Showing posts with label lila barry. Show all posts
Showing posts with label lila barry. Show all posts

Friday, March 06, 2015

THANK YOU Conservative MLA Jake Stewart and NDP Leader Dominic Cardy For Speaking Up In Support Of Adult Autism Care and Treatment in New Brunswick


New Brunswick governments have been outstanding in establishing an internationally recognized early evidence based autism intervention service and have made some gains in autism training for Education Aides and Resource Teachers.  

There has been no progress though  in establishing an autism centre for adult treatment and permanent residential care for severely impacted autistic adults with a network of autism group homes around the province.

It is very easy to become discouraged in advocating for adult autism care in New Brunswick.  The establishment of early evidence based autism intervention services was not easy but successes have been achieved.  While there have been backward steps such as the recent hard line 95% attendance requirement, since revised, which did not appear to take into pressures and demands on family and the time available to them the NB early intervention program has been recognized as a leading Canadian model by the Association for Science in Autism Treatment.  Some gains have also been made in provision of autism trained Education Aides and Resource Teachers although much more needs to be done including training more aides and teachers and ensuring that autism trained aides work with autistic students and not be displaced by untrained aides with more seniority.  Adult autism residential care and treatment however  remains abysmal and the first signs indicate that things are not likely to change under the current Liberal government. The NDP and Green Party both addressed adult autism care issues during the last provincial election.  Both the Liberal and Conservative parties were silent on autism issues.    

The adult autism care problem, as reported by Samantha Magee and the Miramichi Leader, has flared up again recently in Miramichi when a 19 year old non verbal autistic man was given notice of eviction from the special care home in which he resided solely because he was now an adult. Several persons including me spoke out yet again asking our government to address the adult autism care issue in New Brunswick.  Specifically we asked the government yet again to build an autism treatment centre in Fredericton near the expertise of the Stan Cassidy Centre which treats autistic children and youths and provide permanent residential care for those with severe dysfunctional autism disorder. The centre would also provide oversight and training for autism group homes in New Brunswick communities around the province.

The Miramichi Leader reported  former Autism Society New Brunswick President Lila Barry's comments urging the establishment of the autism centre based network as described by UNB Professor Emeritus (Pscychology) Paul McDonnell in 2010 and asked the Minsiter of Social Development for a response.   The government response came from Communications Officer Anne Bull:

"When asked if the minister of Social Development has looked into the possibility of building such a facility that could offer diagnosis, treatment and long-term living arrangements, the Miramichi Leader received the following response from communications officer Anne Bull.

“The Government of New Brunswick recognizes the need to provide high quality services that support our province’s families and individuals living with autism. As a government, we are committed to continuing to improve services to families and individuals living with autism. This includes examining the issues around living accommodations and supports for those with high care needs who require services beyond what is presently available. Government continues to make significant investments in services to adults with disabilities. Social Development works in collaboration with the New Brunswick Disability Executive Network and other key stakeholders to recommend on-going improvements to the Disability Support Program, finding innovative ways to support adults with disabilities and their families with the unique challenges they face.”

Communications Officer Bull did not provide a direct answer to the questions of whether the Minister of Social Development had even looked into the possibility of building the facility that could offer diagnosis, treatment and long-term living arrangements. Requests for such a centre have been made for years and it is easy to become discouraged when our government officials refuse to provide a direct answer to such an important question and instead pass the buck to a communication officer to provide a formulaic, meaningless answer.

A bright side to the recent events has been the support of Conservative MLA Jake Stewart and NDP Party Leader Dominic Cardy.  Mr Stewart was also quoted by the Miramichi Leader's Samantha Magee:


"Jake Stewart, Progressive Conservative MLA for Southwest Miramichi, agreed that the system was failing the Keenans and other families like them in similar situations. “Adequate facilities are needed in New Brunswick to alleviate strain on families found in this situation, and on individuals like Brandon who clearly deserves better. Also, a change in policy in Social Development is most likely needed,” said Stewart in an email to the Miramichi Leader. “‎I’m offering my support in the construction of new facilities, a potential change in policy, and of course I can and will continue to be a voice of reason for the Keenan family,” said the MLA. “But first, it’s important to allow Brandon to stay at M.O.R.E. Services from now on without worry of being displaced due to his age. If another facility can accommodate, this too may be beneficial. Time is of the essence.”"

NDP party leader Domonic Cardy responded to the recent events in Miramichi with a Facebook commentary:

Adults with autism get a raw deal in New Brunswick - often shipped off to a facility in Maine. During the election the NDP committed to build a residential facility here in New Brunswick where adults with autism who need the care can get it, 24/7. The Liberal government has been supportive of this idea but, as you can see from the story below, we need to move faster.
This is why we have to rein in wasteful spending: so we have the resources to look after the folks who need our help.
As the parent of a severely autistic 19 year old son who lives at home and requires 24/7 care I know that many parents face daunting challenges caring for their autistic children and find it difficult to continue to provide that care, while earning a living and still find the energy, time and willpower to continue to advocate in the face of government and bureaucratic inertia and indifference  for humane, professional adult autism care and treatment but ... we have no other choice; we have to do our best to remain strong and to remain optimistic and to continue the fight.  
In the meantime THANK YOU Jake Stewart and Dominic Cardy for your support and THANK YOU Samantha Magee and the Miramichi Leader for your attention and outstanding journalism on adult autism care and treatment issues.  

Thursday, December 04, 2008

Harold Doherty's Autism Advocacy Awards


#1 Autism Advocacy Award - Conor's Smile, Joy and Happiness






















#2 Autism Advocacy Award - An ASNB Mug

Given To Me By Fellow Parents, Friends and Officers of the Autism Society of New Brunswick. The Mug was given to me a couple of years back and, like me, shows the wear and tear of time. The Hulk was a nickname given by former ASNB President Lila Barry, who has been a force for autism in New Brunswick. The picture is my "mug" superimposed on a target background.






#3 Loyal Order of the Flying Swine Award

I was one of the recipients of the Flying Swine Award handed out by Jean Lewis and David Marley. This award has been handed to few people but includes some very distinguished autism advocates including Jim Munson, Shawn Murphy, Andy Scott and peter Stoffer.

With these three awards I have been truly honored and will continue my autism advocacy efforts.




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Thursday, January 24, 2008

Autism Resources Miramichi Gets A Boost


Lila Barry accepts a cheque for $30,000 from MLA Bill Fraser. They
are joined by ARM board members Dianne Pineau and Linda Robichaud.
Photo and caption from Miramichi Leader Online Edition
© 2007 CanadaEast Interactive, Brunswick News Inc.

In Autism centre receives government funding the Miramichi Leader reports on a positive autism development in Miramichi, New Brunswick as Autism Resources Miramichi receives funding to get started. New Brunswick has seen its share of advocates of alternative non evidence based treatments for autism. Lila Barry, Dianne Pineau and Linda Robichaud at ARM will ensure that parents receive reliable information about evidence based interventions for their autistic children - and strong moral support through the tough times:

Barry and other parents of ASD children were at the office of Miramichi-Bay du Vin MLA Bill Fraser last Monday, Jan. 7 for the official funding presentation. She said the centre will especially help parents who are struggling to deal with affected children.

"As a parent you're actually trying to reach out to other parents. Parents often when they first get the diagnosis; they're always in a state of anxiety and overwhelmed with the diagnosis. They don't necessarily have anyone to turn to or don't know who to turn to once their child is diagnosed," she said.

Barry also said stress levels are very high for parents of ASD children and family separation and divorce often result. She said many parents are often desperate to get help for their children and turn to the wrong sources of information.

"It's difficult obtaining reliable, accurate information on best practices, treatment and research," she said. "So often there is some much out there on the Internet that is just garbage."

She said parents will often spend large amounts of time and money chasing worthless therapies and miracle treatments. She wants the centre to provide these parents with the right information needed to help.

Sunday, October 14, 2007

Adult Autism Care In New Brunswick



The Autism Society New Brunswick AGM was held yesterday at the Crowne Plaza in Fredericton. We had a great turnout. I was the featured speaker with lots of questions, discussion, and debate. We had guests from many parts of the province. Amongst those in attendance was Andy Scott MP for Fredericton who has been a powerful advocate for a National Autism Strategy and Barb Whitenect, one of the most autism knowledgeable public servants in our province.



Photo: Harold Doherty Speaking, A Good Turnout
Photo by Charles LeBlanc



Photo : Andy Scott Speaking, Harold Doherty Listening
Photo Courtesy of Charles LeBlanc


The subject of discussion was youth and adult residential care and treatment - a very big subject in New Brunswick. We have made great strides in pre-school intervention, education and pediatric tertiary care services but our youth and adult residential care and treatment services are abysmal. There is a need for improved services for supported living for those autistic persons who can, and choose to, live in their home environment and for a complete overhaul of the group homes. And we are totally lacking in proper care here in New Brunswick for the most serious adult autism challenges.



Photo: Tamara Downey, New ASNB President, Meets the Media
Photo by Charles LeBlanc

We also got some organizational work done with the election of a new Board of Directors led by new ASNB President Tamara Downey above.



Photo Left to Right: Nancy Blanchette, Outgoing ASNB Vice President, Dr. Theresa McKenzie (Psychologist) and Lila Barry, Outgoing ASNB President

Wednesday, October 10, 2007

You Are Invited to Discuss Adult Autism Care in New Brunswick

Lila Barry, President, Autism Society New Brunswick



October is Autism Awareness month in Canada. Since last October the Centre for Disease Control in the United States has changed its estimates of autism prevalence. The CDC had previously estimated that 1 in 166 persons has some form of autism disorder. In February 2007, they released a new estimate of 1 in 150. In the United Kingdom, the generally accepted estimate is 1 in 100. There is much debate over to what extent the increasingly larger estimates of the total numbers of persons with autism reflects actual increases or changes in diagnostic criteria combined with greater public awareness.

The fact remains that most places, including New Brunswick, are in dire need of autism-specific services. Autism is not just a different personality type. It is a recognized neurological disorder with communication, behavior and social impairments varying in severity.

Some great strides have been made in New Brunswick over the past eight years in funding of pre-school interventions by properly trained autism support workers. Teacher aides are also being trained as autism support workers to assist autistic children in the school system. The departments of education, health and family services all deserve credit for making these changes, as does our political leadership before and after the last election.

The UNB-CEL is a great resource for the autism community in New Brunswick in ensuring a supply of properly trained autism support workers. Parents and family members have been at the forefront of change and the Autism Society New Brunswick has been an effective organizational vehicle for directing and moving change in the right direction, with a focus on improving the lives of autistic children and adults.

The Autism Society annual general meeting will be held at the Crowne Plaza in Fredericton on Saturday, Oct. 13 from 1-4. The subject of the meeting will be youth and adult residential care and treatment. Everyone with an interest in autism, including autistic persons, family members, professionals and government are invited to attend. There is no admission fee except one: your concern for autistic persons in New Brunswick.

Respectfully,


Lila Barry, President
Autism Society New Brunswick

Tuesday, May 15, 2007

Autism Resources in New Brunswick - Chatham Library Hosts Launch of Autism Collection




















Chatham Library Hosts Launch of Autism Collection

Miramichi Weekend, Friday, May 11 2007

Representatives of Chatham Branch of the York Public Library, the New Brunswick Public Library Service and the New Brunswick Public Library Foundations gathered at a reception at the Chatham Branch on May 2 to launch a collection of resource books specific to Autism Disorder.

The president of the New Brunswick Autism Society Lila Barry made the presentation of books in honour of her mother-in-law, Emma “Big Momma” Barry.

She thanked the family members of Emma Barry in attendance for their generous donations that made the collection possible. Emma Barry was known for her love of all children but held children with special needs even closer to her heart.

In a disorder in which early detection and treatment is vital to the success of a child with Autism, parents are often desperate for information. Current statistics indicate that 1 in every 150 children will be on the Autism Spectrum. Resources are vital to successful outcome.

Six years ago, Barry’s son was diagnosed with Asperger’s syndrome, one disorder on the spectrum of Autism.

“I remember being so overwhelmed and distraught. One of the first places I sought was information at this library, but I was devastated to find no books here, and only two or three within the system in high demand and available only after a long wait. “

After joining the Autism Society of New Brunswick, she and others in the organization created a vision to provide better support for families with better resources and approached the New Brunswick Public Library Service with the idea of donating a collection of resource books.

This donation, the second of two to the New Brunswick Libraries Foundation from the Autism society, now brings the collection to 68 books. The monetary value of this gift was matched by the New Brunswick Library Foundation.

At the launch, Dr. Theresa McKenzie, a licensed psychologist and specialist in this disorder, stressed the importance of this donation. With wait times as they are, parents concerned about some of their children’s developmental behaviours need resources to provide strategies for coping at home and developing social skills. Often their concerns are dismissed but parents know their children best and need accessible resources.”

This collection will be housed at the Chatham Branch of the York Library Service but all New Brunswickers with interest or concerns about Autism Spectrum Disorders can access the books by inter-branch loans