Showing posts with label Dr. Eric Larsson. Show all posts
Showing posts with label Dr. Eric Larsson. Show all posts

Monday, July 06, 2009

Autism Education: New Brunswick Educators Plan to Abandon Quality Autism Training for Aides Working with Autistic Students

I have written often, and with great pride, about New Brunswick's Autism Service Delivery model for autistic students and pre-schoolers. NB's ASD model has been presented at a national and international conference. It has been subjected to external review by international autism expert Dr. Eric Larsson of the Lovaas Institute who stated:

"The current AITP is a remarkable and thorough program that has been developed to an exceptional level of quality in the context of limited resources. The province-wide model is one that many other provinces should adopt, as it carries with it many cost-effective features. The curriculum content requires little modification".

You would think that such success would be embraced by civil servants with portfolio responsibility for autistic students but sadly the opposite is true. At the school level the training of teacher assistants and resource teachers working with autistic children at UNB-CEL Autism Intervention Training has met with fierce resistance from the minute that the careerists in the Department of Education learned that the program was being implemented pursuant to discussions between the Autism Society of New Brunswick and the current government of the province.

Premier Shawn Graham and Education Minister Kelly Lamrock committed to funding training for 100 TA's and resource teachers a year for four years at the UNB-CEL AIT program. That commitment was resisted initially be "educators" who prepared 7 alternative proposal outlines with no meat to them in order to stall implementation of the UNB training commitment. When an alternative "plan" was fleshed out it included in house training which carried no assurances of quality or integrity. There were to be no entrance requirements. The course could be completed at the candidates leisure with no time line for completion and no graduation or exam requirements. The plan would be directed by a soon to be retiring Director of Student Services who was one of the most determined opponents of the UNB-CEL training commitment. Presumably he would have received a salary to administer the program in addition to his retirement pension.

As an indication of the ferocity of resistance to the UNB proposal the alternative plan was presented to ASNB at a meeting at which the Department indicated I could not attend or the meeting would not take place. A frivolous conflict of interest allegation was made against me on the grounds that I had a complaint against the Department relating to autism services before the NB Human Rights Commission. In that complaint I was not acting as a lawyer. I brought the complaint on behalf of my autistic son .... as his father. Rather than disrupt the meeting though I agreed not to attend and ASNB simply discussed the proposals afterward with everyone including me.

At a subsequent meeting of the Dialogue on Education Committee the agenda for the day made no mention of an autism training program to be discussed. I attended on behalf of the ASNB on short notice and had to leave at mid day. No mention was made to me before I left by the Department representative chairing the meeting, Brian Kelly, the current Director of Student Services, that the Department wished to again discuss autism intervention training. Despite not being on the agenda and despite not being mentioned while I was in attendance as the Autism Society representative or otherwise receiving any notice of intent to discuss it, an autism training proposal was discussed after I left.

Although the Department complains about expense it has sent teachers to receive autism training in North Texas even though a quality training program, as asserted by Dr. Larsson, is available right here in Fredericton. The union representing TA's has opposed the UNB-CEL training because of the entrance and completion requirements and the seniority claims of older Teacher Assistants. Some of their members are unable to enter or complete the program. The Department in a recent discussion with me acknowledged the Department's concern about TA's not being able to complete the UNB-CEL program.

Apparently Department educators share the CUPE union views that the seniority interests of Teacher Assistants are more important than ensuring that qualified, capable people work with autistic children in New Brunswick schools. CUPE officials have brought grievances on behalf of untrained Teacher Assistants seeking to work with autistic students ahead of UNB autism trained TA's. The Union has recently informed some UNB autism trained TA's that the Department of Education does not intend to continue the government commitment to training Teacher Assistants at UNB-CEL. In the view of the Department officials it is apparently OK for people who can not complete autism training at UNB to work with autistic children.

The other vested interest involved in undermining the NB commitment to a real education of autistic children is the AutismPro Internet autism program offered by Virtual Experts Inc. AutismPro has lobbied extensively and was included as part of the training proposal presented by Department Educators as an alternative to UNB-CEL training. It was marketed to some parents via the Department of Education which emailed them to tell them in very positive terms about the program availability. AutismPro is an interesting concept but there is little quality evidence that the program itself is an effective evidence based autism intervention let alone that it can assist in training of otherwise unqualified Teacher Assistants and Resource Teachers.

Fighting vested adult interests has always been a challenge for parents seeking effective, evidence based treatment and intervention for our autistic children here in New Brunswick.

Unfortunately it appears that our autistic students will once again be sacrificed to adult interests.




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Tuesday, June 16, 2009

Autism Progress Limited to Children in New Brunswick ...... So Far

I have written often of the great progress we have made in New Brunswick in helping autistic children. Our small province is literally a world leader in providing government funded pre-school autism intervention across our jurisdiction by trained autism support workers and clinical supervisors at autism agencies which did not exist just a few years ago.

Our neighborhood schools provide for the education of autistic children in a variety of settings in the mainstream classroom for some autistic children who function well in the classroom, and smaller locations for those, like my son, who do not. Teacher assistants and resource teachers continue to receive Autism Intervention Training from the University of New Brunswick College of Extended Learning which has been externally reviewed by, and received high praise from, renowned autism expert Dr. Eric Larsson.

New Brunswick's autism service delivery model for our autistic school children and pre-schoolers is not perfect. Much work remains to be done for autistic children, continued improvement in delivery of services for them is necessary, but the basics are in place. The same can not be said for autistic adults.

Some autistic adults can function in independent environments. Some autistic adults, and older youths, live in group homes in the community and can be comfortable and cared in those settings. But for others, more severely affected by the deficits of their autism disorders life is different.

Some of New Brunswick's autistic adults and older youths have lived on the grounds of correctional facilities and on hospital wards. Some have been sent outside of the province to live far from family. Others live at the psychiatric hospital in Campbellton, at present a necessary refuge for those who are too severely affected by autism to live in group homes.

New Brunswick is badly in need of a multi-level autism specific residential care facility for autistic people in Fredericton. Fredericton has the other resources: the Stan Cassidy centre which currently provides tertiary level pediatric care for autistic children with serious health and personal safety issues, the UNB Psychology Department which has been involved with providing some of the expertise which has helped this province, the UNB-CEL Autism Intervention Training program which has been the backbone of the school and pre-school programs. These resources could all provide a real synergy of support for a multi-level care facility for autistic persons in Fredericton, one which could provide decent residential care and treatment for New Brunswick's autistic adults and which would be centrally located.

The world is living through difficult economic times and New Brunswick is no exception. Tough decisions are being made by government. It will not be easy to move ahead with the creation of a multi-level care facility at this time but I remain optimistic that such a facility can be established in New Brunswick.

Parents, professionals and politicians here have all contributed in the past to help autistic children in New Brunswick. Now we must move ahead with a commitment to help New Brunswick's autistic adults.



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Friday, May 01, 2009

A New Brunswick Autism Dad's Open Letter to Dr. Susan Bryson re Nova Scotia's Immoral Autism Lottery

May 1, 2009

Dr. Susan Bryson, PhD
Joan and Jack Craig Chair in Autism Research
Pediatrics, Dalhousie University


Dear Dr. Bryson

I am writing you this open letter (also posted on my blog site Facing Autism in New Brunswick) to express my concerns about Nova Scotia's lottery system of autism service delivery a system which, in my respectful opinion, is immoral. I do not believe that something of such importance to the life and well being of a child with a serious neurological disorder should depend upon a system of chance. I do not believe that such a system can be rationalized in a country like Canada which recognizes the desirability of a universal, publicly funded approach to health care. I do not believe that Nova Scotia's lottery system of provision of autism service delivery is consistent with principles expounded in several versions of the United Nations Declaration of the Rights of the Child.

As a lawyer I am also doubtful that the lottery system would survive a challenge under the Charter, notwithstanding the Auton decision, given that, unlike in Auton, the Nova Scotia government has agreed to provide some autistic children with autism specific ABA services and given the further empirical and professional support for ABA since the Auton decision, including the 2007 review by the American Academy of Pediatrics, Management of Children with Autism Spectrum Disorders. I ask that you, with your internationally recognized autism expertise and your acceptance by government authorities in Canada, including provincial governments and the federal CIHR, speak out publicly against the lottery system of autism service delivery in Nova Scotia.

As you are undoubtedly aware, those Nova Scotian families whose autistic children lose out on the Nova Scotia Autism Lottery, and who have the means to do so, leave Nova Scotia in search of services elsewhere. In one well known instance, a husband and wife in that situation, both medical professionals, left Nova Scotia for Manitoba for the autism services available at the St. Amant facility in Manitoba. For famiiles of lesser means whose autistic children do not win the autism lottery .. well .. with your background and expertise you know what awaits them.

I am the father of a 13 year old boy diagnosed with Autistic Disorder and assessed with profound developmental delays and I have been a parent autism advocate here in New Brunswick since my son's initial diagnosis at age 2, a relatively early age of diagnosis 11 years ago. I also have very strong family ties in Nova Scotia where I was born and where my parents and siblings, cousins, nephews and nieces live, including an autistic child in my extended family. I also have friends in Nova Scotia's autism community including Jim Young of FEAT NS who has been a relentless and outstanding advocate for autistic children and adults in Nova Scotia. I am concerned for autistic children and their families who must be subjected to the Nova Scotia autism lottery.

I am also deeply concerned for a more immediate reason. I am concerned that the Nova Scotia lottery model which, on its face, reflects greater concerns for budgetary considerations than for the best interests of autistic children, might influence developments elsewhere in the Maritimes and particularly here in New Brunswick. As an autism advocate here in New Brunswick I can say from personal experience that our autism advocacy community had to overcome many obstacles to develop an autism service delivery model at both the pre-school and school levels that is as good as any that I am aware of in Canada or the United States. And it took time to develop the model we now enjoy.

In 2001, after an Interdepartmental Committee Review (Education, Health, Family Services), the New Brunswick government committed to the principle of provision of evidence based autism interventions. Most autism services are now provided by Autism Support Workers, Clinical Supervisors, Teacher Assistants and Resource Teachers trained at the University of New Brunswick College of Extended Learning.

The UNB-CEL AIT program has been subjected to external review by Dr. Eric Larsson who has commented about the program as follows:

"The current AITP is a remarkable and thorough program that has been developed to an exceptional level of quality in the context of limited resources. The province-wide model is one that many other provinces should adopt, as it carries with it many cost-effective features. The curriculum content requires little modification".

In addition to Dr. Larsson's external review the New Brunswick autism service delivery model has been the subject of presentations by key local professional and administrative personnel at national and international conferences. Dr. Paul McDonnell a clinical psychologist and Professor of Psychology (Emeritus) from UNB has been instrumental in educating New Brunswick parents and in providing clinical autism services to autistic children. He made a presentation on the New Brunswick Autism Service delivery model at the ABA International Symposium, Chicago, May 123-28, 2008. Anne Higgins, Director Professional Development Division, College of Extended Learning, University of New Brunswick, made a presentation on the NB model at the CAUCE (Canadian Association for University Continuing Education) Conference 2008 at the University of Western Ontario.

The pre-school autism interventions are provided by the Autism Support Workers and Clinical Supervisors at several agencies situated around the province. AITP trained Teacher Assistants provide daily intervention and educational assistance to autistic children in neighborhood schools across New Brunswick. The system is not perfect. More work needs to be done but I can tell you as an autism advocate with ties across Canada that some people have actually moved to, or are considering moving to, New Brunswick to seek autism services not available in their home province, including some from Nova Scotia. I have visited Ontario as part of a national autism advocacy campaign last year and I am well aware through the personal friendships that I have developed there, and through my blogging activities and contacts, that Ontario despite its relatively greater wealth, is not even close to New Brunswick in provision of pre-school or school autism services.

In addition to a serious effort by the current government of Premier Shawn Graham and Education Minister Kelly Lamrock to provide autism training to Teacher Assistants and Resource Teachers our schools have also begun to accommodate ABA based education for autistic children in our schools in a variety of settings. Some autistic children, for whom that environment is suitable, are educated for the most part in the mainstream classroom. Others, including my son Conor who is severely autistic, are educated in a small separate room, at our request, where he is not overstimulated and overwhelmed by the mainstream classroom environment. Conor visits common areas of the school for specific periods for limited periods of time with a TA who is UNB-CEL trained and who pays close attention to my son's reaction to his environment and ability to function in different locations. In terms of peer acceptance I can say through personal observation taking him to and from school that that my son has been very well received by other children in the grade school and middle school he has attended in our neighborhood even though his time with them is for brief periods during class time or in common areas of the school.

Apart from these regular pre-school and school services New Brunswick also has an autism specific pediatric tertiary care team at the Stan Cassidy Centre for Rehabilitation in Fredericton. At one time the autism team at the Stan Cassidy was scheduled for closure .... because the overwhelming demand for its services was perceived as a threat to the continued viability of the Stan Cassidy's overall operation. Community and government response to that initial closure decision was such that the decision was reversed. The autism component of the Stan Cassidy team has been rebuilt and now includes a next generation of professional leadership including Dr. Tara Kennedy who has quickly become immersed in, and a very important part of, New Brunswick's autism service delivery model.

These autism services in New Brunswick have been largely built since 2003-2004 while next door Nova Scotia, starting from a similar vantage point, today offers a lottery system of early intervention with little in the way of systemic provision of autism services in schools across Nova Scotia. Here in New Brunswick we had a determined parental autism advocacy community driving much of what has been accomplished. We also had responsive government and political leadership.

Vitally important to what has been achieved though has been the direct and sustained involvement of New Brunswick's academic and professional autism community in helping parent advocates understand what is required, from an evidence based perspective, to help our autistic children. The same people have been engaged in helping government work through and understand the importance of evidence based approaches to autism service delivery. The public involvement of our academics and professionals has been key to what has been achieved in New Brunswick.

I ask you to speak out publicly against the immoral autism lottery system in Nova Scotia. Your expertise, and government trust in you, would surely mean that your views would be given considerable weight by public decision makers. Nova Scotia's autistic children would surely benefit from your public advocacy.

You could consider recommending to the Nova Scotia government that it replace its immoral autism lottery with the more just, equitable, evidence based and province wide model developed here in New Brunswick and recommended by Dr. Eric Larsson.

Respectfully,


Harold L Doherty
Fredericton New Brunswick





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Monday, October 27, 2008

Dr. Eric Larsson Reviews, Recommends UNB Autism Intervention Training Program

"The current AITP is a remarkable and thorough program that has been developed to an exceptional level of quality in the context of limited resources. The province-wide model is one that many other provinces should adopt, as it carries with it many cost-effective features. The curriculum content requires little modification".

- Dr. Eric Larsson, of the Lovaas Institute, External Review of the University of New Brunswick Autism Intervention Training Program

Dr. O. Ivar Lovaas is a world-renowned autism expert who has devoted his career to improving the lives of children with autism and their families. His Lovaas Model of Applied Behavior Analysis is based on 40 years of research and is backed by published studies showing half of children with autism who receive this intensive treatment become indistinguishable from other children on tests of cognitive and social skills by the time they completed first grade.

The one-on-one intensive behavioral treatment program is customized to meet the needs of each child and family served. The program is available nationwide at 12 Lovaas centers as well as through certified consultants across the country who are employed by the Lovaas Institute.

The Lovaas Model of Applied Behavior Analysis has undergone rigorous research at UCLA under the direction of Dr. Lovaas, proving its effectiveness in treating children with autism.

Eric V. Larsson, Ph.D., L.P., BCBA, Executive Director, Clinical Services, The Lovaas Institute for Early Intervention <http://www.lovaas.com/> , Midwest Headquarters where he implements a program of intensive early intervention services for families of children who suffer from severe behavior disorders. This intensive early intervention program is one of the most thorough and highly supervised behavior therapy programs in the field. Dr. Larsson is recognized as an expert in early intervention, inclusive communities, severe behavior disorders, multiple handicaps, autism, the rights of individuals with disabilities, nonaversive treatment, Applied Behavior Analysis, and self-injurious behavior. He has published papers on such topics as early intervention, functional communication, autism, social skills, parenting, and human rights. He has given over 70 presentations and 60 workshops on such topics as intensive early intervention, parenting, curriculum management, community leadership, behavior management, staff training, quality assurance, family violence, social skills, inclusive communities, autism, and consultation. He holds adjunct appointments at several major universities. H e is currently on the Autism Advisory Board of the Cambridge Center for Behavioral Studies.

Anne Higgins
Director Professional Development Division
College of Extended Learning
University of New Brunswick
506-453-4851
eah@unb.ca



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