Autism Hunger Strike - Canadian Press Report

Canadian Press has reported on the Autism Hunger Strike being carried on by Stefan Marinoiu outside Queen's Park in Toronto. Stefan has done an incredible job, once again, in bringing public attention to the needs of autistic children in Ontario. He has a press conference scheduled for tomorrow morning. People should get out and support Stefan tomorrow.

I don't know if my advice will be heeded but I hope Stefan has a time line in mind to bring this Hunger Strike to an end. Autistic children in Canada need a strong advocate like Stefan but they need him, more than his memory, to help them.

CP : TORONTO — A Toronto man who has been on a hunger strike for over a week is demanding the province eliminate the backlog of autistic children waiting for a crucial but costly therapy.

Stefan Marinoiu, 49, will call on the government Tuesday to move more quickly to provide treatment for children with autism, including his teenage son.

He wants to see the wait list of more than 1,100 autistic children who are eligible to receive intensive behavioural intervention therapy, or IBI, eliminated by November.

Marinoiu also wants the province to commit to providing the treatment in schools no later than September next year.

Education Minister Kathleen Wynne says thousands of people have already been trained to provide another kind of therapy, called applied behavioural analysis, in schools.

She says some schools have therapists to provide the more intensive IBI therapy, but not in regular classrooms.


On another note, I have trouble understanding this great debate in Ontario about IBI versus ABA as those expressions are used by Education Minister Wynne and others, including parents, in Ontario. Intensive Behavioral Intervention IS ABA. It just refers, to the intensity - the number of hours per week of intervention. If it is provided to children between two and five it is typically referred to as Early Intensive Behavioral Intervention. But it still remains ABA. See Autism and ABA EIBI Saves Up to $2,500,000 SUMMARY: Cost-benefit Estimates for Early Intensive Behavioral Intervention for Young Children with Autism John W. Jacobson,James A. Mulick,and Gina GreenIn Behavioral Interventions, 1998, Volume 13, 201-226 :

" Early Intensive Behavioral Intervention (EIBI)

Studies have demonstrated that intensive early intervention using the principles and methods of applied behavior analysis (ABA) can produce substantial benefits for many children with autism/PDD (Anderson et al., 1987; Birnbrauer & Leach, 1993; Fenske et al., 1985; Lovaas, 1987; McEachin, Smith, & Lovaas, 1993). Although there were some variations in procedures across studies, the interventions generally met the five criteria listed as essential by Guralnick (1998) and Ramey and Ramey (1998).

The interventions:

1. emphasized skill development through positive reinforcement;
2. started with an assessment of each child's current skills and deficits; instructional objectives, teaching methods, pacing, skill sequences, and reinforcers were all customized to the characteristics and needs of each child;
3. addressed all skill domains;
4. used frequent direct observation and measurement of individual performance to determine if progress was occurring, and adjust instructional methods accordingly;
5. included parents as co-therapists; and
6. were directed and supervised by individuals with postgraduate training in behavior analysis plus extensive hands-on experience in providing ABA intervention to young children with autism."
   

autism

Ontario Schools Ordered to Make ABA Available for Autistic Students

In Ontario all schools have been ordered to make Applied Behavior Analysis "ABA", available for autistic students by September 2007. To date ABA is the only intervention for treating and educating autistic children which is widely endorsed as evidence based and effective. It is not clear at this time how properly trained personnel will be made available in that time span to meet the Ontario requirement but hopefully that order will be implemented properly and the province does not back off of that commitment.

In New Brunswick, after years of parent advocacy, schools have already begun providing ABA services to autistic students in a few cases and commitments to provide training to teachers aides through the UNB-CEL Autism Intervention Training program have been made and confirmed. Parents of autistic children seeking to help their children have been misled before and will have to remain vigilant to ensure the commitments are met but the education commitments made in Ontario and New Brunswick are encouraging news for parents of autistic children in the two provinces.



TORONTO -- School boards across Ontario are being served notice that they must be able to provide specialized autism treatment in classrooms, ideally by September, Education Minister Kathleen Wynne said yesterday.

Currently, parents of autistic children are often forced to choose between keeping their kids at home to receive expensive Applied Behaviour Analysis therapy or taking them to school, where they don't receive the costly special treatment.

Those days will soon be over, since the government is issuing a directive to school boards that they won't be able to ignore, Wynne said.

"We will be making sure that it happens and we will be putting supports in place," said Wynne, who was unable to say how much the new policy would cost.

"There are many places in the province where this is already happening, but it has to be even across the province."

The goal is to have the treatment standardized in schools across the province in time for the next school year, although there's no guarantee that will happen on schedule, she added.

"Will there be places where there will still be work to do? Absolutely," Wynne said.

"I can't say that exactly the same thing will be happening in every classroom in all of the 5,000 schools across the province on the day after Labour Day, but absolutely it's a goal to have a uniform understanding and delivery of that approach across the province -- as soon as possible."

The government's announcement came in response to a newly released report by a panel of stakeholders, which made 34 recommendations on how to help Ontario's autistic schoolchildren.

Advocates said they're thrilled the government has agreed to immediately address 23 of the 34 recommendations and also to review the rest.

Getting ABA treatment in all schools would be an amazing development, but it's equally important the government has committed to act on so many other recommendations, which will help a wide range of kids with different issues, said Karyn Dumble of Autism Ontario.

"It's re-enforcing what we already know, that there's many ways to teach so that students with autism will learn and this is something that our parents across this province have been advocating for," she said.

Some parents, however, said the plan doesn't help their children, who are still too young to go to school and caught on long waiting lists for subsidized treatment.

Friends of Lianne Crawford, whose three-year-old son is autistic, launched the website helpjack.ca to raise money for treatment, which costs $70,000 a year. The website has raised about $15,000.

"We get no government money and we'll never see any funding unless something changes drastically (in government policy)," Crawford said.

Prior to the government's announcement yesterday, Ontario Conservative Leader John Tory unveiled a campaign platform for autism funding that includes $75 million a year to cut the waiting list for treatment of kids under six.

The government's new plan does some good, but doesn't address the waiting list, Tory said.

"I'm not saying the things the government (plans) are wrong or shouldn't be addressed, but I'm saying I think (we're trying) to address the really big issues.

"We are in the fourth year of this government's mandate, with an election six months away, and the government's making that promise again."

Laurel Gibbons, mother of a nine-year-old son with autism, said she, too, is skeptical.

"The school boards are going to need more time than six months in order to implement such a strategy," she said. "Where are they getting the people that are going to be trained for this? What's the hiring process?"

http://lfpress.ca/newsstand/CityandRegion/2007/02/24/3661247-sun.html