Sunday, April 27, 2008
Autism Fun - Conor and Dad at the Circle Place
Autism & Stimming, 2000+ Views for Conor Stimming Video
2,050 views. If some of those viewers are new to autism then I am glad that they had the opportunity to see autistic stimming, Conor style. No drama, no profound philosophy, not very fancy but very real.
Friday, April 25, 2008
Four Teens Fully Recover from Autism Through ABA
Los Angeles, CA, April 25, 2008 --(PR.com)-- Four families who were told to institutionalize their autistic children years ago will be honored during the screening of a documentary about their journey to recovery. The four children featured in the documentary were all diagnosed with autism between the ages of 3 and 5, and their parents were told that the children would never be able to have meaningful relationships or even communicate with others. Today, they are teenagers who, through a treatment program with the Center for Autism & Related Disorders, have overcome the bleak prognosis to become active, successful individuals.
Ruffin, Janna, Nick and Brett participate in mainstreamed high school settings, and are exceptional students. They are involved with friends, hobbies and sports. By anyone’s standard, they are typical teenagers. All four children had a formal removal of their diagnosis, exhibiting scores in the normal range in intelligence, language and adaptive skills after treatment.
Their story is told by Dr. Doreen Granpeesheh, founder of the Center for Autism and Related Disorders, Inc. (CARD), the organization responsible for their treatment. She and her staff developed and administered treatment programs for each of the children using Applied Behavior Analysis techniques and documented the children’s’ stories and progress.
Recovered: Journeys Through the Autism Spectrum and Back is a true and inspiring story of four families who were given no hope, one organization which refused to give up, and four brave children who overcame the odds to achieve success. The documentary includes pre and post treatment interviews and therapy sessions.
“Many people don’t believe it is possible to recover from Autism. Our purpose in developing this film is to show that there is reason for hope. These children can learn to communicate, socialize, and play. I wanted to make sure families hear and see that,” Granpeesheh said.
Press Conference & Star Studded Premiere
7:15pm – Friday, April 25, 2008
Pacific Design Center - Lobby - Silver Screen Theater – 2nd Floor
8687 Melrose Avenue – West Hollywood, CA
Available for interviews:
• Four recovered teenagers (3 from Los Angles Area; one from Midwest) + many, many more recovered children
• The therapists who worked with the children
• Dr. Doreen Granpeesheh
• World acclaimed psychologist, Dr. Ivar Lovaas
• Lou Diamond Phillips, Director/Actor/Autism Activist
Contact Information Center for Autism and Related Disorders, Inc
Daphne Plu
818-345-2345 X 270
d.plump@centerforautism.com
www.recoveredautism.com
Thursday, April 24, 2008
Study Finds Mercury Autism Link
The team looked at mercury released from 39 coal-fired power plants and 56 industrial plants around the state and examined the autism rates from 1,040 school districts in Texas.
Researchers found that for every 1,000 pounds of mercury released into the environment, there was an overall 2.6 percent increase in autism rates in Texas school districts.
That rate jumped to 3.7 percent when looking at emissions from power plants alone. But it fell by 1 to 2 percent for every 10 miles from the source.
The study is published in the journal Health & Place.
Wednesday, April 23, 2008
Autism's Fallacious Grinker Assumptions
2a. Therefore non-environmental factors are responsible for the entire increase in autism diagnoses.
and
2b. Environmental factors do not and have never caused autism alone or in combination with other factors.
Tuesday, April 22, 2008
Wales Takes National Autism Action While Canada (Harper) Ignores National Autism Crisis

New, wide-ranging efforts to tackle autism and improve services for those who are affected by the condition were announced today by the Welsh Assembly Government. The Autistic Spectrum Disorder (ASD) Strategic Action Plan is to be launched today at the 3rd Wales International Autism Conference organised by Autism Cymru in Cardiff. Funding for the next three years has been identified with the first years funding of £1.8m being announced to drive forward key actions for the first years. Wales is the first country in the world to have established a cross-cutting national strategic action plan for ASD that will help the estimated 30,000 people that are either directly or indirectly affected by Autism in Wales.
.....
The Action Plan will drive improvements across both children, young people’s and adult services in health, social services and education services – and also expand into areas of housing, leisure and society in general.
- Published by Jon Land for 24dash.com in Communities , Health on Tuesday 22nd April 2008 - 12:13pm
It is encouraging to see a national government tackling its autism issues head on, without hiding behind any contrived excuse they can find to avoid helping the many citizens with autism disorders. Canadians, on the other hand, have a national government led by Prime Minister who is oblivious to autism and the autism crisis in our country. The nicest thing that can be said about Alleged Health Minister Tony Clement is that he doesn't really appear to know much about autism. MP Mike Lake of the governing Conservative party, and father of an autistic child, is an occasional autism "spokesman" for the governing Conservatives; usually helping Harper pass the buck. Of course Mr. Lake has more pressing matters on his agenda .... like presenting a petition to the House of Commons to protect the mythological Bigfoot creature. As for autistic children in need of treatment in Saskatchewan or Manitoba or the Yukon? Well Mike Lake needn't worry he lives in oil rich Alberta his child can receive government funded intervention until age 18.
Congratulations to the Welsh Assembly Government for doing what the Canadian government of Stephen Harper has not done; launch a national autism strategy to provide autism help to all its autistic citizens.
Monday, April 21, 2008
Public Autism Tantrums - Parents Scorned and Accused By Those Who Do Not Know
It was a very mild public reaction in the scheme of things and we have been very lucky with Conor but others I know in New Brunswick have not always been so fortunate receiving visits, and investigations, by child welfare social workers. Negative public reactions, and child welfare investigations by those who do not understand the realities of autism are facts of life for many parents and carers for autistic children.
Talking about such negative realities invites sneering and snide commentary from some who promote autism as a "culture" or a joy. These are everyday realities for the parents and carers of many autistic children who find no comfort in the inane works of Gernsbacher, Mottron and Dawson or the unrealistic dramatizations of autism by CNN obsession, and former Simons Rock college for gifted students attendee, Amanda Baggs. Most parents care too much for their autistic children to pretend that their children's autism is anything but what it is ... a neurological disorder that impairs and restricts the lives of their children. The public meltdowns of their children and the societal reaction that often results are endured courageously by these parents ... because they love their children, they care for them ... and they are responsible for doing the best they can to help their children experience and enjoy life to the fullest.
In When child has autism, excursions are challenge the Pittsburgh Tribune-Review offers an informed and helpful portrayal of the challenges faced by families of some autistic children who must deal with their children's public tantrums and the consequences that sometimes result. The Tribune-Review article tells the story of Catherine Hughes whose son Christian improved dramatically after receiving behavioral intervention. Along the way though Ms Hughes endured criticism by a pediatrician who described her son as "hyper" and declared that she did not know how to control him. On the day of an appointment Ms Hughes had obtained for her son with a specialist he suffered a meltdown in a restaurant where an employee accused her of child abuse. Three police cars quickly arrived and Ms Hughes spent four days in jail before spending thousands of dollars in legal fees to get the charges dropped, clear her name and regain custody of her children.
The Tribune-Review feature offers some helpful suggestions for parents seeking to manage their children's public excursions to reduce the likelihood of tantrums and suggestions on how to handle public reaction. Features like this create real autism awareness and help the autistic children and their families who live with the sometimes harsh realities of autism.
Sunday, April 20, 2008
Medicare for Autism NOW! in Oakville, Organizing and Sending A Message
Many of us have talked about a National Autism Strategy to address Canada's national autism crisis for years. Some politicians of character and conscience, people like Senator Jim Munson and MPs Andy Scott, Peter Stoffer and Shawn Murphy have actively campaigned for a National Autism Strategy. Stephen Harper, alleged Health Minister Tony Clement and Conservative MP and autism father Mike Lake on the other hand have largely mocked the efforts for a national autism strategy. Aided and abetted by Dr. Rémi Quirion and the CIHR the national autism strategy has been reduced to a less than mediocre web site and a secretive, politicized and staged National Autism Symposium that resulted in absolutely NO autism information being disseminated to Canadians.
Yesterday I had the privilege of speaking at the Oakville rally along with Jean Lewis who has led litigation and political autism battles in British Columbia and experienced political organizer David Marley. We were joined by Jennifer O'Brien from Oakville, autism winter trek hero Stefan Marinoiu from Toronto, Barry Hudson from Toronto and constitutional lawyer Deborah Coyne from Toronto. Medicare for Autism NOW! is national in scope. We are organizing coast to coast and we have a message for federal politicians of all stripes. Something must be done NOW. We need Medicare for Autism NOW. David Marley, show in the bottom picture below has prepared a strategy. A number of ridings that were decided by 2% or less in the last election will be targeted for election action by the Medicare for Autism NOW team. We will be making an impact in those ridings on behalf of the candidates, whatever their political stripe, who support Medicare for Autism NOW. David Marley is also organizing of team of people with political organizing skills and experience to help get our message across effectively.
One of the key ridings will be the Parry Sound Muskoka riding of Alleged Health Minister Tony Clement. Mr. Clement won by one of the smallest margins of any MP in Canada in the last election. Stefan Marinoiu, David Marley and Jean Lewis toured the riding this week and apparently there is already, for various reasons. substantial dissatisfaction with Mr Clement amongst his riding constituents who were also very supportive of the Medicare for Autism effort. Medicare for Autism NOW! will be active in the riding of alleged Health Minister Clement to remind constituents of Mr Clements refusal to help autistic Canadians and their families.
Saturday, April 19, 2008
Autism and ABA Quote from A Preschool Teacher Who Has " Walked the Walk"
children with Autism. I have witnessed first hand the many benefits of ABA.
It is important that ABA be covered through health care so all children with
Autism can benefit from it."
Genvieve McEachen Goerz, April 15, 2008
National Autism Strategy / ABA in Medicare NOW! Facebook Group
Medicare for Autism NOW Rally in Oakville Today at 2


Saturday, April 19th, 2008
2:00 p.m. to 4:00 p.m.
Iroquois Ridge Community Center,
1051 Glenashton Drive,
Oakville, Ontario, L6H 6Z4
Medicare for Autism NOW! Meets Sandie Rinaldo and CTV
building before heading out for lunch
Friday, April 18, 2008
Facing Autism With Stefan Marinoiu and Friends
Stefan Marinoiu, Jean Lewis and David Marley. Stefan invited us to dinner at his home
where his wonderful wife Bernadette had prepared an awesome meal for us. We met
Stefan's beautful family, Bernadette, sons Paul and Simon and daughter Lia.
Facing Autism Goes To Toronto
Medicare for Autism Now! team
An early start to the day

Wednesday, April 16, 2008
Facing Autism In Toronto and Oakville

For that time, Conor was diagnosed at a relatively early age, 2 years. He was diagnosed after tests and observations over a period of several months which also occurred after time waiting for our appointment with the pediatrician. We had sought medical assessment because of lack of speech, lack of interaction of the kind that a child usually shows with their parents and because of a variety of odd behaviors.
When Conor was diagnosed there was very little in the way of autism specific services or information available in New Brunswick. Along with a number of other concerned parents I began my life as an advocate for my son, and for effective autism treatment, education, and residential care. Although much remains to be done, we have accomplished much for a small province lacking the financial resources of wealthier provinces. One of the tools we used to make gains for autism services in Canada was the trial decision in the Auton case, which was upheld on appeal by the British Columbia Court of Appeal but was ultimately overturned by the Supreme Court of Canada. Notwithstanding the SCC reversal the trial decision in Auton set out accurately the state of expert opinion on the effectiveness of ABA as a treatment for autism spectrum disorders, information that was very helpful in advocating publicly for the creation of autism specific services.
Notwithstanding the advances made since the trial decision in Auton Canada remains a patchwork quilt in terms of provision of autism treatment. Oil rich Alberta provides substantial funding for autism treatment until age 18 while next door in Saskatchewan they are just starting to provide autism services. A national autism strategy, inclusion of autism treatment in Medicare, is imperative if all autistic children in Canada are to benefit, and benefit fully, from intensive early intervention.
I will be honored to travel to Toronto and Oakville and join the people from FEAT Ontario, FEAT-BC (including people like Jean Lewis one of the "Auton" parents), and fellow speakers like Constitutional lawyer Deborah Coyne and autism's winter trek hero Stefan Marinoiu The Supreme Court of Canada effectively removed the courts and the Constitution of Canada as effective tools for helping ensure that autistic children receive effective evidence based treatment in Canada. We have to get political to ensure that all autistic children in Canada are treated equally and receive the treatment they need to prosper and grow. To accomplish such a large undertaking we all need to come together and advocate EFFECTIVELY for medicare for autism.
If you are interested in getting involved in advocating for medicare for autism I hope to meet you in Toronto and Oakville. See you there!
"Medicare for Autism Now!" Rally
Saturday, April 19th, 2008
2:00 p.m. to 4:00 p.m.
Iroquois Ridge Community Center,
1051 Glenashton Drive,
Oakville, Ontario, L6H 6Z4
Tuesday, April 15, 2008
Possible Environmental Causes of Autism and Other Neurodevelopmental Disorders
"The impact of environmental toxins on children’s health has become a major focus in the federal government resulting in establishment of eight new research centers in children’s environmental health with joint funding from EPA and the National Institute of Environmental Health Sciences (NIEHS). "The brains of our children are our most precious economic resource, and we haven't recognized how vulnerable they are," says Philippe Grandjean, adjunct professor at Harvard School of Public Health and the lead author of the study published in The Lancet . "We must make protection of the young brain a paramount goal of public health protection. You have only one chance to develop a brain.""
There are those who argue dogmatically that environmental factors are not involved in causing autism and that the startling autism increases are due entirely to definition change and diagnostic substitution. They may honestly believe their assertions or they may be tied to promotion of book royalties or blog site advertising but modern history, thalidomide, tobacco and cancer, suggest greater caution in ruling out all environmental contributors to autism and other developmental disorders. Our children deserve better than for society to rely on the faith and belief of dogmatists on such important issues.
Note:
dog·ma·tist
| Noun | 1. | dogmatist - a stubborn person of arbitrary or arrogant opinions |
Monday, April 14, 2008
Will New Brunswick Care for Autistic Adults?
Social Development Minister Mary Schryer
Dear Honourable Ministers
Will New Brunswick Care for Autistic Adults?
I am the proud father of two terrific sons. The younger is a wonderful 12 year old boy with Autistic Disorder who is also assessed with profound developmental delays. When he was diagnosed with an autism disorder at age 2 there was very little in the way of autism specific services available in New Brunswick. Since then, with a cooperative effort by the Autism Society New Brunswick and governments led by both major political parties, there have been very substantial improvements in autism services in pre-school and school years but nothing has been done to improve the lives of autistic adults. Our current residential care and treatment system for autistic youth and adults simply does not meet the basic residential care and treatment needs of autistic adults.
We export some autistic adults to the United States. Just a few years ago an autistic youth, who had committed no offence, was housed by the province on the grounds of the Miramichi youth correctional facility while waiting for entry to the Spurwink treatment centre in Maine.
Parents in New Brunswick have expressed deep concerns about the fate of their youth and adult autistic children:
I would like to know what is wrong the government in Fredericton, they are putting all kinds of money in the fences to keep the moose off the roads, when they are a lot of children likes ours. What really burns me is my 30 year old son in the St.John hospital on floor 4 north and he doesn't belong there but the home that he has been in for the last 5 years will not have them any more because he is "Too hard to handle. I guess that maybe we the parents of these special people should go around with a petition and see how many people will sign it and maybe we should picket the government buildings and go to the media, then maybe these people will remember that we helped put them in office. Thank-You
S.M.
...
“ I have a son who is 14 and severely autistic as well. I have had workers in my home with him for 2 years now. They told me it was supposed to be only until we could get him some help. He needs an assessment and a medication overhaul where he went completely out of hand and uncontrollable during puberty. No hospital in n.b can take him. Moncton refused him. I.W.K has been saying for the last year and a half they have no psychologist. I see a psychologist once every six weeks or so and we try something else. One of the medications made him bust through windows another gave him seizures. Right now we have between 10-15 restraints were the workers hold him for from 15-40 minutes of temper tantrums. He wears a helmet so he won't poke out his eyes. Hockey shoulder pads so he won’t bite his arm to shreds. He was bad when the workers first came with severe wounds up an down his arms but the hospital said it was no place for him, so we treated him at home. He also wears towels on his hands to prevent pinching and towels on his legs. My little boy is in crisis and we have no hospital that can even evaluate him. I have been waiting for help for 2 years, how much more can we wait. Sure they'll put him in a house if I can't stand it anymore but they would get him treatment.”
H.R.
Whatever the causes and contributors to the rise in autism rates the most commonly accepted North American estimate today is that 1 in 150 people have an autism spectrum disorder. In New Brunswick we desperately need improvements in our group home system so that autism specific homes can be located in quiet safe, semi-rural areas near New Brunswick’s major population centres. It is critically important too that staff be trained to work with and understand autistic youths and adults.
What is most desperately needed is an institutonal level treatment and residential facility for the move severely autistic adults where autism specific expert medical and psychological care can be provided and where autistic adults can live a full and secure life. The community living movement of the past 30 years resulted in many gains for people with autism disorders and mental health issues in North America but it also resulted in the closing of institutions capable of providing expertise and security to those in most desperate need as Dr. Bernard Rimland noted in 1997:
Autism Research Review International, 1997, Vol. 11, No. 1, page 3
Reopen the institutions? Advocates Reverse Stand as "Community" Tragedy Unfolds
Bernard Rimland, Ph.D.
The road to hell is indeed paved with good intentions. For decades, institutions housing mentally retarded, autistic, and other behaviorally disabled persons have been under sharp attack. Spurred by revelations of deplorable, neglectful, and abusive conditions at some institutions, well-meaning advocates of the disabled have demanded the closing of all institutions. They insisted upon the resettlement of the residents in smaller group homes (and sometimes apartments), in what they euphemistically (and naively, as it turned out) call "the community."
As we observed several years ago in our editorial, "Community, My Foot!" (ARRI 5/3, 1991), "Community once implied human relatedness. Now it refers merely to an urban area. Let us not be misled by the warm, fuzzy feeling that the word 'community' is intended to instill. Let us not be misled by the feeling of abandonment and neglect that the word 'institution' has come to connote."
It has quickly become evident that the cure-closing the institutions-is often worse than the disease. A 1993 report by Congressman Ron Wyden noted that "the private sector residential facilities for the mentally retarded have become an $11 billion-a-year business. Millions of Americans with these life-long handicaps are at risk for poor quality care, questionable and even criminal management practices by service providers, and lackluster monitoring by public health and welfare agencies.
"A disturbing pattern of abuse, neglect, and fiscal mismanagement has emerged. ......”
In New Brunswick the facts speak for themselves. We have to send our autistic youth and adults away because we do not have a secure environment in they can receive autism specific residentially based expert treatment. Simply placing people in a community location does not work in many cases. There is no need to revisit the decades old arguments about institutions fuelled by popular horror movies. Modern facilities exist which have moved away from those models and incorporate autism specific treatment and care expertise with family access and recreational opportunities.
A modernized facility providing autism specific expertise, security for residents and staff and decent recreational opportunities is desperately needed. If New Brunswick can answer this need it is, with respect, long past time that we started the process. If not Honourable Ministers I ask that you say so clearly and unambiguously to parents and caregivers of the severely autistic so that we can face our children’s future with a real understanding of the options that will, or will not, exist.
Respectfully,
Harold Doherty
Fredericton NB
cc. Autism Society New Brunswick
Facing Autism in New Brunswick
Saturday, April 12, 2008
Autism and Educators' Control Issues in Vernon Connecticut
VERNON — The local school system’s decision to stop contracting with the Capitol Region Education Council to teach children with autism — and to bring the work in house — has angered parents, who say any change can harm a child with an autistic disorder.
.....
For more than a decade, CREC has taught children with autism at the Center Road School. The organization uses the Applied Behavior Analysis instructional method, which has the approval of the U.S. Surgeon General.
In fact the US Surgeon General is not the only agency to endorse ABA as an effective evidence backed instructional method for autistic children. State agencies in New York and California, the MADSEC Autism Task Force Report from Maine and the 2007 report of the American Academy of Pediatrics have all endorsed ABA as the most evidence based effective intervention for autistic children. As summarized in the 2007 AAP Report Management of Children With Autism Spectrum Disorders:
The effectiveness of ABA-based intervention in ASDs has been well documented through 5 decades of research by using single-subject methodology21,25,27,28 and in controlled studies of comprehensive early intensive behavioral intervention programs in university and community settings.29–40 Children who receive early intensive behavioral treatment have been shown to make substantial, sustained gains in IQ, language, academic performance, and adaptive behavior as well as some measures of social behavior, and their outcomes have been significantly better than those of children in control groups.31–40
So why would a successful program be discontinued and the education of autistic children brought "in house"? Control is often the real motivation for such decisions by alleged "educators" who often know little about autism, and generally know much less than the concerned parents who live 24/7 with the realities of autism. Here in New Brunswick, Canada, much progress has been made in providing autistic students, including my son Conor, with a real education. Autism specific training has begun to be provided to Teacher Aides that work with autistic children and Conor is currently receiving instruction from a UNB Autism Intervention Program trained TA under programs and supervision by autism trained resource teachers. But it was not always the case and even today senior "educators" still resist the commitment by our current government to provide UNB Autism training, which includes ABA based instruction methods, to teacher aides and resource teachers.
The excuses over the years are usually the same. I personally began advocating several years ago for ABA instruction in our schools and a Department of Education spokesman was interviewed as part of a story in which I was featured. The spokesman downplayed ABA and said that the Department was interested in TEACCH. TEACCH has often been described as "promising" but lacking in evidence of effectiveness in teaching autistic children. As summarized in the MADSEC ( Maine Administrators of Services for Children with Disabilities) Autism Task Force Report 1999, 2000 (rev.ed.) :
• Substantiated as effective based upon the scope and quality of research:
Auditory Integration Training, The Miller Method, Sensory Integration, and TEACCH.
• Repeatedly subjected to the rigors of science, which leads numerous researchers to conclude the intervention is not effective, may be harmful, or may lead to unintended consequences:
Facilitated Communication.
• Without scientific evaluation of any kind:
Greenspan’s DIR/”Floor Time,” Son-Rise.
In New Brunswick the UNB Autism Intervention Training of teacher aides and resource teachers has been opposed by some senior educators who wanted to do the training ..... "in house" just as the Vernon educators want to provide the instruction of autistic children in house. In each case, the autism training here in New Brunswick, or the autism instruction in Connecticut, it is control which is the real issue, control by the educators. In the Connecticut story the alleged educators want to use non-ABA methods of instructing autistic children, despite the well studied effectiveness of ABA and despite the lack of evidence supporting the effectiveness of other autism instruction methods. One spokesman even acknowledged that one of the methods that they seek to use has NO evidence in support of its effectiveness:
Buell says the ABA method is “not going out the window” and will be used with children who do well with it.
But she said in a written statement that the school system plans to explore a variety of other instructional methods.
With one possible exception, all the methods under consideration have studies supporting their effectiveness, Buell added.
Spokesperson Buell did not elaborate, in the article anyway, about these "other instructional methods" and the studies in support of their effectiveness. Whatever they might be there is no way these other methods enjoy the scope and quality of research in support of their effectiveness, as reported by the Maine MADSEC Autism Task Force in 1999-2000, or the AAP in 2007.
It is not about "other instructional methods".
It is about control.
Thursday, April 10, 2008
Medicare for Autism Now! campaign returns to Ontario


Medicare for Autism Now! campaign returns to Ontario
For further information, contact: Jean Lewis at 604-290-5737 or via e-mail: jean.lewis@telus.net.