Showing posts with label Texas. Show all posts
Showing posts with label Texas. Show all posts

Sunday, July 25, 2010

Texas Autism Filicide: A Mother of an Autistic Child Provides Perspective and Sound Advice

It is very difficult to read each and every news account of filicide, the killing of a child by his or her parents.  Sometimes the killings flow from bitter, nasty domestic relationships.  In some, perhaps most, the parents involved had mental health issues.  Each instance has to be examined on its own set of facts and, given the nature of the act,  by the appropriate legal and mental health authorities.  We should all be extremely careful not to make sweeping generalizations based on the personal characteristics of the individuals involved in a particular case. 

This week there are news reports of a Pakistani-American woman in Texas who strangled her two autistic children and , as reported by the Dallas Morning News, informed 911 operators that she did so because they had autism and she wanted normal children.  In the internet world of autism discussions such a  tragic event  feeds into many issues, and much hostility,  on all sides of the various autism perspectives.  There is also a danger that the tragedy could feed into feelings of hostility held by some people towards people of Muslim faith since September 11 2001 although most news reports I have read of it, including the DMN article just  referenced, do not mention the mother's religion.

I found it very  helpful  to read the wise comments on this tragedy by  the Muslim mother of an autistic child on the blog site My Autistic Muslim Child in a post called Support and Responsibilities in which the author references the accused mother's Muslim religion and asks people not to characterize Islam  based on one person's actions, urges us to consider the mental health challenges of the mother who killed her children, without making excuses for her actions,  and points out the need for autism support systems,

I recommend this article by the author of My Autistic Muslim Child for its balance, sensitivity and wisdom and because it is written by some one who is also both a Muslim and the mother of an autistic child.   It is difficult to quote from this article without quoting the entire article so I ask you to read it  for yourself.  I will quote the two concluding paragraphs where the author talks about the need to get at the root of the problem:

"We have a serious problem in our society, and people of all religions and ideologies must work together to stop the violence against children with autism or other disabilities. We need to educate our communities about this issue, and make them understand that such crimes cannot be justified by any religious teachings.

Also, we must create a support system for our communities, so if they do not receive any support from their families (which is the case a lot of times too for different reasons), then they have an outlet to which to go and acquire the much needed help from others. Our religious facilities must have an adequate and functional social service program to help the needy. The finger-pointing must stop, and we need to admit this problem is OUR problem, not just isolated, random incidents. Once we reach this understanding, we have a good chance to work together as a society and get to the root of the problem so as to prevent a tragedy like this to happen again."

Wednesday, May 14, 2008

Autism, Abby and ABA at the Shape of Behavior



In Facility is changing world for autistic children Lucretia Fernandez of the The Courier of Montgomery County, Texas tells the story ofAbby who, as a three year old was diagnosed with autism. Abby had difficulty sitting at a table to color a picture, participating in preschool or daycare activities. After being diagnosed with autism her parents immediately sought help for Abby and enrolled her at the Shape of Behavior. An individual ABA program was designed for ABA and within two weeks she was sitting at the table. After six months of intervention Abby was able to go to preschool where she has completed her first month.

The Shape of Behavior is a Houston, Texas facility with six locations. It's web site states that it provides individualized data-based treatment for children with autism and other developmental disorders "by shaping small successes to improve the quality of life for all individuals". The facility also conducts conduct research in the area of Applied Behavior Analysis. The Shape of Behavior web site contains information about its staff qualifications, locations, therapy clips, and a concise list of the characteristics of of Behavior Analytic Treatment:


Characteristics of Behavior Analytic Treatment

• Treatment that is individualized
• Treatment that is empirically validated
• Treatment that measure behavior and learning
through direct observation
• Functional analysis of the causes of behavior
• Emphasis on using positive reinforcement
to increase desirable behavior
• Technological procedures that can be replicated
• Achievements are described in scientific terms
or the principles of learning
• Practical significance in the improvement
for the individual child and not just
statistical improvement
• Creating improvements that last over time
and in new places where appropriate

Abby's parents sought help immediately upon learning of their child's diagnosis. The help they obtained, ABA treatment, has been thoroughly studied for decades and shown to provide real and lasting gains for autistic children. Parents of newly diagnosed autistic children would do well to follow a similar path, and take action to help their children learn, develop and live life as fully as possible.

Monday, June 25, 2007

Autism Health Insurance - Texas Governor Perry Signs Autism Insurance BIll



"Great things can be achieved, with early intervention, like with this one, He's making miraculous progress,"

- Suvi Aika, Mother of 5 year old diagnosed with autism at age 2

It is very enouraging to see the progress toward health insurance coverage for autism being made in the United States. Maybe if enough US states provide coverage Canadian Prime Minister Stephen Harper will be persuaded to do more than provide a lack lustre one page web site to help the cause of autistic children in Canada.

Autism insurance bill gets Governor's approval

06:29 PM CDT on Friday, June 22, 2007

By ELISE HU
KVUE News

Texas will soon require health insurance companies to provide coverage for children with Autism, under a bill signed by the governor last week.


http://www.kvue.com/news/local/stories/062207kvuechildautism-jj.34b9fb0.html

Sunday, May 13, 2007

Put ABA back in HB 1224 - A Perfectly Cromulent Blog

The attached excerpt and link are from Put ABA back in HB 1224 on Pete's blog A Perfectly Cromulent Blog Pop culture related smart-assery . The article is written in the blogger's irrevent style and is a textbook example of the need to include specific reference to ABA in legislation governing provision of health care coverage for autism. Whether it is Canada or Texas governments and lobbyists do not want legislation to require that Applied Behavior Analysis (ABA) be covered as a health care intervention for autism. Even though ABA is THE proven effective intervention for autism, even though autism reates are soaring, and even though studies document huge long term savings to governments and society ABA is still resisted while almost any other treatment for any other ailment receives coverage. Pete's commentary is very well written, gets to the point and tells a tale of government unresponsiveness to autism which is as true of the Government of Canada as it is of the Government of Texas.


"Which is what makes the amendment to HB 1224 so maddening. After all, if I was feeling a little down in the dumps, my health plan would cheerfully cover the cost of my happy pills. If I drunkenly jawed off to Mirko "Cro Cop" Filipović in a Zagreb bar and he broke my jaw, insurance would cover the emergency room visit and my subsequent weeks of pain meds. Hell, if I was an 80-year old man having trouble getting a goddamned hard-on, insurance would cover my boner pills, but therapy to help my daughter become a functional and productive member of society and not just another ward of the state after her parents die? We can apparently fuck right off.

So we're choosing to tell our daughter's story now, after being quiet about it for the last 16 months: to emphasize how important it is that this bill pass in its original form. If it seems opportunistic or self-serving, well...there's not much I can say about that, except that things like ABA and other therapy programs would seem to be the point of insurance: to insure the well-being of these kids who otherwise would be without hope for a future.

Finally, the only thing that really gave me pause about posting this was something that was said to me about the possibility SWSNBN might read this later on in her life and be mortified. My only response to that is this: I'm not a religious person, so prayer is out of the question, but I hope beyond anything I have ever hoped in my miserable life that my daughter, at some point in the future, is able to read this blog and yell at her father about it. I want that so badly it physically hurts."


http://www.whiterose.org/pete/blog/archives/010441.html