Showing posts with label autism hunger strike. Show all posts
Showing posts with label autism hunger strike. Show all posts

Tuesday, May 20, 2008

Autism Hunger Strike Has Ended

Autism hunger striker Stefan Marinoiu ended his two week hunger strike yesterday. Stefan's efforts brought much attention to the cause of autistic persons and their families in Canada and impressed upon public decision makers in Ottawa and Toronto the seriousness of the Autism Crisis in Ontario and Canada.

It is a relief to me, and I am sure to his family and many friends and admirers, that Stefan has decided to end this stage of his autism advocacy and move ahead with other efforts. The determination that Stefan has demonstrated with his 11 day mid-winter Autism Trek from Toronto to Ottawa and his two week Autism Hunger Strike will come in handy in the continuing effort to obtain proper autism treatment, education and residential care in Ontario and elsewhere in Canada.

Tuesday, May 13, 2008

Autism Hunger Strike While We Are Warm At Home Eating Supper

"When you were warm at home, eating supper last night, he was alone, at Queen's Park, shivering in the pouring rain"

- Paul Bliss, CTV News, reporting on Day 4 of Stephan Marinoiu's Hunger Strike for Autism.

Today is now Day 9 of Stephan Marinoiu's Hunger Strike for Autism. Although the strike is taking place near the Ontario Legislature Stephan is also asking the federal government to provide funding for autism treatment. The following video of the CTV report was posted on Youtube by OntarioAutism:




Monday, May 12, 2008

Autism Hunger Strike - Canadian Press Report

Canadian Press has reported on the Autism Hunger Strike being carried on by Stefan Marinoiu outside Queen's Park in Toronto. Stefan has done an incredible job, once again, in bringing public attention to the needs of autistic children in Ontario. He has a press conference scheduled for tomorrow morning. People should get out and support Stefan tomorrow.

I don't know if my advice will be heeded but I hope Stefan has a time line in mind to bring this Hunger Strike to an end. Autistic children in Canada need a strong advocate like Stefan but they need him, more than his memory, to help them.

CP : TORONTO — A Toronto man who has been on a hunger strike for over a week is demanding the province eliminate the backlog of autistic children waiting for a crucial but costly therapy.

Stefan Marinoiu, 49, will call on the government Tuesday to move more quickly to provide treatment for children with autism, including his teenage son.

He wants to see the wait list of more than 1,100 autistic children who are eligible to receive intensive behavioural intervention therapy, or IBI, eliminated by November.

Marinoiu also wants the province to commit to providing the treatment in schools no later than September next year.

Education Minister Kathleen Wynne says thousands of people have already been trained to provide another kind of therapy, called applied behavioural analysis, in schools.

She says some schools have therapists to provide the more intensive IBI therapy, but not in regular classrooms.


On another note, I have trouble understanding this great debate in Ontario about IBI versus ABA as those expressions are used by Education Minister Wynne and others, including parents, in Ontario. Intensive Behavioral Intervention IS ABA. It just refers, to the intensity - the number of hours per week of intervention. If it is provided to children between two and five it is typically referred to as Early Intensive Behavioral Intervention. But it still remains ABA. See Autism and ABA EIBI Saves Up to $2,500,000 SUMMARY: Cost-benefit Estimates for Early Intensive Behavioral Intervention for Young Children with Autism John W. Jacobson,James A. Mulick,and Gina GreenIn Behavioral Interventions, 1998, Volume 13, 201-226 :

" Early Intensive Behavioral Intervention (EIBI)

Studies have demonstrated that intensive early intervention using the principles and methods of applied behavior analysis (ABA) can produce substantial benefits for many children with autism/PDD (Anderson et al., 1987; Birnbrauer & Leach, 1993; Fenske et al., 1985; Lovaas, 1987; McEachin, Smith, & Lovaas, 1993). Although there were some variations in procedures across studies, the interventions generally met the five criteria listed as essential by Guralnick (1998) and Ramey and Ramey (1998).

The interventions:

  1. emphasized skill development through positive reinforcement;
  2. started with an assessment of each child's current skills and deficits; instructional objectives, teaching methods, pacing, skill sequences, and reinforcers were all customized to the characteristics and needs of each child;
  3. addressed all skill domains;
  4. used frequent direct observation and measurement of individual performance to determine if progress was occurring, and adjust instructional methods accordingly;
  5. included parents as co-therapists; and
  6. were directed and supervised by individuals with postgraduate training in behavior analysis plus extensive hands-on experience in providing ABA intervention to young children with autism."

Autism Hunger Strike Comment by Julia Munro MPP York-Simcoe

ONTARIO LEGISLATURE - MAY 8, 2008

MEMBERS' STATEMENTS

AUTISM TREATMENT

Mrs. Julia Munro
: "This morning, just in front of Queen's Park, I met with Stefan Marinoiu. Since Sunday, he has been on a hunger strike demanding that this government take action on autism. Stefan is out in front of this building because he has an autistic son and he wants his son to receive the treatment he needs."
"Yesterday, to her credit, the Minister of Children and Youth Services came out and met with Stefan. Now it is up to her to talk to the Premier and the Minister of Finance and find the money to meet the needs of autistic children like Stefan's son." "I asked Mr. Marinoiu twice to give up his hunger strike, but both times he said no. It is not good for his health, but he is out there today because of his love for his son and because the government will not help him." "No one would go on a hunger strike unless they were desperate. Families whose autistic children have been left to linger on waiting lists are desperate. They need your help, and it is time for you to do something."

- Julia Munro, MPP York-Simcoe, as reported on Yesterday at Queen's Park

Sunday, May 11, 2008

Stefan Marinoiu Autism Hunger Strike - Day 7





Torontoist Photos, May 10 2008

Today is May 11, 2008 and Stefan Marinoiu is continuing the Autism Hunger Strike that he began on May 5 outside Queen's Park in Toronto. If the decision was mine to make I would end Stefan's hunger strike now. With his existing diabetes condition Stefan's health is at serious risk. But the decision is not mine to make. The decision is Stefan's and he showed during his 11 day Autism Winter Trek that he is a very gutsy and determined individual. I spoke with Stefan very briefly by cell phone yesterday. I expressed my admiration for what he is doing but I also asked him if he would consider setting an end date for his hunger strike. Stefan answered that he would end his strike when something is done to help autistic people.

Stefan has a 15 year old son who is autistic and who received no autism specific treatment or education services. Stefan wants to help his son and others with autism. A Friday May 9 video update can be viewed on the Hungerstrike For Autism Now Facebook group. In the video Stefan outlines 3 goals he wishes to accomplish for autsm:

1) Get rid of the waiting lists for autism treatment in Ontario by November;

2) Have ABA by professionally trained people in the schools by September 2008;

3) A federal commitment to national guidelines and financing for autism treatment and an autism agency within the federal health care system.

These are not impossible goals. As Jean Lewis of FEAT-BC and Medicare for Autism NOW! said about amending Canada's national Health Care Act to include autism treatment - all it takes is political will.

The first two goals on Stefan's list have been implemented, or begun to be implemented already in New Brunswick. Training is critical. New Brunswick has been training autism support workers, clinical supervisors, teacher assistants and resource teachers for several years at the University of New Brunswick College of Extended Learning Autism Intervention Training program. Preschool autism treatment is provided through authorized agencies monitored by government. Trained teacher assistants have begun providing ABA in New Brunswick schools. My son Conor has been receiving ABA based instruction by a UNB-CEL Autism trained TA with plans and supervision by resource teachers and mentors trained at UNB-CEL for the past 4 years. If New Brunswick can make substantial progress towards helping autistic children why can't Ontario?

The drive for a National Autism Strategy has also been underway for several years. Two members' motions have received substantial support from Members of Parliament. But a commitment by a governing party is required to get Canada to face up to its responsibilities toward autistic people and provide financing to the provinces for autism treatment. The Conservative government of Stephen Harper will never make that step. That is clear from everything ever written by Harper and it will not change. The NDP has provided great support in the person of MP Peter Stoffer and others but have never come close to taking power federally in Canada. Only the Liberal Party can form the government and despite the very considerable support of Liberal MP's and Liberal Senator Jim Munson the Liberal Party has still not committed to implementing amendments to include autism treatment in Canada's national health care legislation.

Hopefully political leaders in Ontario, Ottawa and elsewhere in Canada will find the will to help autistic children and adults in Canada. If they are not sure what "willpower" looks like they might watch Stefan Marinoiu outside Queen's Park in Toronto.

In the meantime I hope Stefan takes care of himself and those who are with him help him keep a close eye on his health.