A major criticism is the continuation of the characterization of parents as desperate, hysterical, dangerous, ignorant and unable to understand the issues or the science. It is a belief genuinely held by figures like Dr. Paul Offit and Dr. Thomas Insel and it is a belief which prevents them from being able to make their case persuasively to parents.
Sunday, August 30, 2009
A Dose of Controversy Breezes Over Most Autism Vaccine Issues But Was Fair to Wakefield
A major criticism is the continuation of the characterization of parents as desperate, hysterical, dangerous, ignorant and unable to understand the issues or the science. It is a belief genuinely held by figures like Dr. Paul Offit and Dr. Thomas Insel and it is a belief which prevents them from being able to make their case persuasively to parents.
Severe Autism Videos from CDFoakley: Do Not Watch If You Can't Handle Reality
This young man's voice will not be heard by public decision makers deciding whether research, therapies and treatments should be funded to help address the autism realities shown in this video. This young man is unlikely to attend at any college, let alone an esteemed college for gifted youths or appear in scripted, orchestrated videos promoting a nonsensical theory of stimming as language. This young man's autism realities are unlikely to be gushed over enthusiastically by bloggers celebrating the joy of autism or promoting autism as anything except what it is ... a neurological disorder with profound negative consequences for so many affected by its reach.
Friday, August 28, 2009
A Nice Afternoon Trail Walk
Swine Flu Pandemic? Swine Flu Cases Falling Across the UK
BBC News, Friday, 28 August 2009 06:54 UK
I am not trying to be glib about swine flu, or any influenza. I understand that the flu, swine, avian, or whatever variety of flu I contracted many times over the course of my life in Canada, can kill some people. Flu complications may bring my brief visit to this planet to an end some day but I have difficulty seeing why people around the world have been whipped into a panic over this specific flu, billions of dollars invested, testing of the safety and efficacy of vaccines rushed ... and possibly compromised ... based on available rate of infection and death information to date. And their previous track record at pandemic prediction ... the 1976 swine flu "pandemic" for example ... is not that great.
The figures below are taken from the Public Health Agency of Canada web site and indicate the number of people that have died from Swine Flu (H1N1) across Canada:
But what do I know. I am just a humble parent. And they are intelligent, well informed public health authorities who know better. If the WHO, the CDC and the Public Health Agency of Canada say there is a Swine Flu pandemic then I guess there must be a Swine Flu pandemic.
Wednesday, August 26, 2009
Is Swine Flu Panic Petering Out at the CDC?
WASHINGTON — Government health officials are urging people not to panic over estimates of 90,000 people dying from swine flu this fall.
"Everything we've seen in the U.S. and everything we've seen around the world suggests we won't see that kind of number if the virus doesn't change," Dr. Thomas Frieden, head of the Centers for Disease Control and Prevention, said in a C-SPAN interview taped Wednesday.
While the swine flu seems quite easy to catch, it so far hasn't been more deadly than the flu strains seen every fall and winter — many people have only mild illness. And close genetic tracking of the new virus as it circled the globe over the last five months so far has shown no sign that it's mutating to become more virulent.
Tuesday, August 25, 2009
Autism and ABA - Michelle Dawson's "Expertise" and Ethics
Monday, August 24, 2009
EIBI as Intervention of Choice for Young Children with Autism
Saturday, August 22, 2009
Swine Flu: Pandemic or Panic? Will We See An Autism Baby Boom?
One of the biggest fears has been that the virus, which first appeared in April in the U.S. and Mexico and which people don't have any built-up immunity to, might mutate into an even more dangerous form. Health officials have been keeping a close watch on the Southern Hemisphere, which is in its winter season now, to see what form of the virus is likely to travel north as fall comes to the U.S. and the rest of the Northern Hemisphere.
Flu viruses are unpredictable, so the fact that this one hasn't mutated is "somewhat reassuring" said Jay Butler, director of CDC's H1N1 Vaccine Task Force."
Friday, August 21, 2009
Invisible Autistics and Severe Autism Awareness at Interaction in Mind
Thursday, August 20, 2009
Vaccine-Autism War Will Never End Unless Comparative Autism Research Is Done
That is obviously true with respect to experimental studies but observational studies of existing unvaccinated and vaccinated populations could be done and autism rates compared. Dr. Bernadine Healy, Dr. Julie Gerberding and Dr. Duane Alexander have all said that such studies could be done. It is time to fund the comparative study and help bring the vaccine-autism war to an end.
It is time to study, without pharmaceutical industry ties, the autism rates amongst existing vaccinated and unvaccinated populations. If this is not done there will be no end to the vaccine-autism war and Dr. Insel and others on the IACC can accept their fair share of blame for that result ... for the continued reluctance of some parents to vaccinate their children.
Tuesday, August 18, 2009
Autism Prevalence - Why Wasn't the Research Done?
From 1996 to 2009 those who deny the existence of a real increase in autism have used the same speculation to deny the existence of a real increase in autism. They often conclude their denial of a real autism increase with the refrain that more research needs to be done. So why wasn't the research done?
Have public health authorities and researchers not been taking autism disorders seriously? Do they not understand the realities facing children born with autism spectrum disorders, and their families? It is just academic curiosity or the availability of research grants that motivate the necessary research?
1996 BMJ Editorial
Thus there is no firm evidence for or against a general rise in the prevalence of "typical autism" or other autistic spectrum disorders. The impression that there is a rise could be due to a change in referral patterns, widening of diagnostic criteria for typical autism (which are difficult to apply with precision anyway), and increased awareness of the varied manifestations of disorders in the autistic spectrum (especially those associated with higher IQ). On the other hand, there might be real changes in prevalence, locally or nationally, due to temporary or permanent factors. Some recent research on typical autism suggests that complex genetic factors may have a major role in its aetiology.9However, in a minority of cases, mostly comprising people who are severely disabled, other physical causes may be implicated.3 4 It is possible that there are interactions between genetic susceptibility and other physical factors. There is also some evidence that mothers of children with typical autism are of higher than average maternal age.10 If this is a real association, changes towards later childbirth11 might affect the prevalence of typical autism and possibly other autistic spectrum disorders.2003 BMJ Article
2003 BMJ Article
The prevalence of autism, which was apparently rising from 1979 to 1992, reached a plateau from 1992 to 1996 at a rate of some 2.6 per 1000 live births. This levelling off, together with the reducing age at diagnosis, suggests that the earlier recorded rise in prevalence was not a real increase but was likely due to factors such as increased recognition, a greater willingness on the part of educationalists and families to accept the diagnostic label, and better recording systems. The proportion of parents attributing their child’s autism to MMR appears to have increased since August 1997.
2007 BMJ Article
Despite three recent studies showing that the number of diagnoses of autism spectrum disorders has almost doubled in the last seven years to around 1% of children, researchers say that it is still impossible to say whether the rise is due to a genuine increase in the number of new cases or to other factors.
2009 BMJ Group Information Published in the Guardian
How Common is Autism? Doctors once thought autism was rare. But newer studies show it seems to be getting more common. It's hard to say why. This may be just because the newer studies have been better at finding children with autism. Or it may be because the way doctors define autism has got wider. We need more research before we can say for sure what's causing the increase in autism.
2009 University of California Davis Study
The 2009 University of California Davis study The Rise in Autism and the Role of Age at Diagnosis is one of the first major studies to suggest that the rise in autism diagnoses may reflect a real increase in autism diagnoses. The authors of that study, Irva Hertz-Picciottoa and Lora Delwiche, also indicate that more research needs to be done:
"In summary, the incidence of autism rose 7- to 8-fold in California from the early 1990s through the present. Quantitative analysis of the changes in diagnostic criteria, the inclusion of milder cases, and an earlier age at diagnosis during this period suggests that these factors probably contribute2.2-, 1.56-, and 1.24-fold increases in autism, respectively,and hence cannot fully explain the magnitude of the rise in autism. Differential migration also likely played a minor role, if any. Wider awareness, greater motivation of parents to seek services as a result of expanding treatment options, and increased funding may each have contributed,but documentation or quantification of these effects is lacking. With no evidence of a leveling off, the possibility of a true increase in incidence deserves serious consideration. One approach to this question would be a rigorous investigation to determine incidence or prevalence in 20- to 30-year olds. If there has been no true increase and no individuals who were cured or outgrew their diagnosis, then the application to adults of criteria equivalent to those being used today in children should find, for each previously identified autism case, 4 to 8 undiagnosed cases. Whatever the final determination with regard to overlooked cases of autism in the past,the current occurrence of autism, a seriously disabling disorder in young children, at rates of greater than 30 per 10,000individuals — and still rising in California—is a major public health and educational concern.
In 1999 Teresa Binstock, a Researcher in Developmental and Behavioral Neuroanatomy, pointed out that funding was generally available for genetic based autism research but not for autism research focused on environmental factors. Ms Binstock described the "it's gotta be genetic" paradigm in autism research in her article IGNAZ SEMMELWEISS and AUTISM: when prevailing paradigms resist change. In that article Ms Binstock recounted the historical example of Ignaz Semmelweiss who was vilified by the medical establishment of the day for his observations about hand washing, childbirth and puerperal fever which challenged the medical orthodoxy of the day. His observations could have saved many more lives if they had been accepted by the medical establishment instead he was vilified and ostracized.
In her 1999 article Ms Binstock compared the medical establishment's response to Semmelweiss to the modern medical establishment's response to autism:
Sunday, August 16, 2009
Facing Autism in New Brunswick (and Conor) 3 Years Later
1. Integrate services for young children and their families by enhancing and expanding the Early Childhood Initiatives Program to ensure a smooth transition into public school for children identified as at risk or those with special needs, such as autism.
2. Provide UNB-CEL autism training for 100 additional teaching assistants and Methods and Resource teachers each year for four years.