Autistic Children Need Help, Not Delays: Toronto Star Editorial

In Autistic Children Need Help, Not Delays The Toronto Star has spoken out clearly in support of children with autism disorders in Ontario. The Star's message applies in most jurisdictions across Canada.  While the Star focuses on Ontario the same logic applies across Canada. Canadians and some conscientious, concerned political leaders including the late Andy Scott from Fredericton, Shawn Murphy from PEI, Glenn Thibeault from Ontario, Peter Stoffer, Nova Scotia, the late Jack Layton and NB Senator Jim Munson spoke out in support of a strong Real National Autism Strategy which, if one had been adopted would have ensured better lives for many children with autism disorders.  The fact that these children are missing out rests squarely on the shoulders of Prime Minister Stephen Harper, his "autism dad" front man Mike Lake and their partners in the Bloc Quebecois who opposed meaningful national help for autistic children in Canada. 

"Published on Sun Mar 09 2014

Now that Premier Kathleen Wynne is busy rebranding herself as the crusader for open government, it’s worth noting that accountability also extends to promises that remain unfulfilled.

One of the most heartbreaking issues facing many Ontario parents is the government’s failure to help children with autism, especially in the first few years of life when dramatic improvements are possible — with proper treatment. How sad that so much potential is lost, all because young children can’t get specialized therapy when the brain is malleable enough to change.

As the Star’s Andrea Gordon reports, four different committees and investigations into the fragmented, confusing and overburdened autism system continue to hear the same concerns, except now the problems are worsening.

In order to provide accountability to these families, Wynne must pay attention to their struggles and help parents, many of whom have reached the breaking point. One particularly egregious failing, as the government well knows, is the red tape that forces families to spend months on a waiting list to get a psychological assessment that will decide whether a child will spend years — on another waiting list — for therapy. It’s tragically ridiculous.

It can take some four years to get proper therapy, which leaves many parents so desperate they take on massive debts to pay for the only other option, expensive private treatment. Those who can’t raise the cash are left to accept whatever help their children are offered, which often arrives too late.

All of these problems were documented in a 2012 Star series on autism, which inspired a promise from the Liberal government for a blue-chip panel of experts to report on improvements to policies and services for people with autism. It was a significant step forward.

While the committee’s worthy work is ongoing, it has no control over government funding and since the government has yet to make any dramatic changes, the problems continue.

Wynne must find the money to get children off those waiting lists and into proper, long-term treatment. And that’s just the start. The patchwork system should be dismantled and recreated as a new, streamlined service that helps instead of hinders.

To be fair, some improvements have been made, such as increased supports for young people transitioning from high school to post-secondary studies. That’s certainly beneficial.

And there’s hope that a Queen’s Park all-party committee on development services will make good recommendations, which are expected in May. Its recent interim report poignantly noted the value of proper treatment, as told by the grandmother of two autistic boys: The first, she said, had to wait four years for therapy and by then he “regressed, his behaviours became ingrained and the window of opportunity was missed.” When the second boy was diagnosed, his family immediately sent him to private specialized therapy and he’s now a successful student in a regular school.

It’s about potential. Accountable governments should help children with autism achieve it."

Jack Layton: Canada, and Canadian Families with Autistic Children, Have Lost A Strong, Compassionate Voice

Photograph by Fred Greenslade, Reuters

There will be many words spoken to express the great loss that Canadians feel on hearing of the passing of Jack Layton.  His positive, feisty, spirit won the hearts of many Canadians in the last election but he has long been a champion of great causes from the homeless to the environment.

Jack Layton was also aware of the challenges facing Canadians with autism and the need for the federal government to address those challenges. The Medicare for Autism Now! organization had obtained the following statement from Jack Layton as leader of the NDP which I had posted on September 17, 2008:

"Jack's Response on Autism

First, both NDP MP Peter Stoffer and myself have challenged the federal government for not providing funding in its last budget to help families with autistic children. I fully recognize that families with autistic children are in crying need of support and they are very disappointed that the Conservative government has ignored their needs in their budget spending.

On the matter of voting, in the April 3, 2006 to September 14 ,2007 session of parliament MP Shawn Murphy introduced his private members legislation Bill C-304, An Act to provide for the development of a national strategy for the treatment of autism and to amend the Canada Health Act. C-304 received first reading on May 17, 2006 but unfortunately it did not make it to third reading or a final vote because it died when the Harper government chose to prorogue that Parliament. I am also aware that on March 29, 2007, the Standing Senate Committee on Social Affairs issued a report on the Funding of Treatment for Autism titled:" Pay Now or Pay Later: Autism Families in Crisis" in which they recommended that the federal government demonstrate some leadership in the autism file by collaborating with the provinces to create a National Autism Strategy and address the funding of treatment. However, this report was not put before parliament for a vote.

New Democrats recognize that providing support for families with Autistic children has to be a bigger priority for the federal government than another corporate tax cut. That is why Peter Stoffer has introduced Private Members' Bills, C-211, An Act to amend the Canada Health Act (Autism Spectrum Disorder) to "ensure that the cost of Applied Behavioural Analysis ( ABA) and Intensive Behavioural Intervention (IBI) for autistic persons is covered by the health care Insurance plan of every province" and C -212, An Act respecting a Canadian Autism Day. ' The federal NDP is proud of Mr Stoffer's efforts to help put the needs of Autistic children on the political map."

Goodbye Jack.

A REAL National Autism Strategy Request for Mr Ignatieff and Mr Layton

Dear Honourable Leaders, MP's and Senator Munson

I am the father of a 13 year old boy with Autistic Disorder, assessed with profound developmental delays living in Fredericton, New Brunswick. I have addressed this email correspondence to Mr Ignatieff and Mr Layton as the leaders of the two parties, Liberal and NDP, that have recognized the need for a real National Autism Strategy. I have also copied some of the members of both parties in the House, and Senator Munson, who have made outstanding individual efforts on behalf of autistic children and adults in Canada and who have fought for a real National Autism Strategy.

The motion by Mr. Stoffer and our former Fredericton MP Andy Scott achieved recognition by the House of Commons of the need for a National Autism Strategy. Unfortunately the private members bill brought by Mr. Shawn Murphy from PEI which would have done so much to ensure that autistic children across Canada have real access to evidence based autism interventions was defeated notwithstanding the solid support demonstrated by both of your parties. I humbly ask that both the Liberal and NDP parties not give up on autistic children and adults and continue the fight for a real National Autism Strategy one that would see a federal government commitment to funding evidence based autism interventions and decent residential care for all Canadians with Autism Spectrum Disorders regardless of their province of residence.

Canadians have moved from province to province seeking appropriate help, particularly Applied Behavior Analysis (ABA), for their children. Gains have been made by provincial action across Canada but there are huge gaps in the services available. As a New Brunswicker I am proud of what our province has done with relatively limited resources to help autistic children but much more needs to be done here, particularly for autistic youths and adults in need of decent residential care. Even a family with two medical professionals left Nova Scotia to seek ABA help for their autistic child in Manitoba. In Ontario, where I visited in the spring of 2008 as part of a national autism advocacy tour organized by our good friends from FEAT BC, more autistic children are languishing on waiting lists than are actually receiving treatment.

I remind you of the well informed comments of Ms Dhalla when she spoke on behalf of the Liberal Party in the House of Commons, on October 27, 2006, in support of the Scott-Stoffer motion calling for a National Autism Strategy:

"We must make sure that regardless of where one lives in Canada, whether it is on the west coast, the east coast or in the Northwest Territories, all children who are affected by autism actually have the opportunity to receive the treatment they need throughout their lives until the age of 18.

I am sure this national strategy is going to ensure that we have the proper investment to do further research into whether there are other treatment options available and into how this type of condition can be prevented. We must invest in a comprehensive strategy to address this very complex disorder. (1420)

As I have mentioned, we know the cost is upwards of $70,000 per year, but we have to ensure we give the opportunity to these families so their children can obtain treatment and provide them with the quality of life they need. These families should be able to do this without having to mortgage their homes, or sell their cars, or go through those financial hardships. Many families that have been affected by autism simply cannot afford this treatment.?"

I ask that both the Liberal and NDP parties keep the need for a real National Autism Strategy in mind as you go forward and work toward a strategy which sees Canada invest in autistic children and adults regardless of their province or territory of residence. Canada is more than a place where one's health, one's quality of life depends entirely on jurisdictional boundaries. Our national health care scheme generally, which results in longer life expectancy and greater infant survival rates than that of our good neighbours to the south, is a testament to that fact.

Please do your best to ensure the enactment of a REAL National Autism Strategy for all autistic Canadians.

Respectfully,

Harold L Doherty
Fredericton, New Brunswick

autism

October Is Autism Inaction Month In Canada

October is Autism Awareness Month in Canada. On the federal level though it would be more accurate to refer to October as Autism Inaction Month. Neither the Liberals, when they governed, nor the current Harper Conservative regime have taken any serious action to address Canada's Autism Crisis. With one in 150 Canadians and their family members affected by an autism spectrum disorder our federal government, despite its constitutional spending authority, does nothing of substance to provide evidence based treatment for autistic children.

The Harper government has established an autism web page. It also held a sham national "Autism Symposium" from which the voices of advocates for autism treatment for ALL autistic Canadians , regardless of province of residence, were excluded.

No real action is being taken. A federal election is now taking place. The NDP party leader Jack Layton reminds us all of the hard work for the autism cause of NDP MP Peter Stoffer, whose efforts are very much appreciated. But he makes no commitment to take action to address the autism crisis.

The Liberals have also had some strong autism advocates, Senator Jim Munson, and MP's Shawn Murphy and Andy Scott. Their efforts too are appreciated. But it is difficult to understand the Liberal party position on autism enunciated by Stephane Dion, He seems to be saying that, if elected, he might listen to the concerns of stakeholders and provinces. Whoop de doo.

In Canada, October is the month we should remind ourselves of all that our federal government is NOT doing to help persons with autism. And continue fighting on every level of government, including the federal level, to address Canada's autism crisis.

autism

On Autism Issues Illinois Governor Shames Canada's Party Leaders

There is a federal election underway in Canada but autistic children and adults and their families are not included. NONE of the leaders of Canada's federal parties will commit to taking any real action to help. Not one.

Conservative leader Stephen Harper and his party continue their longstanding and total neglect and lack of concern for autistic children and adults in Canada. NDP leader Jack Layton recounts the excellent work done by NDP MP Peter Stoffer, a true champion of autistic individuals and their families, but makes no commitment himself, or on behalf of his party, to help. Likewise Liberal leader Stephane Dion who actually voted for Liberal MP Shawn Murphy's unsuccessful motion to amend the Canada Health Act to provide ABA coverage for autism under Medicare has offered to talk to provinces and stakeholders to listen to their "concerns". Green Party leader Elizabeth May has, so far, been silent on autism issues.

In the US, by contrast, Illinois Governor Rod Blagojevich called lawmakers into special session to deal with a state Senate committee measure that seeks to require insurance companies to cover expanded treatment for autism, as reported in the Chicago Tribune:

It's the Senate's third attempt this year to approve the measure, which would require insurers to cover up to $36,000 a year and unlimited doctor visits until age 21 for people with autism spectrum disorders.

In Illinois Governor Blagojevich takes action to ensure funding for autism treatment. In Canada our federal leaders either ignore autism altogether or offer self congratulatory sermons with no commitment or action to back them up. I am sure Governor Blagojevich does not have Canada in mind with his determination to help autistic children and their families in Illinois but he does, by example, put our federal leaders to shame.

autism

NDP Leader Jack Layton's Response On Autism

The following document was forwarded by members of Medicare For Autism Now who received it from the New Democratic Party on behalf of NDP leader Jack Layton:

Jack's Response on Autism

First, both NDP MP Peter Stoffer and myself have challenged the federal government for not providing funding in its last budget to help families with autistic children. I fully recognize that families with autistic children are in crying need of support and they are very disappointed that the Conservative government has ignored their needs in their budget spending.

On the matter of voting, in the April 3, 2006 to September 14 ,2007 session of parliament MP Shawn Murphy introduced his private members legislation Bill C-304, An Act to provide for the development of a national strategy for the treatment of autism and to amend the Canada Health Act. C-304 received first reading on May 17, 2006 but unfortunately it did not make it to third reading or a final vote because it died when the Harper government chose to prorogue that Parliament. I am also aware that on March 29, 2007, the Standing Senate Committee on Social Affairs issued a report on the Funding of Treatment for Autism titled:" Pay Now or Pay Later: Autism Families in Crisis" in which they recommended that the federal government demonstrate some leadership in the autism file by collaborating with the provinces to create a National Autism Strategy and address the funding of treatment. However, this report was not put before parliament for a vote.

New Democrats recognize that providing support for families with Autistic children has to be a bigger priority for the federal government than another corporate tax cut. That is why Peter Stoffer has introduced Private Members' Bills, C-211, An Act to amend the Canada Health Act (Autism Spectrum Disorder) to "ensure that the cost of Applied Behavioural Analysis ( ABA) and Intensive Behavioural Intervention (IBI) for autistic persons is covered by the health care Insurance plan of every province" and C -212, An Act respecting a Canadian Autism Day. ' The federal NDP is proud of Mr Stoffer's efforts to help put the needs of Autistic children on the political map.

autism

Layton, Stoffer Slam Zero Conservative Support for Autism

NDP leader Jack Layton and NDP MP Peter Stoffer have slammed the Harper Conservatives for failing to provide any funding whatsosever for autism in its recent federal budget. The Conservatives did not ante up a single penny for autism.

Meanwhile Mike Lake, the Conservative MP and father of an autistic child, who opposed the Shawn Murphy attempt to ensure autism coverage in the Canada Health Act, has not offered any public comment on the failure to provide a single penny for autism in his party's budget. Emails sent to his office are responded to by a staffer who informs that Mr. Lake has received too many emails on the subject of autism to respond personally.

http://www.ndp.ca/page/5057

Stoffer slams federal government for not providing autism funding in budget

Fri 23 Mar 2007

OTTAWA – NDP Leader Jack Layton and Peter Stoffer (Sackville-Eastern Shore) slammed the federal government today for not providing funding in the federal budget to help families with autistic children.

“Families with autistic children are in crying need of support,” said Layton. “They are very disappointed that the Conservative government has ignored their needs in the budget. Providing support for these families should be a bigger priority for the federal government than corporate tax cuts.”

“It is also hypocritical that the Harper government is ignoring the autism motion M-172 passed by the House of Commons last December,” said Stoffer. “When Harper was in Opposition, he constantly criticized the Liberal government because it did not respect the votes of the House of Commons. It is surprising how quickly the Conservatives have become just like the Liberals.”

M-172 requires the federal government to work in cooperation with the provinces and territories to establish national standards for treatment and delivery of services, study funding arrangements, create a national surveillance program, and provide more funding for health research on autism.

“The federal government must work with the provinces and territories to find a way to include autism therapy in the health care insurance plan of every region across this country,” said Stoffer. Stoffer introduced a private members bill (C-211) to this effect last fall.

Stoffer also expressed his profound disappointment with the federal government in failing to recognize the Veterans First Motion and ignoring the issue of Agent Orange and Agent Purple in the budget. The Veterans First motion was passed in November 2006 and suggested five key reforms that would deliver long overdue fairness and security for Canadian Forces veterans and their families.

“With a $14.2 billion dollar surplus, how can the federal government not provide more funding and services for families with autistic children and for veterans and their families? It is absolutely shameful. It is time for the federal government to be proactive in the lives of Canadian families living with autism.”