Autism`s 40% With Intellectual Disability? Auti$m $peak$ Doesn't See YOU, Doesn't Speak For YOU!

Autism Speaks has done much to create publicity around the word autism, the color blue, puzzle pieces and ... some very talented, high functioning individuals with autism diagnoses like Alex Plank and J. E. Robison.  In terms of its public statements and presentations though it does little to nothing to  raise awareness about one very basic fact: autism has a very close relationship with intellectual disability to the extent that 40% of persons with autism spectrum diagnoses (DSM-IV) also have intellectual disability. 

Prior to the DSM-IV and prior to the addition of PDD-NOS and Aspergers persons with intellectual disability constituted the vast majority of persons with autistic disorder.  Autism Speaks has reluctantly acknowledged that 40% of persons with autism have intellectual disability but does not reflect their existence in their press releases.  Autism Speaks conflicted attitude toward those with autism and intellectual disability was illustrated vividly in the recent Drake and J. Cole lyrics uproar when Autism Speaks defended persons with autism but not those with autism and intellectual disability. Instead of criticizing the rappers for their derogatory reference  to persons as “autistic, retarded." Autism Speaks went further and argued that in fact persons with autism are very successful and talented. No mention was made in the Autism Speaks press release of the 40% of the autism spectrum who are intellectually disabled even though the words "mentally retarded." have been replaced by the words intellectually disabled.  

Autism Speaks chose not to stand up for the intellectually disabled members of the "àutism community" even though they were  expressly  maligned in the original lyrics:

Hip Hop Lyric Insults Autism Community

"Lyrics from the recently released song “Jodeci Freestyle” from hip hop artists Drake and J.Cole have many in the autism community up in arms. The song, which was released last month and is now getting airplay, contains the following lyric by J. Cole: “I’m artistic, you n----s is autistic, retarded." 

These lyrics are offensive and perpetuate negative stereotypes. There are many inspiring individuals with autism and other disabilities who have achieved great success across a variety of artforms, including music. We encourage J. Cole to recognize their talents and learn from the positive example they have set for all of us."

This is not the first time Autism Speaks has chosen to ignore the intellectually disabled 40% while promoting the very, very, very high functioning elite members of the autism spectrum like J. E. Robison and Alex Plank.  There is almost never any mention of the intellectually disabled in promotions and news releases by Autism Speaks or on their web site.  I have previously noted that Autism Speaks has only reluctantly acknowledged the existence of intellectual disability on the About Autism section of its web site burying mention of 40% with ID in the middle of the page, book ended by references to those with high IQs and abilities.

In the "rapper incident" AS went further than just ignoring those with autism and intellectual disability.  They implied that persons with autism, all persons with autism, are in fact talented, successful people.  They were ashamed to mention and defend the 40% with autism and Intellectual Disability.  The rappers have offered sincere apologies and taken steps to address the issue by changing the lyrics.  Rapper J.  Cole even acknowledged the existence of those with severe autism and their families.  By their actions Drake and J. Cole have shown themselves to be ahead, light years ahead of Autism Speaks in caring about ALL persons on the autism spectrum including the 40%  intellectually disabled.  

Severe Autism Breakthrough: J. Cole Offers Sincere Apology And Acknowledges Existence of Severe Autism

Rapper J. Cole has offered what appears to this observer to be a very sincere apology, one offered without qualifications and one which actually offers a breakthrough for those who, like my son, suffer from severe autism. Unlike most prominent autism advocates rapper J. Cole actually acknowledged the existence of, and included in his apology, those at the severe end of the autism spectrum.  

Many autism advocacy organizations and "self" advocates routinely denigrate anyone who mentions severe autism disorders. Television series, movies and feel good mainstream media rarely acknowledge the severe, low functioning end of the autism spectrum. Rapper J. Cole's apology, however,  set out on his blog, DREAMVILLAIN, extended to all persons with autism disorders including those with severe autism and their families. 

I hope Autism Speaks, in particular, takes note of Cole's references to those with Aspergers AND those with severe autism and their families. If Rapper J. Cole can acknowledge the existence of severe autism surely Autism Speaks can do the same and start addressing the challenges facing the 40% on the autism spectrum who also suffer from intellectual disability and the many spectrum members who suffer from serious "comorbid" conditions like epileptic seizures. Cole's apology is set out hereafter in full, as stated on his blog, with my underlining added. 

Autism Speaks

Recently there’s been a trend that includes rappers saying something
offensive, only to be attacked for it in the media and pressured to
apologize. I have to be completely honest and say there’s a part of me
that resents that. I view rap similar to how I view comedy. It’s going
to ruffle feathers at times. It’s going to go “too far”. I do not
believe that an apology is needed every time someone is offended,
especially when that apology is really only for the sake of saving an
endorsement or cleaning up bad press.

With that said, this is not the case today. This letter is sincere.
This apology IS necessary.

In a recent verse on the song “Jodeci Freestyle”, I said something
highly offensive to people with Autism. Last week, when I first saw a
comment from someone outraged about the lyric, I realized right away
that what I said was wrong. I was instantly embarrassed that I would
be ignorant enough say something so hurtful. What makes the crime
worse is that I should have known better.

To the entire Autism community who expressed outrage, I’m moved and
inspired by your passion, and I’m amazed at how strong you are as a
unit. I have now read stories online from parents about their
struggles and triumphs with raising an Autistic child and I admire how
incredibly strong you have to be to do so. It’s touching. It also
makes what I said even more embarrassing for me. I feel real shame.
You have every right to be angry.

To anyone suffering from Autism, either mildly or severely, I am
sorry. I’m bound to make mistakes in my life, but in my heart I just
want to spread Love.

I want to educate myself more on Autism, and I’ll gladly own my
mistake and serve as an example to today’s generation that there’s
nothing cool about mean-spirited comments about someone with Autism.
People with this disorder and their loved ones have to go through so
much already, the last thing they need is to hear something as
ignorant as what I said. I understand.

To the parents who are fighting through the frustrations that must
come with raising a child with severe autism, finding strength and
patience that they never knew they had; to the college student with
Asperger’s Syndrome; to all those overcoming Autism. You deserve
medals, not disrespect. I hope you accept my sincere apology.

Much Love

-Cole

Well said Cole, well done. 

Autism Speaks Joins Drake And J.Cole In Insulting 40% With Autism AND Intellectual Disability

Autism Speaks has joined rappers Drake and J. Cole in insulting persons with Intellectual Disability particularly the 40% of the autism spectrum with intellectual disability.  The rappers had published song lyrics referring in an insulting manner to persons who are "autistic, retarded".  Autism Speaks did not simply criticize the rappers for denigrating persons who were autistic or intellectually disabled. Autism Speaks criticized the rappers for perpetuating negative stereotypes and for failing to recognized the many persons with autism and "other" disabilities who have enjoyed great success and talents.  

Presumably it would have been OK in the view of Autism Speaks if the rappers had mocked only the 40% with intellectual disabilities or those who were not successful or did not display exceptional talents.   It is not clear to this father of a severely autistic son with profound developmental delays, who lacks an exceptional talent, who Autism Speaks for but it clearly does not speak for my son. 

There are no doubt many in the high functioning end of the autism spectrum community who would  be insulted by the rappers lyrics ... my son who would not understand the lyrics is not one of them. I love my son and I take insult at the smarmy lyrics of Drake and Cole simply because they intended to insult persons like my son who are autistic and/or intellectually disabled not because they failed to recognized the talents and intellects of higher functioning persons with autism disorders. I am also ticked off, but not surprised, by Autism Speaks for essentially endorsing the rappers mocking of intellectually disabled a term which does not even appear in the Autism Speaks criticism.   Nowhere are autism's 40% intellectually disabled more invisible than within the Autism Speaks agenda:

Hip Hop Lyric Insults Autism Community

"Lyrics from the recently released song “Jodeci Freestyle” from hip hop artists Drake and J.Cole have many in the autism community up in arms. The song, which was released last month and is now getting airplay, contains the following lyric by J. Cole: “I’m artistic, you n----s is autistic, retarded." 

These lyrics are offensive and perpetuate negative stereotypes. There are many inspiring individuals with autism and other disabilities who have achieved great success across a variety of artforms, including music. We encourage J. Cole to recognize their talents and learn from the positive example they have set for all of us."