Saturday, November 29, 2008
Ms Hoctor describes the autism reality of Kate Southern, 35, who lost her mother and primary carer to brain cancer earlier this week. Now she is due to be relocated to a group home in a location some distance from her remaining family members. After visiting and viewing the group home Ms Southern has begun tearing her hair out in clumps.
The challenges faced by Kate Southern are not uncommon to severely autistic persons. They occur here in New Brunswick Canada where an inadequate residential care system for autistic adults results in adults living on hospital wards, shipped out of the country or living in group homes with untrained staff, one of which recently closed on 24 hours notice.
The realities of autism aren't discussed much by the Toronto art gallery crowd at the Canadian Broadcasting Corporation that like to promote the autism is beautiful ideology of a few persons with Aspergers and High Functioning Autism.
Maybe someday the CBC "journalists" will Stumble Upon stories of lower functioning autistic persons like Kate Southern in Australia or Tiffany Pinckney in Toronto.
Maybe they will get away from their desks and examine all aspects of the autism spectrum of mental disorders.
Maybe the CBC "journalists" will discover the autistic persons who don't appear several times a year in media interviews because they live in residential and institutional care and can't communicate or understand the ideology that says that Autistic Disorder is not really a disorder after all.
Maybe, but I won't hold my breath waiting.
I will thank Michelle Hoctor and IllawarraMercury.com for some real autism reporting.
Friday, November 28, 2008
There are many autistic persons who do not enjoy the intellectual and communication gifts of the anti-cure autistic leadership. There are autistic persons who will live their adult lives dependent upon the care of others, without jobs, families or even the ability to walk about safely in their communities without risk of harm, even fatal harm, to themselves.
My son has profound developmental "delays" associated with his Autistic Disorder diagnosis. He is a great joy and blessing in my life. I love him with every ounce of my being. But he can not be left unattended to wander away on City streets. Today he can be overwhelmed by busy shopping mall or mainstream classroom environments to the extent that he hurts himself with biting or hitting. His life prospects after I can no longer care for him will be those of residential care by strangers.
Ms Fougere and the Canadian "National" Autism Foundation do not speak for my son when they say that autism research is not, or should not, be about finding a cure. This "National" Foundation which I have never heard of in this part of Canada did not consult my son or me before offering their anti-autism cure opinions.
If an effective, safe, cure became available I would want it for my son, so that he could live as independent, full, safe and rewarding a life as possible. He is unable to offer an opinion on the subject but I speak for him as his father and caregiver. Tina Fougere, and the Canadian "National" Autism Foundation do not.
WDSU.com reports that Jack Engalade, an 11 year old autistic boy, has been found safe and in fine condition despite being missing and wandering New Orleans streets for five days. The WDSU site has a video clip of Jack home with his family on Thanksgiving.
Thursday, November 27, 2008
Wednesday, November 26, 2008
Jack Engalade, Missing Autistic Boy, New Orleans
Photo - NOPD
Let us all hope for the best.
Your gutless anonymous comment was not posted to this site. Feel free to continue submitting such cowardly, snivelling little attacks though. I enjoy reading them; knowing you are cowering in anonymity down under.
Have a good day bloke, mate, sheila ... or whatever you are.
Facing Autism in New Brunswick has been honored with a nomination for a Canadian Blog Award in the Best Health Blog category. It really is, without any false modesty, an honor just to be nominated alongside the other excellent blogs in this category.
There will be 2 rounds of voting. First round voting is under way. If you would like to vote you can do so at Canadian Health Awards Best Health Blog.
I encourage everyone to check out all the nominated blogs:
- Ottawa Street Dental
- Weighty Matters
- Medical Education Blog
- Canadian Medicine
- Breast Reloaded
- Prostate Reloaded
- Fibromyalgia and Exercise
- Marijke: Nurse turned writer
- Dr. Sharma’s Obesity Notes
- Facing Autism in New Brunswick
- My Journey With AIDS
- Salted Lithium
- Baby will you love me when i’m bald?
Tuesday, November 25, 2008
It is not clear from Mr. Kirby's article who the official in the office of Dr. Gerberding was that sent the email or whether that official's view represents the official view of the CDC. But it seems consistent with the autism research paradigm shift proposed by the University of Minnesota:
The Autism Knowledge Revolution has been marked by dramatic advances in our understanding of the structural and genetic bases of autism. The autism research paradigm shift, a shift toward investigation of the interaction of genetic susceptibility and environmental triggers may well speed the pace of that knowledge revolution.
Reactionary bloggers at the Autism Hub and Neurodiversity ideological movements will not be happy with the autism research paradigm shift but the maturing of scientific inquiry into autism, the movement past official defensiveness, may someday result in more effective treatment and cures. And those are autism realities that will be happily embraced by most parents of autistic children.
Monday, November 24, 2008
Without her objective input, (Ms Dawson's own opinions do not appear to be contaminated by any direct involvement with, or first hand knowledge, of ABA, or respect for the opinions of the hundreds of medical and education professionals and researchers who endorse ABA as an effective intervention for children with autistic disorders), Conor does not understand that his human rights, as an autistic person, are being violated by exposure to ABA abuse.
Although Ms Dawson, diagnosed as "autistic", by someone, as an adult, does not indicate that she herself was ever abused by exposure to ABA that does not, in itself, mean that she does not know what she is talking about does it? Does it?
Surely her lack of respect for the opinions of health care professionals who actually work with autistic children, including severely affected autistic children, providing ABA treatment to help reduce self injurious behavior and increase cognitive, communication and social skills (AAP, MADSEC, US Surgeon General) does not mean that Ms Dawson does not know what she is talking about does it?
Autism and ABA Abuse of Autistic Children - A Case Study, Part 1
Sunday, November 23, 2008
This may not seem like big news in the autism blogosophere but in my world, in Conor's world, it is huge.