Vancouver Sun's Faces of Autism: Still the Most Honest Media Presentation of Autism

Yesterday I commented on yet another media presentation of autism, in the Bloomington Alternative,  which focused almost entirely on Aspergers and ignored those most severely affected by autism ... those with Autistic Disorder.  Few, very, very few major media outlets want to present the realities of severe Autistic Disorder.  Who wants to show the world the harsh realities of severely autistic persons, the challenges they present to themselves, their families and other caregivers? Who wants to point out the restricted and dreary lives in the care of others that is the ultimate fate of so many with Autistic Disorder? Bummer man; don't ruin my vibe with that autism reality stuff.

There are few mainstream media sources that have presented autism fully and honestly to the world.  One that I have mentioned on this site in the past is the Vancouver Sun with its six part series Faces of Autism.  I mention it again because it is still one of the few sources that actually portrays severe Autistic Disorder reality to the world while discussing autism.  The series is the work of columnist Peter McMartin and photographer Glenn Baglo.

Part One of the series, Emotional Roller Coaster,  deals with the realities of life for, and with, a severely autistic 14 year old girl, Kristi, Jansen:

"14-year-old Kristi Jansen swings from crying to laughing to screaming in a matter of seconds. Her body, home and family members -- especially her mother -- bear the scars of her violent outbursts that have only been calmed through years of expensive therapy."

The feature, particularly the photos of Kristi smiling, also show the joy of this young woman  but it does not do so by hiding the truth about the serious challenges facing persons with severe autism disorders or the challenges facing the family members and others who care for and love them.  The Vancouver Sun, columnist Pete McMartin and photographer Glenn Baglo do what journalists are supposed to do ... tell the truth ... give us the whole picture about autism disorders.

On World Autism Awareness Day Remember the Invisible and Forgotten Ones

Two days from now, on April 2, the world will recognize for the second time World Autism Awareness Day. WAAD is the result of an outstanding initiative led by Autism Speaks and the State of Qatar.

As the father of a 13 year old boy with autistic disorder, assessed with profound developmental delays I thank both Qatar and Autism Speaks for this monumental step forward in facing the challenges of autism spectrum disorders around the globe.

Everyone with an autism spectrum disorder (Pervasive Developmental Disorder) by definition has serious deficits or challenges to face. For each such person their challenges are undoubtedly large and complex realities of their daily lives. There are different degrees or severity of autism disorders though and this is implicitly recognized in the DSM which in the definition section of Asperger's Disorder expressly excludes persons with clinically significant delays in language, cognitive development or age appropriate self-help skills. (Some of the very intelliglent, highly articulate leaders of the "autism" advocacy movements are in fact persons with Asperger's Disorder such as Ari Ne'eman and Alex Plank).

The mainstream media CBC, CNN, New Yorker Magazine for example tend to interview and present persons with Asperger's Disorder and higher functioning autistic disorder to the world as being representative of persons with autism. Very, very few features about autism focus on the invisible persons with severe forms of autism, the forgotten ones who live as adults in institutional care or very controlled community group homes. [The exception to this rule is the Vancouver Sun which provided the most comprehensive presentation of persons with autism from all points of the autism spectrum with its excellent Faces of Autism series. The Vancouver Sun, Pete McMartin, columnist, and Glenn Baglo, photographer, deserve full credit for daring to portray realities of life for persons from across the full spectrum of autism disorders and their families.]

The invisible autistic persons live in institutional settings because of the severity of their autism disorders. Some are violent towards themselves or others. Some lack the skills to function at all in the world without assistance. Simply closing such places is not an answer even if it makes the public feel better. For many, without institutional care they would have no where to live, no means of survival. For me such severely autistic persons are not invisible or forgotten. Unlike some of the dilettante, mainstream health "journalists" I have visited institutional facilities providing lifelong residential care and treatment to severely autistic persons. My son could well end up residing in such a facility after I am dead.

On World Autism Awareness Day I will think of all persons with autism disorders including my friends with Asperger's Disorder. And I will think of and remember the invisible and largely forgotten persons with severe autistic disorder. I will not ignore or forget them. I respectfully ask you to do the same.

It is my hope that World Autism Awareness Day continues in perpetuity and that long after I am dead people will be thinking of all persons with autism disorders, including the severely autistic, including my son, Conor Doherty.

Thank you for considering my request.

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Autism and Gordon Campbell's Vile IQ Flip Flop

"We now live in a province that lavishes millions of dollars on bobsledders and junkies, but nickels-and-dimes those with autism, fetal alcohol syndrome, the mentally challenged . . . and the families who worry about protecting them."

Pete McMartin, Vancouver Sun

Pete McMartin is the Vancouver Sun columnist who produced, with Sun photographer Glenn Baglo, a series of articles called Faces Of Autism one of the most accurate and comprehensive presentations of autism in the main stream media. In It was wrong months ago -- and it is still wrong today McMartin rips British Columbia Premier Gordon Campbell and Children's Minister Tom Christensen for reversing their stated positions on the use of an IQ of 70 as a measure in assessing elgibility of developmentally disabled persons for receipt of government services.

This week, Premier Gordon Campbell and Children's Minister Tom Christensen signed an order making an IQ of 70 or under one of the criteria for receiving services. They did so to do an end-run around a B.C. Court of Appeal ruling that the province could not deny services to the developmentally disabled on the grounds of IQ. The reversal arises from legal advice following an appeal court decision and is described as "temporary".

McMartin crticizes the arbitrary reliance on IQ as opposed to more realistic assessments of ability to function in society ... or face real life challenges ..... and uses the examples of two autistic persons whose parents he worked with in researching Faces of Autism, one just below the 70 IQ cut off, will be eligible for services, and one well over that number who will not. The mother of the autistic son with the higher IQ points out that her son has serious problems with socialization and problem solving, alone he might have no idea what to do if a fire breaks out in his home. He needs life long support to be able to cope.

But being "smarter" means Schuman's son needs fewer services and is better prepared to face the world as an adult, right?

Wrong. Autism is uneven in its effects. A child with autism might be able to, say, recite long passages of poetry from memory, but the same child may not be able to tie his shoes.

Pete McMartin called the Campbell government decision vile. I fully agree.

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Faces of Autism on World Autism Awareness Day

I do not hide my contempt for CNN's coverage of autism issues. CNN's coverage is, at best light and fluffy feel good stuff with little influence in the discussion of autism issues by people trying to actually help the many children and adults with autism disorders. At worst CNN coverage misrepresents the nature of autism and autism interventions. But there is some good media coverage of autism available. For World Autism Awareness Day I personally recommend that anyone interested in getting a realistic picture of autism try reading the Vancouver Sun's outstanding six part series Faces of Autism by columnist Pete McMartin with photos by Glenn Baglo.

Faces of Autism provides gritty, coverage of persons with autism, their life prospects and the impact that autism has on many families. The photos by Glenn Baglo are an honest portrayal of autism, particularly those of autistic 14-year-old Kristi Jansen who swings from crying to laughing to screaming in a matter of seconds. Kristi lived at home at the time of the series publication in April 2007. "Her body, home and family members -- especially her mother -- bear the scars of her violent outbursts that have only been calmed through years of expensive therapy."

Glenn Baglo's pictures of Kristi are very moving and strike a realistic chord for me as the father of a severely autistic 12 year old. She is shown smiling, laughing, crying and screaming. But she is never presented as the only face of autism. Faces of Autism emphasizes the range of autism realities. It is respectful, responsible and well informed coverage of autism and well worthing reading on World Autism Awareness Day - or any day.

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CNN's Invisible Faces of Autism

Despite significant media attention being paid to autism low functioning, truly low functioning, persons with autism remain invisible. The exception to this rule is the Vancouver Sun which provided the most comprehensive presentation of persons with autism from all points of the autism spectrum with its excellent Faces of Autism series. The Vancouver Sun, Pete McMartin, columnist, and Glenn Baglo, photographer, deserve full credit for daring to portray realities of life for persons from across the full spectrum of autism disorders and their families. I say they "dared" to portray these realities because of the hostility generated by image conscious ideologues who do not want the world to know that there are autistic persons with only a limited understanding of the world, of language and of everyday realities. The caring families of the Autism Every Day video know all to well what happens when the real challenges of autism are presented truthfully to the world.

The Faces of Autism series remains one of the few competent commercial media treatments of the realities of truly low functioning autistic persons - other than news responses to horrific stories such as the middle aged autistic woman with no communication skills who was physically assaulted, repeatedly, by staff at a Long Island residential care facility until one staffer, assisted by videotape footage of the assaults, reported them and criminal charges responded. Another incident which elicited media attention to the realities of lower functioning autism is that of the Toronto woman who was allowed to starve to death while in the care of her adoptive sister.

Generally though the lower functioning autistic persons are not featured on the major media networks, news magazines or newspapers. After all, news today is also entertainment and it is easier to sell feel good stories than address hard realities. Anderson Cooper distinguished himself during Katrina by speaking truth to power, by pointing out, when politicians were busy patting themselves on the back, that people were dieing all around them, on the streets and rooftops of New Orleans. But when it comes time to examine the lives of autistic persons Mr. Cooper and the good Dr. Gupta do not visit the invisible autistics, those who do not attend "autism conferences", write internet essays and make videos for world consumption.

In CNN world, in Oprah world, in the world of the mass media generally, much good is done by highlighting autism and raising autism awareness. Unfortunately, for the largest media organizations, the realities of life for truly low functioning autistic persons are ignored. Mr. Cooper and Dr. Gupta do not see or visit the truly low functioning autistic persons who hurt themselves, who lack understanding of language or everyday dangers of life. For CNN and the big media organizations the faces of truly low functioning autistic persons do not show up on their cameras and our television screens, they remain invisible to CNN - and to the world.

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