Election 2014: Will Severely Autistic Adults Continue to Suffer Under An Alward Government As They Have Since 2010?

New Brunswick has made progress in early intervention and student autism services but adult autistic needs, particularly severely autistic adults, have been ignored, completely ignored during the last 4 years.  The article below originally appeared during the last provincial election period posted on Tuesday, September 14, 2010.   Zero progress, absolutely zero progress has been seen in adult autism care under the Alward government. 

Everyone has their priorities but for David Alward adults with severe autism disorders are not even on his list. Today we still banish severely autistic adults to the Restigouche Psychiatric Hospital in Campbellton on the northern border of NB with Quebec far from families; most of whom live in southern NB in Fredericton, Saint John and Moncton. 

Community? Not for those with severe autism disorders; not in NB. I will not try to tell anyone else how to vote in the looming provincial election but if you vote for the Alward, Carr, Flemming,  Dube, Higgs government you will likely be voting for the continued oppression of severely autistic NB adults. 

 I would love to be proven wrong, I would love to see David Alward, Jody Carr and other Conservative politicians actually live up to their rhetoric  instead of singing community cliches and posing for photo ops.  I would love to see the Alward  party  build an autism facility in Fredericton, envisioned by Paul McDonnell, Ph. D., near the autism expertise already developed at UNB and the Stan Cassidy, a centre that could also work with enhanced group homes around the province, an autism network that would actually bring severely autistic adults into the NB community.   But I am not holding my breath waiting for an awakening in the Conservative Party of David Alward,  Jody Carr, Madeline Dube, Ted Flemming and Blaine Higgs that has acted in such disregard for severely autistic adults.

Autism expert Paul McDonnell Professor Emeritus (Psychology, UNB), Clinical Psychologist, and  a  major force behind the great progress that has been made in provision of preschool and school autism intervention and education services in New Brunswick,  has provided expert analysis of autism issues to the CBC. In two features, Paul's analysis, and his interview by CBC reporter Dan McHardie, Paul speaks about the leadership role New Brunswick has taken on in providing excellent preschool and school autism services but also points to  the need to address youth and adult autism needs including adult care residential needs as set out in the interview:

"Our greatest need at present is to develop services for adolescents and adults," McDonnell writes.

"What is needed is a range of residential and non-residential services and these services need to be staffed with behaviourally trained supervisors and therapists."

...

"In the past we have had the sad spectacle of individuals with autism being sent off to institutional settings such as the Campbellton psychiatric hospital, hospital wards, prisons, and even out of the country at enormous expense and without any gains to the individual, the family or the community

Among the reforms that the UNB professor is calling for is an enhanced group home system where homes would be connected to a major centre that would develop ongoing training and leadership.

The larger centre could also offer services for people who have mild conditions. But, he said, it could also be used to offer permanent residential care for individuals with more severe diagnoses.

"Such a secure centre would not be based on a traditional 'hospital' model but should, itself, be integrated into the community in a dynamic manner, possibly as part of a private residential development," he writes.

"The focus must be on education, positive living experiences and individualized curricula. The key to success is properly trained professionals and staff."

Autism Disorders and Transition To and Through School: A Small Suggestion

Conor visiting and preparing for his transition from middle school to high school by 

visiting the grounds of the school and seeing the Leo Hayes High School building. 

I have commented on transition planning in the school system before and I don't know if what we did with our severely autistic, profoundly developmentally delayed son can be done under the new Department of Education and Early Childhood Development   policies   or the collective agreement negotiated by Finance Minister Higgs with CUPE Local 2745, the union representing aides.  The essence of what we did though was to show Conor what his next year would look like in advance of the changes.  When we were transitioning Conor to high school we took him for visits to Leo Hayes High School while he was still in middle school.  The aide who worked with him at middle school went with Conor for these meetings where he met his aides who would start with him at LHHS and faded out during some of the visits.  On weekends we simply took him to the school grounds to get used to seeing the school he would be at the next year.   We had done the same thing when Conor transitioned from Nashwaaksis Memorial (grade) School to Nashwaaksis Middle School.   

For some students with autism visits to their next school may, as it did with Conor, help reduce their anxiety about the transition.  

Have Higgs and Harding Sacrificed New Brunswick Students with Autism?

Have Minister Blaine Higgs and CUPE Local 2745 President Sandy Harding 

Sacrificed New Brunswick Students with Autism?

It appears that the first New Brunswickers asked to sacrifice, or to be sacrificed, in the austerity era formally ushered in yesterday with the Budget Speech by Finance Minister Blaine Higgs may be New Brunswick students with autism disorders. Unnoticed by important news sources like the CBC the government announced the day before the budget speech the ratification of a new collective agreement with CUPE Local 2745.  The new collective agreement is not yet available publicly but it has been indicated to me that the agreement will give the edge to seniority over qualifications, experience, special circumstances  or special relationships between teacher aides who will now be called education assistants and students with autism disorders.

What this means, if correct,  is that when the school year starts education assistants will be assigned to posted job positions solely on the basis of seniority.  An education assistant who has received the UNB-CEL Autism Intervention Training program will lose the opportunity to work with and help a student with autism if an education assistant who has been working longer as an aide applies for the position.  Autism is a neurological disorder which requires special learning approaches and understanding of complex and at times challenging behavior.  But, if the information proves correct, it appears that Finance and Human Resources Minister Blaine Higgs and CUPE Local 2745 President Sandy Harding have other adult interests more important to consider and are willing to sacrifice the best interests of New Brunswick students with autism disorders.

As a lawyer my work has focused on labour law and labour relations for a quarter century, both federally and provincially and included time as a legal adviser to the Canada Labour Relations Board, now called the Canada Industrial Relations Board.  Most collective agreements strike a balance between seniority and qualifications  by assigning a standard of qualifications and position specific ability to be met before seniority kicks in. Others assign the position to the most qualified person for a position with seniority acting as a tie breaker where candidates are equally qualified.  Very few agreements simply give a position to the person with the most seniority regardless of qualifications or ability as the new CUPE 2745 is rumored to do.

The NB government web site provides little details about the new CUPE 2745 collective agreement except the financial bottom line:

We are pleased that this agreement has come together and is supported by CUPE's membership," said Finance Minister Blaine Higgs, who is also minister of human resources. "It is clear that New Brunswick has severe fiscal challenges and it is encouraging to see a willingness from both sides to work together to reach agreements that are fair to both employees and taxpayers."

The agreement provides two years of zero-per-cent wage increases, followed by general economic increases of two per cent in each of the following two years. As well, the contract increases the guaranteed hours of work for teachers' assistants to 30 hours per week by September 2012. Government and union representatives will officially sign the new collective agreement in the near future.

I recognize that my sources could be wrong.  The union members who voted to ratify, or accept the new collective agreement were apparently not even given a draft copy of the agreement before voting on it.  Basically they were given, at least in some locations, a summary on a screen. The collective agreement should ultimately be made public and available on line.  

The information is unlikely to be proven wrong though.  CUPE Local 2745 President Sandy Harding  has long advocated for seniority to be the only consideration in assigning teacher aides, now education assistants, to positions working with children with disabilities including  students with autism.  She has long put the interests of adults, the most senior members of CUPE Local 2745, over the interests of students with autism disorders.  

If this collective agreement grants Local 2745 President Harding her long held wish to promote seniority over the interests of students with autism then it would explain why  she  pushed a collective agreement with such little financial gain for her Local 2745 members. It  has no wage increase for two years and more importantly, an increase in the  maximum hours an education assistant can work to 30 hours a week, one hour short of the 31 weekly hours required to qualify for the full-time defined benefit pension plan.

I hope my sources are wrong.  I hope I am wrong. I would be very happy to issue a correction, and an apology, to Finance and Human Resources Minister Higgs and CUPE Local 2745 President Harding if I am wrong.  I hope that the new CUPE Local 2745 collective agreement with the Province of New Brunswick does not make seniority the only, or the dominant, consideration in determining who works with New Brunswick students with autism disorders and other challenging disabilities.  The UNB-CEL Autism Trained  Teacher Assistants have been vitally important to ensuring that autistic children, including my son, receive a real education and develop to the best of their abilities. To effectively eliminate their contributions in the name of seniority will hurt the development of many of New Brunswick's autistic students.

For now though it appears that Finance Minister Higgs and CUPE Local 2745 President Sandy Harding have sacrificed New Brunswick children with autism in order to meet their adult, organizational goals.  It appears that the first New Brunswickers thrown off  the life boats as our government negotiates stormy fiscal waters will be the vulnerable ... students with autism disorders and other serious disabilities.