Friday, February 28, 2014

Support and Care for Individuals with Autism Spectrum Disorder in New Brunswick - The Report of the University of Calgary School of Public Policy

"Autism spectrum disorder (ASD) is a lifelong neurological condition estimated to affect as many as one in 88 children. It is now the most common neurological disorder affecting children and one of the most common developmental disabilities. Many individuals living with ASD will need some level of support over their entire lives. In cases where adolescents and adults with severe autism are placed into long-term care or other supported housing arrangements the annual cost of housing, which includes caregiver time, can be $400 per day, amounting to approximately $150,000 a year.  Few Canadian families generate sufficient income to cover such high costs of support. Even where families with ASD dependents have income to pay for some of the required care needed, they face challenges finding available and qualified caregivers. Unfortunately, as families of ASD dependents age or become financially unable to care, it is not obvious how their adult with ASD will be supported other than with the burden falling on the state." 

The Value of Caregiver Time: Costs of Support and Care for Individuals Living with Autism Spectrum Disorder - University of Calgary School of Public Policy 

New Brunswick Social Development Minister Madeleine DubĂ© has acknowledged receipt of the University of Calgary School of Public Policy report.  The immediate reaction to this information may be "So What?"  The fact is we, as parents, as caregivers, as advocates for our children and others with autism and related disorders, must ensure that all relevant information is placed before government decision makers.  It is part of what we did here in New Brunswick in advocating for evidence based early intervention and school services for children with autism and for  the continuation of the tertiary care program at the Stan Cassidy Centre Autism Rehabilitation Services team. It may not seem as exciting as some of the high profile campaigns that hit the New Brunswick media but it is, in my humble opinion, of fundamental importance in advocating for evidence based, humane autism support services across the lifespan of children, youth and adults with autism and related disorders.  


Anonymous said...

I think that this is the most
important issue that Governments need to focus on when it comes to autism. Even if it means that less money is allocated to research.

farmwifetwo said...

In Ontario there's millions to be spent... before we go bankrupt anyways... but only if you are a UNIONIZED factory and Wynne's out buying votes to keep you in town.

The summer daycamp program was cancelled.

Gotta love the lefties, eh?? When it's the Conservatives that put in the Disability tax credit, RDSP's, and the autism research chair, and the programs for training... Whereas the only people the Liberal's are talking about are the "normal" middle class. The disabled... locked in prisons... here too. Was in the news yesterday/today.

H L Doherty said...

FW2 I don't think adult autism care is a liberals vs conservatives, or leftie vs rightie issue. We made gains here in NB in early intervention, school services and tertiary care services during 2 administrations starting with the Conservative government of Bernard Lord and followed by the Liberal government of Shawn Graham. No gains, some regression since then under the David Alward conservatives.

Cam said...

Thank you for this Harold.

Anonymous said...

In California, the basic placement at a state institution is about 400,000 a year for a severely autistic person. That doesn't include the 1:1 supports, or the psychiatric, neurological and gastrointestinal, occupational and physical therapists, "consults" that need to be summoned to help the person. California has been using families to supplement caregiving and professional supports that these severely autistic persons need if they live at home. This is a story that has yet to be told.