Neurodiversity's Extremist Autism Cure Opponents - By What Right Do They Object?

The declaration has been made by celebrity "autists"or "autistics" like Michelle Dawson, Amanda Baggs, Ari Ne'eman and various Neurodiversity bloggers that ""We", persons with autism spectrum disorders, do not want to be cured".

These persons with mild autism spectrum disorders, including Aspergers, routinely declare that "autistics" do not want to be cured, should not be cured, and in fact can never be cured. Their implied claim to omniscience aside, by what right do these people purport to speak on behalf of other people's children, on behalf of people much more severely affected by autism disorders than they with whom they have little in common, and even on behalf of higher functioning autistic persons who oppose their ideological opposition to curing autism?

The same people who object to Autism Speaks, who turn out in massive droves of 5, 6 and even 7 people to protest at large Autism Speaks rallies of thousands of parents and autistic people, and who dwell in the lavish attention of CNN, the NYT, CBC, the New Yorker and other mainstream media outlets, demand the right to impose their ideological opposition to autism cure on my severely autistic son and the children of other people with autistic children. On what grounds do they claim this right?

Do I have the right to demand that Ari Ne'eman seek a cure for his very high functioning Aspergers? Do I have the right to tell Michelle Dawson who excelled in the challenging work environment at Canada Post, appeared as an "autistic" in the Supreme Court of Canada and before a Canadian Senate committee to oppose ABA for autistic children in Canada that she must seek a cure for her unspecified autism spectrum disorder? Do I have the right to tell Amanda Baggs, the author of many very sophisticated disability essays on autism and other medical conditions and the producer of videos depicting what she considers autistic stimming, that she must seek a cure for her autism spectrum disorder?

The answer, of course, is NO. And Ari, Michelle, Amanda and other ideological opponents of curing autism have no right to oppose or interfere with attempts by families, governments and society to cure their own autistic children or to cure those autistic adults like Jake Crosby and Jonathan Mitchell who seek cures for themselves.

I have a message for Ari, Amanda and Michelle: I do not seek to cure you of your Aspergers or high functioning autism disorders. Do not claim the right to speak on behalf of my severely autistic son. You have no right to interfere with efforts by me, or other parents, seeking to help or cure our autistic children. None at all.

Someday, hopefully, even if you do not, the dilettante autism journalists at the NYT, the CBC and other MSM outlets will come to understand that you are interfering with the basic rights of families and parents to help their own children.

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New Wave Autism Self Advocacy: Stephanie Lynn Keil Offers A Different Perspective

If you are interested in new developments in autism self advocacy and awareness and want to avoid the tired "we don't want to be cured" ideology check out those who are presenting new perspectives in autism self advocacy. Jonathan Mitchell, Autism's Gadfly, and Jake Crosby at Age of Autism don't take their cues from the Neurodiversity playbook. Another vital new point of view is offered by Stephanie Lynn Keil an artist and person with an autism disorder who doesn't subscribe to the old rhetoric of Sinclair, Dawson, Baggs and Ne'eman.

In Improve Self, Not Society Stephanie refuses to focus on society as a means of addressing her challenges, choosing instead to focus on her own role in the world and what she can do for herself. She does not want to become a "career autistic" and sees a better way to deal with her challenges:

"I can't wait for society to accommodate me: I need to accommodate myself to society now. I can change myself in much less time than I can change society, which is why I am taking this route."

Stephanie's views are anathema to those who promote autism disorders as social constructs, natural variations, a different, even superior, ways of thinking. The Neurodiversity Hub is not kind to autistic persons like Jonathan Mitchell, Jake Crosby or Stephanie Lynn Keil, those who think for themselves, look to improve themselves and overcome their deficits. By their words they have proven false the implied claim by some self appointed autism disorder spokespersons that all persons with autism do not want to be cured.

For a different perspective on autism self advocacy visit Stephanie Lynn Keil's blog site A Grand Illusion and check out her art work at Stephanie Lynn Keil.

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Autism Severity

The DSM V committees drafting revisions to the manual are considering distinguishing between autism disorders based on severity or level of functioning. Some autism "self" advocates have long complained about distinguishing between functioning levels of autism disorders based on functioning labels - HFA, high functioning autism, or LFA, low functioning autism. Some object to the division of autism disorders according to severity.

The DSM-IV already implicitly recognizes these differences by specifying with respect to Aspergers Disorder that:

D. There is no clinically significant general delay in language (e.g., single words used by age 2 years, communicative phrases used by age 3 years).

E. There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills, adaptive behavior (other than in social interaction), and curiosity about the environment in childhood.

Language, cognitive development, age-appropriate self-help skills, adaptive behavior (other than in social interaction and childhood curiosity about the environment are all basic elements of functioning in the "environment" .... in the real world. By definition persons with Aspergers Disorder diagnoses do not lack these important elements of real life functioning ability. The criteria for Autistic Disorder by contrast is based in part on the presence of some or all of these components of real life functioning. The persons who suffer from Autistic Disorder are by definition more severely affected by autism deficits than persons with Aspergers Disorder.

My son Conor is severely autistic. That is a fact of life with which we have to deal every minute of every day. He does not possess the communication skills or understanding of the world displayed by Michelle Dawson, Amanda Baggs or Ari Ne'eman. These people can communicate with the world and demonstrate intellectual skills and understanding of the world far beyond what can be imagined for my son. It is silly, just plain silly, and nothing more than that, to pretend that there are not significant differences in functioning levels and understanding between these three examples of high functioning autistic persons who have spent much time in front of television cameras articulating their views of autism disorders and the world and my 13 year old son who reads Dr. Seuss and can not, for his own safety, be left unattended.

As I understand from the Internet Ms Baggs was either at, or about to enter, a college for gifted youth at a similar age. Ms Dawson is a person who, in addition to being an excellent letter carrier in the very challenging world of Canada Post, was able to become an autism researcher, make representation to the Supreme Court of Canada (where she opposed government provision of ABA treatment to autistic children) and to a Canadian Senate committee examining autism treatment and funding issues. Ari Ne'eman is the head of an organization based in Washington DC who regularly appears before cameras, and meets with political and public bodies, declaring on behalf of all autistic persons, including presumably my son and other autistic persons like Jake Crosby and Jonathan Mitchell, that "they", autistics, do not want to be cured.

As a parent of a much more severely affected son with autistic disorder I am tired of the silly attempts to deny the obvious differences between those who can function well like Dawson and Ne'eman and those like my son who require 24 hour supervision. I have visited adult autistic persons living in psychiatric facilities in New Brunswick who can not function in the real world AT ALL let alone make representations to judicial, political and legal institutions or engage in autism research or advocacy.

My son can not speak to the world. But Ari Ne'eman, Amanda Baggs and Michelle Dawson do not speak for him. They do not share his realities. They are not affected by autistic disorder as he is and they show no real awareness of the very real differences between his reality and theirs in their sweeping generalizations about autism and what "autistics" want.

The DSM V committee attempt to distinguish between levels of autism severity or functioning is a step in the right direction. Look for a determined effort from Mr Ne'eman, Ms Baggs and Ms Dawson, and their followers, to oppose that direction. After all, if the obvious differences between high functioning persons with autism and those, like my son, who do not enjoy their gifts, are expressly acknowledged, the self appointed "self" advocates ability to speak on behalf of those much less fortunate autistic persons would be seriously diminished in the eyes of the public and more importantly in the eyes of reporters from the CBC, CNN, the New Yorker Magazine and Newsweek who cater to their wishes.

Focusing on differences in autism severity would, however, bring needed attention to the challenges faced by the severely autistic some of who currently live out their lives in institutions. A couple of years ago a middle aged autistic woman in New York was regularly abused by staff but could not communicate with the world to tell of the abuse. The matter came to light because of a conscientious staff member and video recordings which captured some of the abuse. The plight of that woman, her life challenges and realities, are much different that those of the high functioning autistic media stars who barely acknowledge the existence of the severely autistic and do not display any understanding of their realities.

If the DSM V does differentiate between autism disorders based on functioning levels, or severity levels, it will be a much needed step toward helping those severely autistic who can not speak for themselves. It will help to ensure that their needs, so different than those of media trotting, high functioning "self" advocates will be met. It will be a much needed step in the right direction.

It is time for the low functioning, severely autistic, to be acknowledged and their needs addressed.

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Jake Crosby A Person with Asperger's Tells His Story At The Age of Autism

Jake Crosby, a person with Asperger's, tells his story at the Age of Autism. Jake is a history student and good writer. And he is not riding the Neurodiversity Express.

I encourage everyone to read Jake's story, Discovering I Was Toxic, at the Age of Autism.

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