Showing posts with label Wikipedia. Show all posts
Showing posts with label Wikipedia. Show all posts

Tuesday, February 24, 2009

Topsy Turvy Irish Times Article Demeans Autism Parents, Promotes Reality Challenged Professor

Corrrection: This comment initially, and incorrectly, identified Professor Michael Fitzgerald as being the author of Defining Autism – a damaging delusion, instead of Dr. Mike Fitzpatrick. Thank you to Mike Stanton for the correction. This comment has now been corrected and modified accordingly.


It is Topsy Turvy Day in an Irish Times article Darwin is the origin of new thesis on Asperger's. In "Darwin" Dr. Muiris Houston promotes the latest effort by Professor Michael Fitzgerald to assign yet another historical genius, this time Charles Darwin, to his speculative list of persons with Aspergers. Dr. Houston glosses over entirely the fact that Professor Fitgerald's opinion is pure speculation, having never met Darwin who died before Asperger's was even defined as a medical condition. Nor does Dr. Houston mention Professor Fitzgerald's career of assigning many historical geniuses to his speculative Asperger's list. Parents once again are the villains in Dr. Houston's and Professor Fitzgerald's Topsy Turvy fantasy production.

Wikipedia, in People speculated to have been autistic, has a summary of Professor Fitgerald's career in historical genius autism speculation:

Michael Fitzgerald, of the Department of Child Psychiatry at Trinity College, Dublin, has speculated about historical figures with autism in numerous journal papers and at least three books: The Genesis of Artistic Creativity: Asperger's Syndrome and the Arts,[4] Unstoppable Brilliance: Irish Geniuses and Asperger's Syndrome[5] and Autism and Creativity, Is there a link between autism in men and exceptional ability?[6]

Fitzgerald speculated the following were autistic in The Genesis of Artistic Creativity:

Unstoppable Brilliance discusses Daisy Bates, Samuel Beckett, Robert Boyle, Eamon de Valera, Robert Emmet, William Rowan Hamilton, James Joyce, Padraig Pearse and W.B. Yeats.

Autism and Creativity says the following may have been autistic: Lewis Carroll, Eamon de Valera, Sir Keith Joseph, Ramanujan, Ludwig Wittgenstein and W.B. Yeats.

While Professor Fitzgerald visits history, and his imagination, to speculate about historical figures he never met, most of whom lived and died before autism and Asperger's were known to the world, parents in the real world today struggle with the real challenges of caring for, raising and preparing their autistic children for a future without them.

Dr. Houston, clearly enamored with Professor Fitzgerald's historical speculation, also shares Dr. Mike Fitzpatrick's demeaning characterization of parents facing autism reality who take a biomedical approach to their children's autism. He promotes Fitzpatrick's book Defining Autism – a damaging delusion:

“Parents who share the unorthodox biomedical outlook project a negative view of autism, as a destructive disease process which is sometimes described as ‘worse than cancer’.”

And he says that some parents implicitly dehumanise people with autism by describing “their own predicament in terms of grief and loss and as one of unremitting battle against the corrosive impact of autism on their child, their marital relationship and their wider family”.

Dr. Houston then goes on to point out that there is no scientific evidence, only anecdotal evidence, in support of biomedical treatments. And therein lies the rub. Dr. Houston and the Irish Times reject anecdotal evidence, direct observation by parents of their children, of real situations and people, as being unscientific. Yet, he embraces, without question, the historical speculation of Professor Fitzgerald that Darwin, and other historical geniuses, people that Professor Fitzgerald never met, most of whom died before autism or Aspergers were recognized conditions, had one of these disorders.

Parents who actually care for and raise their children, who can see the realities of their children's autism spectrum disorders, and who try to help them live the fullest life possible are increasingly under attack today. Medical authorities fiercely intent on protecting vaccine programs from ANY criticism or question dismiss as hysterical parents who see their children regress after receiving vaccines. Parents who provide ABA or biomedical treatments to help their children are accused of oppressing them by some neurodiversity advocates.

Professor Fitzgerald has built a career writing articles and books and making presentations to learned societies speculating about the possibility that people he has never met might have had either autism or Aspergers. Dr. Mike Fitzpatrick, himself the parent of an autistic child, has the incredible arrogance to to demean and dismiss parents who fight for their children, who struggle to care for them every day. He speculates, with no solid evidence, that parents efforts to help their own children has a corrosive impact on autistic people. Describing our children's realities as we see them every day is actually harmful? Meanwhile Professor Fitzgerald sits in the library imagining that Darwin had Aspergers. Dr. Muiris and the Irish Times embrace both of their evidence bare theories while dismissing the daily observations of parents from around around the world.

If you are the parent of a child recently diagnosed with an autism disorder welcome to the Topsy Turvy world of autism parenting. Parents know nothing and hurt their autistic children while purporting to help them. Professors who prowl the library speculating that historical figures were autistic are taken seriously while parents who observe and deal with their children's autism challenges every day know nothing. In the world of autism parenting every day is Topsy Turvy Day as described in Disney's Hunchback of Notre Dame:

Once a year we throw a party here in town
Once a year we turn all Paris upside down
Ev'ry man's a king and ev'ry king's a clown
Once again it's Topsy Turvy Day
It's the day the devil in us gets released
It's the day we mock the prig and shock the priest
Ev'rything is topsy turvy at the Feast of Fools!

Crowd:
Topsy turvy!

Clopin:
Ev'rything is upsy daysy!

Crowd:
Topsy turvy!

Clopin:
Ev'ryone is acting crazy
Dross is gold and weeds are a bouquet
That's the way on Topsy Turvy Day




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Tuesday, May 15, 2007

Wikipedia's Misleading List of People on the Autism Spectrum











Wikipedia's credibility has taken a big hit of late. See for example "Facts and friction: Wikipedia's quest for credibility, By STEPHEN HUTCHEON - SMH | Tuesday, 24 April 2007"

http://www.stuff.co.nz/stuff/4035909a28.html

One area that Wikipedia has not cleaned up in its attempts to address it's credibility issues is a beauty entitled "List of people on the autism spectrum" The list is flat out misleading in that most of the names on the list are high functioning or Aspergers with only 4 entries listed for "people with severe autism". Of the four names none are non-verbal low intelligence persons. You would never know from this Wikipedia entry that many autistic people have very severe intellectual and communication deficits. Everyone on the Wikipedia list is someone who can communicate extremely well. With one exception. The exception is a dead girl who died by her mother's hand at the age of 3.

Wikipedia's Misleading List of People on the Autism Spectrum:

People with unspecified forms of autism

Main article: Pervasive developmental disorder

The following people have been diagnosed as being somewhere on the autistic spectrum but the specific classification is unknown.

* Taylor Crowe, autism advocate and artist [1]
* Christopher Knowles, American poet [2]
* Katherine McCarron, autistic child murdered at the age of three by her mother, Karen McCarron. [3]
* Jason McElwain, high school basketball player [4]
* Michael Moon, adopted son of author Elizabeth Moon [5]
* Abubakar Tariq Nadama [6]
* Jasmine O'Neill, author of Through the Eyes of Aliens [7]
* Sue Rubin, subject of documentary Autism Is a World; Sue Rubin has no oral speech but does communicate with facilitated communication [8]
* Birger Sellin, author from Germany [9]
* Daniel Tammet, British autistic savant, believed to have Asperger Syndrome [10]

[edit] People with Asperger syndrome

Main article: Asperger syndrome

* Nikki Bacharach, daughter of composer Burt Bacharach and actress Angie Dickinson; committed suicide on January 4, 2007 [11]
* William Cottrell, student who was sentenced to eight years in jail for fire-bombing SUV dealerships [12]
* Luke Jackson, author of Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence [13]
* Craig Nicholls, frontman of the Australian garage rock band The Vines [14]
* Gary Numan, British singer and songwriter [15]
* Dawn Prince-Hughes, PhD, primate anthropologist, ethologist, and author of Songs for the Gorilla Nation [16]
* Judy Singer, Australian disability rights activist [17]
* Vernon L. Smith, Nobel Laureate in Economics [18]
* Satoshi Tajiri, creator and designer of Pocket Monsters/Pokémon [19]
* Liane Holliday Willey, author of Pretending to be Normal, Asperger Syndrome in the Family [20]

[edit] People with high-functioning autism

Main article: high-functioning autism

* Michelle Dawson, autism researcher and autism rights activist who has made ethical challenges to Applied Behavior Analysis [21]
* Temple Grandin, a designer of humane food animal handling systems. [22]
* Hikari Oe, Japanese composer [23]
* Bhumi Jensen, Thai prince, grandson of King Bhumibol Adulyadej of Thailand; killed by drowning in the tsunami caused by the 2004 Indian Ocean earthquake [24]
* Dylan Scott Pierce, wildlife illustrator [25]
* Jim Sinclair, autism rights activist [26]
* Donna Williams, Australian author of Nobody Nowhere and Somebody Somewhere; after testing for deafness from infancy until late childhood, and labeled psychotic and 'disturbed', Donna was formally diagnosed as autistic in her 20s with an IQ score under 80 (not technically in the HFA range) in spite of achieving a higher education. [27] .
* Stephen Wiltshire, British architectural artist [28]
* Caiseal Mor author of A Blessing and a Curse: Autism and Me; bestselling fantasy fiction author, musician and artist [29]

[edit] Autistic savants

Main article: Autistic savant

* Alonzo Clemons, American clay sculptor [30]
* Tony DeBlois, blind American musician [31]
* Leslie Lemke, blind American musician [32]
* Jonathan Lerman, American artist [33]
* Thristan Mendoza, Filipino marimba prodigy [34]
* Derek Paravicini, blind British musician [35]
* James Henry Pullen, gifted British carpenter [36]
* Matt Savage, U.S. autistic jazz prodigy [37]
* Henriett Seth-F., Hungarian autistic savant, poet, writer and artist [38]

[edit] People with severe autism

* Tito Mukhopadhyay, author, poet and philosopher [39]
* Lucy Blackman, university educated autistic author [40]
* Larry Bissonette , accomplished international autistic artist. [41]
* Amanda Baggs, advocate of rights for autistic people. [42]


People like my son Conor who has severe autism with serious developmental delays and communication deficits are not listed at Wikipedia. There is no mention, even generically, to the many autistic people who live out their adult lives in residential and institutional facilities being cared for by professional caregivers. Wikipedia allows the Neurodiversity Ideologues to mislead the world about the nature of autism with nonsense like this list.