Autism Canada Foundation, a Canadian autism charity, promotes itself as "The PREMIER Resource for Information on Autism Spectrum Disorders" but typically downplays the importance of evidence support for ABA as the Premier autism intervention while promoting interventions with less substantial evidence bases as determined by study and credible authorities.
Why criticize Autism Canada Foundation an autism charity? Why ABA for Autism? Why Evidence Based Intervention? Because, as stated by Couper and Sampson in the Medical Journal of Australia 11 years ago, ineffective therapies, while they may be immediately harmless, waste the child's valuable therapy time and parents' money. Delay in implementing effective treatment may have a negative impact on the child's ultimate outcome. ABA is the only intervention to date that meets the evidence based standard in every credible review, a fact downplayed by the Autism Canada Foundation.
ABA has for many years been confirmed by study and credible authorities as the most substantially evidence based effective autism intervention. If parents choose to try other methods they should in fact make informed choices. Autism Canada is a charitable organization which will be staging an autism conference this October called Changing the Course of Autism 2014. The brochure highlights RDI and the Son-Rise program but makes no express mention of Applied Behavior Analysis.
As the following credible reviews indicate RDI and Son-Rise are not supported by the same level of evidence of their effectiveness as ABA ( I can't find any authoritative review mentioning any level of evidence support for Son-Rise). What the Autism Canada conference attendees are unlikely to be informed is that when it comes to autism therapies it is not a close call - ABA was and remains the most substantiated, evidence based, effective autism intervention.
The US Surgeon General, the MADSEC Maine Administrators of Services for Children with Disabilities (Maine Autism Task Force) Report (2000 revision), American Academy of Pediatrics, Management of Children with Autism Spectrum Disorders, and a recent article in the Canadian Medical Association Journal all confirm ABA as the most effective autism intervention (specific treatment necessary for associated medical conditions - eg. seizures, gastro intestinal). And as Couper and Sampson wrote ... Children with autism deserve evidence based intervention:
As the following credible reviews indicate RDI and Son-Rise are not supported by the same level of evidence of their effectiveness as ABA ( I can't find any authoritative review mentioning any level of evidence support for Son-Rise). What the Autism Canada conference attendees are unlikely to be informed is that when it comes to autism therapies it is not a close call - ABA was and remains the most substantiated, evidence based, effective autism intervention.
The US Surgeon General, the MADSEC Maine Administrators of Services for Children with Disabilities (Maine Autism Task Force) Report (2000 revision), American Academy of Pediatrics, Management of Children with Autism Spectrum Disorders, and a recent article in the Canadian Medical Association Journal all confirm ABA as the most effective autism intervention (specific treatment necessary for associated medical conditions - eg. seizures, gastro intestinal). And as Couper and Sampson wrote ... Children with autism deserve evidence based intervention:
1. Couper and Sampson - Children with autism deserve evidence based intervention.
Children with autism deserve evidence-based intervention
Jennifer J Couper and Amanda J
Sampson, in the 2003 editorial in the MJA, reviewed some of the evidence in support of the effectiveness of behavioral
interventions for autism. The authors stressed the importance of an evidence
based approach to autism interventions:
"While ineffective therapies
may be harmless, they waste parents' money and the child's valuable therapy
time. Furthermore, the delay in implementing effective treatment may compromise
the child's outcome."
- [Bold Highlighting Added - HLD]
- [Bold Highlighting Added - HLD]
Couper and Sampson reviewed
the evidence at that time (2003) in relation to behavioral treatment for
autism:
The early intervention that
has been subjected to the most rigorous assessment is behavioural intervention.
There is now definite evidence that behavioural intervention improves
cognitive, communication, adaptive and social skills in young children with
autism. In 1987, Lovaas showed apparent recovery, persisting into adolescence,
in nine of 19 young children who received an intensive home-based intervention
based on applied behavioural analysis, a scientific method of reinforcing
adaptive and reducing maladaptive behaviours.5,6 Subsequent studies also showed
that behavioural intervention caused significant, albeit somewhat lesser,
gains.7-11 This has modified the orthodox view that autism is always a severe,
lifelong disability. Criticisms of the adequacy of the design and power of
these studies are being addressed by the multisite Lovaas replication Early
Autism Project. The first US site has released data (Wisconsin Early Autism
Project).12 Again, after three to four years of intensive applied behavioural
analysis intervention, about half the preschool children with autism acquired
near-normal functioning in language, performance IQ and adaptability.
Ninety-two per cent of intervention children acquired some language. Control
children who received special education showed no gains in IQ or
adaptability.12
2. American Academy of Pediatrics - Management of Children with Autism Spectrum Disorders, (2007, reaffirmed 2010)
The American Academy of Pediatrics article Management of Children With Autism Spectrum Disorders, Scott M. Myers, MD, Chris Plauché Johnson, MD, MEd, the Council on Children with Disabilities (2007), reaffirmed (2010):
"Applied Behavior Analysis
Applied behavior analysis (ABA) is the process of
applying interventions that are based on the principles of learning derived
from experimental psychology research to systematically change behavior and to
demonstrate that the interventions used are responsible for the observable
improvement in behavior. ABA methods are used to increase and maintain
desirable adaptive behaviors, reduce interfering maladaptive behaviors or
narrow the conditions under which they occur, teach new skills, and generalize
behaviors to new environments or situations. ABA focuses on the reliable
measurement and objective evaluation of observable behavior within relevant
settings including the home, school, and community. The effectiveness of
ABA-based intervention in ASDs has been well documented through 5 decades of
research by using single-subject methodology21,25,27,28 and in controlled
studies of comprehensive early intensive behavioral intervention programs in
university and community settings.29–40 Children who receive early intensive
behavioral treatment have been shown to make substantial, sustained gains in
IQ, language, academic performance, and adaptive behavior as well as some
measures of social behavior, and their outcomes have been significantly better
than those of children in control groups.31–40"
3. Australasian
Society for Autism Research - A Review of the Research to Identify the MostEffective Models of Practice in Early Intervention for Children with AutismSpectrum Disorders - (2012)
As with every other major research review of the
effectiveness of early autism interventions only ABA, applied behavior
analysis, received the highest rating: E
- Established/Eligible based on evidence.
4. Canadian
Medical Association Journal, Autism spectrum disorder: advances in
evidence-based practice (2014)
An article in the
January 13, 2014 issue of the Canadian Medical Association Journal, Autismspectrum disorder: advances in evidence-based practice, confirms what American
authorities have told us for decades, from the US Surgeon General to MADSEC and
the American Academy of Pediatrics, ABA still represents evidence based,
effective best treatment practice while "Research on non-ABA–based
treatments is sparse and shows limited efficacy.":
" Autism spectrum
disorder: advances in evidence-based practice "What treatments and
interventions are available, and are they effective?
The goal of
existing interventions is to facilitate the acquisition of skills, remove
barriers to learning and improve functional skills and quality of life.
Behavioural
interventions
Current best practices for preschool-aged
children with ASD include a focus on improving language, cognitive and adaptive
skills using applied behaviour analysis (ABA) techniques.58 Applied behaviour
analysis refers to the application of empirically derived learning
principles(i.e., the antecedent–behaviour–consequence contingency) to produce
meaningful changes in behaviour.59 Such strategies are carefully engineered and
implemented through a variety of approaches (e.g., discrete trial teaching to
more naturalistic learning contexts) to teach skills and reduce problem
behaviour. Applied behaviour analysis interventions can be provided in a
variety of settings (e.g., home, specialized treatment centres, specialized or
public schools) by a range of front-line therapists, ideally supervised by a
psychologist or board-certified behaviour analyst who specializes in ASD.
A recent overview
of meta-analyses60 found significantly enhanced outcomes associated with early
intensive ABA-based treatment (typically for 2–3 yr) in four of five included
meta-analyses (effect sizes 0.30 to > 1); these findings have since been
bolstered by a sixth meta-analysis.61 Gains appear to be greatest in verbal
intelligence quotient (IQ) and language communication domains,62,63 for
children with stronger pretreatment skills, if treatment is started earlier,64
and with greater intensity or duration of intervention. 60–62,64 These gains
achieved in various domains have been summarized in a recent Cochrane review.63
Although the overall quality of evidence is low, it is the best evidence
available. A recent study in Ontario reported predictors of outcome that
account for some heterogeneity in treatment response.65
A recent RCT
supported the efficacy of ABA-based intervention in toddlers by showing
improvements in IQ, adaptive skills and diagnostic classification.37 Models
vary, notably by how ABA principles are implemented, but everyday contexts
(e.g., free play v. “tabletop”) and activities based on the child’s interests
(v. therapist’s agenda) have advantages, including greater generalization of
learning.66 Questions remain about which forms and intensities of treatment are
most effective for which children.
Research on
non-ABA–based treatments is sparse and shows limited efficacy.67 Translation of
evidence-based intervention into community practice is being evaluated,
including in Canada.68 A key question is whether effective high-quality
programs can be less costly and more sustainable; the findings from Nova Scotia
are promising.38 Studies of the effectiveness of treatment programs for older
children, youth and adults with ASD are scarce. Benefits have been reported for
structured teaching practices, including ABA based interventions, for a wide
range of skill deficits and maladaptive behaviours.58" [Highlighting added - HLD]
Hopefully conferences such as the Autism Canada Foundation 2014 conference are not seeking to change the course of autism intervention away from evidence based interventions toward largely anecdotal approaches. Hopefully attendees and those who access the conference information will be informed of the importance of evidence based support for autism interventions and the level of credible evidence in support of ABA effectiveness, a level of evidence support which remains unmatched by ANY other behavioural, social or educational intervention.
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