Control and Prevention reports autism affects 1 in 150 children. Medical experts say the changed number reflects better detection, broader diagnostic criteria and increased public awareness -- not a spike in the disease.

Some medical experts attribute the spike entirely to diagnostic criteria change and increased public awareness ...... and some do not. Research is continuing into possible environmental causes of autism and their potential contribution to current rates of autism diagnosis.

5) Bettelheim's Refrigerator Mother Theory

1971: Eminent psychologist Bruno Bettelheim promotes the "refrigerator mother" theory, which holds that "cold," unurturing parents, especially moms, are to blame for autism.

The article describes Bettelheim as an eminent psychologist and makes no mention of the fact that his "theory" is totally discredited today .... or to the harm that it caused to families.

All in all, a less than sterling effort by Brittney Johnson and the Washington Post.

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Monday, June 30, 2008

Happy Birthday Dad
























Today is my birthday.

Conor approached me several times late this afternoon to say "Happy Birthday Dad". And I can assure you he had no ulterior motives at all.

Nope, no ulterior motives, none at all.

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Early Stem Cell Mutation Linked to Rett Syndrome

A communication release by the Burnham Institute for Medical Research claims that a study by Burnham scientists shows that neural stem cell development may be linked to Rett Syndrome. The study published today in the early online edition of the Proceedings of the National Academy of Sciences, reports that mice lacking the myocyte enhancer factor 2C (MEF2C) protein in neural stem cells had smaller brains, fewer nerve cells and showed behaviors similar to those seen in humans with Rett Syndrome. The communique claims that the study represents the first direct link between a developmental disorder of neural stem cells and the subsequent onset of autism.

The research team was led by Stuart A. Lipton, M.D., Ph.D., a clinical neurologist and Professor and Director of the Del E. Webb Neuroscience, Aging and Stem Cell Research Center at Burnham who expressed optimism that the results of the study could lead to correction of the mutation in mice and ultimately in humans:


"These results give us a good hint of how to look at Rett Syndrome and potentially other forms of autism in humans," said Dr. Lipton. "Having identified a mutation that causes this defect, we can track what happens. Perhaps we can correct it in a mouse, and if so, eventually correct it in humans."

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Sunday, June 29, 2008

Environmental Causes of Autism and the Existence of an Autism Epidemic

If you can believe some professors of cultural anthropology and classical literature there are no environmental causes of autism and there is no autism epidemic. ALL of the dramatic increases in the numbers of autistic children and adults are due ENTIRELY to the definition changes in the DSM and to diagnostic substitution. Bringing their powers of personal opinion, societal observation and literary analysis to bare on the subject they have concluded that there is no autism epidemic.

We can all rest easy now that the rumor of an autism epidemic has been thoroughly discredited by these uh .... giants of science. No need at all for parents to worry about mercury, lead, pesticides and other harmless substances to which we as DNA bearing parents or our children themselves might be exposed. We can all rest assured that autism is purely genetic. Any and all increases in cases of autism must be due entirely to definition change, diagnostic substitution, increased awareness etc. According to the true believers autism has only genetic causes and there is nothing we can do to treat or cure our autistic children. Que Será Será.

Of course there are heretics out there, unbelievers who have not yet seen the light, people who actually give credence to theories about global warming. People who are concerned generally about the increasingly toxic bath into which each new generation is born. I must confess to being one of those heretics. While the genetic bases of autism are becoming known with increasing specificity the role of possible environmental cause or triggers of autism has not been eliminated. Far from it.

Studies of twins have established that it is not 100 per cent genetic, since even among identical twins, when one has autism, the likelihood of both twins having autism is only about 60 per cent. This means there must also be an environmental component, but what it is remains unknown.

Simon Baron-Cohen, Freedom of Expression, TimesOnLine, December 14, 2007

A recent article in Pediatrics, Official Journal of the American Academy of
Pediatrics, by authors Bruce M. Altevogt, PhD, Sarah L. Hanson, BA and Alan I. Leshner, PhD also addresses the mix of genetic, biological and environmental stressors. All three authors are members of the Forum on Neuroscience & Nervous System Disorders, Institute of Medicine, Washington, DC. Dr. Leshner is also associated with the American Association for the Advancement of Science, Washington, DC. In the abstract for Autism and the Environment: Challenges and Opportunities for Research, PEDIATRICS Vol. 121 No. 6 June 2008, pp. 1225-1229 (doi:10.1542/peds.2007-3000) , it was stated that:

Autism spectrum disorder is a complex developmental disorder that dramatically affects the lives of patients and their families and the broader community. The causes of autism are unknown; however, evidence increasingly suggests that a complex interplay among environmental stressors, genetic mutations, and other biological factors likely plays a significant role in the development and/or progression of autism spectrum disorder. [bold highlighting added - HLD]

In Environmental Factors and Limbic Vulnerability in Childhood Autism American Journal of Biochemistry and Biotechnology 4 (2): 183-197, 2008 Dr.Richard Lathe of Pieta Research, Edinbugh, expressly argues against diagnostic substitution as a complete explanation for the current prevalance of autism spectrum disorders and stresses the likelihood of substantial environmental contributions:

The rise in prevalence of autism spectrum disorders (ASD) is suggestive of a
new etiology. Diagnostic substitution alone is unlikely to account for the increase, while genetic association with detoxification gene alleles points to an environmental contribution. Subtle structural anomalies in the ASD brain are widespread but limbic damage seems important for the development of behaviors diagnostic of ASD. The limbic brain is especially susceptible to environmental challenge: internal sensing, physiological feedback and neuroinflammatory processes may underlie this sensitivity to insult. Primary damage leading to ASD in later life is likely to take place in utero and/or in the immediate postnatal period. Despite evidence of heavy metal involvement, a causal connection may not yet be concluded because subjects exposed to metals tend to be exposed to other environmental agents. Because maternal minerals and lipids are supplied to the unborn child, historic toxic exposure of the mother may be pivotal. A two-hit combination of genetic susceptibility and environmental challenge is argued to underlie the rise in ASD.

Personally, I believe that we are in the midst of an Autism Knowledge Revolution in which science, not the ancient Greeks, or superficial and irrelevant cultural comparisons, will determine with increasing certainty the causes of autism, be they genetic, environmental or some combination of factors. As that knowledge increases debates about whether we are living in an autism epidemic should also be decided with greater certainty.

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Friday, June 27, 2008

Autism's Neurotypical Heroes

"Neurotypical" is a term used by some persons with high functioning autism and Aspergers to describe persons who do not have an Autism Spectrum Disorder. Wikipedia entries claim that

"While originally coined among the autistic community as a label for non-autistic persons,[2] the concept was later adopted by both the neurodiversity movement and the scientific community."

One of the points not often stressed in the heated and sometimes angry world of internet autism "discussions" is the heroism of the "neurotypicals" from parents who sacrifice and struggle to raise their autistic children and care for them to the teachers, aides and other educators who try to educate autistic children, accommodate the diverse challeges they present, and in some cases deal with physical harm inflicted by those they try to help. These are real, every day, "neurotypical" heroes.

There are also professional neurotypical heroes like Dr. Paul McDonnell, professor emeritus (psychology), clinical psychologist and the mentor behind New Brunswick's (New Brunswick, Canada) evidence based autism service delivery system. Dr. Mickey Keenan in Northern Ireland and Dr. Doreen Granpeesheh in the United States. These are but a few of the many dedicated neurotyical professionals who use their education, experience, time and effort to actually help persons with autism.

I was very impressed recently with the heroic efforts of the neurotypical volunteers who worked for a week to ultimately find ,and deliver to safety, Keith Kennedy the autistic gentleman from Minnesota who wandered off and was lost in the Wisconsin woods near the camp he was staying at. These people sacrificed a lot of their time and comfort to help this autistic man they did not know.

As a neurotypical father of a severely autistic 12 year old boy I give thanks today, not because it is a "thanksgiving holiday" but because I choose to do so, to the many "neurotypical" fellow parents, professionals, educators, therapists, politicians and civil servants who have helped to make life better for my son.

You are all heroes, each and every one.

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Thursday, June 26, 2008

Missing California Autistic Boy Found Safe 12 Miles From Home

Andre Hsu
Photo - Orange County Register


Andre Hsu, a 12 year old autistic boy with limited speech, was found safe and unharmed in Norwalk 12 miles from his home. The boy, who has been returned to his family, went missing after school and was found after calls to police in Norwalk. The Orange County Register reports police believe he probably got on the wrong bus.

His family is undoubtedly ecstatic to have their son home safe and sound.

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Autism and MicroRNAs


The Autism Knowledge Revolution continues with publication of a paper by University of California, Santa Barbara professor Kenneth S. Kosik "Heterogeneous Dysregulation of microRNAs across the Autism Spectrum” in the journal Neurogenetics. In addition to Koskik, senior author, other authors are Kawther Abu-Elnee, Tsunglin Liu, Francesca S. Gazzaniga, Yuhei Nishimura, Dennis P. Wall, Daniel H. Geschwind and Kaiqin Lao. The paper reports results of a study which found that "altered miRNA expression levels are observed in postmortem cerebellar cortex from autism patients, a finding which suggests that dysregulation of miRNAs may contribute to autism spectrum phenotype".

The University of California communications release MicroRNAs provide new insight in study of autism explains:

Ribonucleic acid, or RNA, is a link between DNA and protein. Some RNAs, according to Kosik, do not make a protein. One such type of RNA is called a microRNA because it’s very short. While there are 23,000 genes in the human body, there are about 1,000 different microRNAs.

The short RNA sequences can bind to many different, longer RNAs and inhibit them from making the protein, Kosik’s study found. “In this manner, they exert a broad regulatory control over the expression of many different proteins,” he said. And many of the genes they control are involved in brain development.

“It was of interest to find that various members of the microRNA family are frequently dysregulated in autism,” Kosik said. “This result points to a single control layer in the cell that can change in quite different ways with autism as the end result.”

Kosik indicates that, like recent studies showing mutations among small numbers of autism patients, this study also suggests there is a broad spectrum of diverse autism disorders:

“We can’t continue to look at this as a monolithic entity. This is not a single disease.”


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Tuesday, June 24, 2008

Autistic Man Keith Kennedy's Survival Story Won't Be Told


Keith Kennedy Transported On Stretcher
(AP Photo/Inter-County Leader, Priscilla Bauer)


AP reports that Keith Kennedy, who is autistic and is also a kidney transplant recipient, had only hours to live after being lost in the woods of Wisconsin for 7 days. Doctors say he is in stable and improving condition. How he survived is, and probably will remain, a mystery. Mr Kennedy has very limited language skills:

"How did he survive? He's a very lucky young man," said Dr. Timothy Whelan of the University of Minnesota Medical Center, Fairview.

Even though he hadn't taken anti-rejection drug for a 1995 transplant since he disappeared, Whelan said he was optimistic that the kidney Kennedy received from his father would recover.

Bruce and Linda Kennedy also wonder how their son managed to survive a week in the woods without the skills to fend for himself.

They'll probably never know the answer because Keith Kennedy can speak only four words.

"We're not anticipating him communicating anything about this," Bruce Kennedy said. "He's never spoken in the past tense in his life."

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Monday, June 23, 2008

"He's Right Here", Missing Autistic Man, Keith Kennedy, Found Alive In Wisconsin

Keith Kennedy, the missing autistic man from Minnesota, has been found alive a mile from the Wisconsin camp from which he went missing a week ago. Mr. Kennedy was found, curled in a fetal position, severely dehydrated and covered with sores and ticks, just before searchers were to decide whether to start scaling back on search efforts according to the Minneapolis Star-Tribune. It was the fourth sweep of that area by searchers who were amazed to find him:

"We were yelling for the other guys because [the woods were] so thick," he said. "Suddenly we came to a clearing and Jim said, 'He's right here.' I said, 'Who?' and Jim said, 'No, he's right here, the one we're looking for. He's right here.'"

Congratulations to all the searchers who made such a determined effort to find Keith Kennedy. Incredibly, and thankfully, this has ended well for Keith Kennedy and his family.


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Sunday, June 22, 2008

Just Another Conor Sunday Fun Day
















































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Desperate Search Continues For Missing Autistic Man Keith Kennedy


Keith Kennedy, a 25 year old autistic man from Minnesota, has now been missing a week from Trade Lake Camp, a camp for developmentally disabled adults in Wisconsin. The search area has been expanded. With the passage of a week, and Mr. Kennedy's need for medication for his kidney, WCCO Minnesapolis reports that the search has become desperate and that his family is praying for a miracle. "It's especially challenging since Keith can be scared off by loud sounds and probably will not respond to his name."

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Friday, June 20, 2008

The Incomprehensible Death of a 9 Year Old Autistic Boy In Quebec

The Montreal Gazette has reported the following information from the Conorer's report into death of a 9 year old autistic boy, Gabriel Poirier:

"A coroner's report released today revealed suffocation as the probable cause of the death of a nine-year-old autistic boy. ... After being told repeatedly to calm down by a teacher, he was rolled in a weighted blanket. With his arms by his side, he was left on his stomach for over 20 minutes with only his toes exposed. When the teacher went to check on him, he was "listless and blue in the face," the Coroner's report said. "

Arms Restrained
Face covered (only his toes exposed)
Left on his stomach
Left unattended for over 20 minutes

If that information is correct it is difficult for me to see the actions by the teachers involved, who owed a duty of care to that child, to be anything less than gross incompetence and negligence, possibly criminal negligence. I can think of no excuse or justification for their actions.

The death of 9 year old Gabriel Poirier is incomprehensible.

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Thursday, June 19, 2008

Autism Transitions - Conor Loved His First Year of Middle School























Transitions can be difficult for children with autism. We were anxious at the start but we were prepared with a good plan and good help from everyone at the school and district. Very special thanks to Teacher Assistant Brad Daniels who was outstanding.

Conor himself though was most responsible for his great year. Above is Conor with his Perfect Attendance certificate for which he also received the trophy above, right. Conor received ABA instruction, including Discrete Trial Training, as well as activity and time in general areas like the gym, pool, kitchen and library.

For those who think that ABA is somehow "oppressive" and "robs an autistic child of his personality" Conor's perfect attendance, and the enthusiasm he showed each day being the first in our household, every single day without fail, to head for the family car to get to school, say otherwise.

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When Autism Isn't A Joy - Missing Keith Kennedy Won't Call Out


Keith Kennedy

Somewhere tonight, perhaps at an art gallery in Toronto, or a literary event in New Jersey, there are some who will celebrate the joy of autism. But in the woods of Wisconsin, Keith Kennedy, an autistic man from Minnesota, with serious physical health issues, is still missing and it is feared he will not call out if he hears his name. Keith's mother told the StarTribune.com that:

"her son has been a wanderer since he was very young. She said that some camp officials didn't know he required constant vigilance."

You won't see much about some of the negative realities of the autistic persons, children and adults, who go missing, in the rhetoric of "Autism" Rights ideologues like Michelle Dawson, Ari Ne'eman or Alex Plank. Most parents of severely autistic children though, including me, are all too aware of the need for constant vigilance.

I have felt the fear of a severely autistic son gone missing; although for a much shorter time than the Kennedy's have endured. It was the most intense fear I have felt in my life. I hope it turns out well for Keith Kennedy and his family.

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Wednesday, June 18, 2008

autism's gadfly, A Name Well Chosen, A Blog Worth Visiting

If you want to read a good "autism" blog check out autism's gadfly hosted by Jonathan Mitchell. He is truly a straight shooter who calls it the way he sees it. And doesn't mind, or maybe enjoys, challenging anyone's autism beliefs and opinions. Although Jonathan is an adult with autism he is not anti-cure and does not embrace the Neurodiversity/Autism Rights ideologies - the full title of his blog is "autism's gadfly I don't need no stinkin' neurodiversity"


I enjoy reading Jonathon's comments even though we disagree on many points, particularly ABA. As he puts it on his web site Jonathon is pro-cure, anti-neurodiversity, anti-special ed, anti-ABA. Not being a fan of the Neurodiversity/alleged Autism Rights Movement I enjoy the shots he takes at the leaders of those "movements" although I wince when he calls parents well intentioned but misguided for advocating for specific treatments, including ABA.

Good Morning America should do their viewers a favor and grant Jonathan the equal time he requested as an autistic person who does not share the Neurodiversity views advocated on their show by alleged Autism Rights advocate Ari Ne'eman. (Mr. Ne'eman was also accompanied by autism parent Kristina Chew who has embraced the sweet surrender of the anti-cure Neurodiversity movement.)

Not all autistic persons, even those who are high functioning, share Mr. Ne'eman's views. And not all agree with the heated rhetoric of Michelle Dawson. autism's gadfly is one that does not. His unique perspective is well worth reading.

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