http://www.cdc.gov/od/oc/media/transcripts/t060504.htm
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Autism News & Opinion
Posted by
Autism Reality NB
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6:34 AM
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The Autism Society New Brunswick Annual General Meeting is scheduled for :
Saturday, October 14
From 1 to 4 pm
Tilley Hall, Room 5, UNB Campus , Fredericton
Posted by
Autism Reality NB
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11:39 AM
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In a previous post I commented on the Autism Exodus in Canada. Some families with autistic children are moving to Alberta which has the money to fund autism treatment. The Autism Exodus highlights the need to develop a national autism strategy. In New Brunswick Fredericton MP Andy Scott has been working hard to do just that. The following is the web site for the Canada Autism Petition which is an attempt to ensure medicare coverage for autism treatment across Canada. MEDICARE FOR AUTISM NOW! SUPPORT BILL C-211 This site is dedicated to the thousands across Canada who are living with the difficulties of autism. Autism is a medical condition and science based, highly effective treatment exists. And yet across our great country provincial and federal governments have steadfastly refused to allow these people to access to our 'universal' health care system for their treatment needs. For people living with autism the only thing that is universal about our national health care system is that they are universally excluded. And while parents and families fight to save the futures of their children, go bankrupt paying for treatment, collapse under the financial and personal pressures....governments do nothing but make it worse. Please download a copy of our petition and have it filled out. Ask your MP to table it in the House of Commons. Tell them it is time for governments to stop the discrimination and give these people access to health care. Ask you MP to Support Bill C-211. This bill will amend the Canada Health Act and require provinces to fund treatment for autism.
http://www.canadaautism.com/
Posted by
Autism Reality NB
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12:04 PM
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In Canada October is Autism Awareness Month. The Autism Society New Brunswick will be holding its Annual General Meeting on Saturday, October 14 from 1 to 4 pm at Tilley Hall, Room 5, UNB Campus , Fredericton. Also, look for the ASNB awareness commercial which will be shown on CTV/ATV beginning October 2 and running as often as finances permit. The commercial will focus on early signs of autism and the importance of early diagnosis and treatment. A big thank you to Charlotte and Luigi Rocca of Moncton for making this happen.
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Posted by
Autism Reality NB
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7:27 AM
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The Telegraph Journal today reports that RCMP are reviewing the use of a Taser on a teenager at a party in Hampton. Two RCMP officers were investigating a noise complaint and claimed that one teenager refused to calm down despite several warnings and became "combative" and "resistant". There is no indication of any other factors that might have been involved in the youth's alleged combativeness. Anyone who has raised or cared for an autistic child for any length of time though will likely have seen "combative" or "resistant" behavior. Some autistic persons lack communication skills and understanding which can result in "resistant" or "combative" behavior in situations where they are overstimulated or overwhelmed particularly in a high stress situation involving strangers. Do a google web search using the words "taser" and "autistic" and you will find pages of stories involving the police use of tasers to subdue autistic persons, sometimes resulting in serious injuries and even death to the autistic person. Here are url's for some examples:
http://tinyurl.com/l6qbf
http://tinyurl.com/fggp7
http://tinyurl.com/hg58y
http://tinyurl.com/jqoqg
http://tinyurl.com/em524
I have no idea what the RCMP and other NB police forces' policies are on use of tasers and whether they take into account the possiblity that some intended recipients of taser fire might be autistic or have other mental challenges. But I am going to try and find out. If anyone knows what the policies are at present please feel free to offer your comments and information.
Posted by
Autism Reality NB
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6:50 AM
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Posted by
Autism Reality NB
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1:12 PM
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My buddy, the reason I advocate for autism services in New Brunswick.



Posted by
Autism Reality NB
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5:52 PM
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Posted by
Autism Reality NB
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11:40 AM
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Team Lord has made some memorable though discouraging comments about autism over the past 7 years. Here are some of the more notorious:
Elvy Robichaud - "I have enough on my plate right now'
"I don't have a government position on it yet … I have enough on my plate right now as health minister with regional health authorities, introducing nurse practitioner legislation and community health centres. . . . There's only so much we can do every day."
"Nothing is lost. Remember if you don't spend it, it doesn't mean the money is lost. It (just) means you haven't spent it and you can use it for other health care services that are necessary"
Posted by
Autism Reality NB
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10:08 AM
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Posted by
Autism Reality NB
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7:39 AM
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Posted by
Autism Reality NB
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10:10 PM
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The following statement has been released by Lila Barry, President
of the Autism Society New Brunswick:
Let me say, Autism Society New Brunswick is a non-partisan,
non-profit volunteer organization and our mission is to advocate
for best quality services for persons with autism within the
Province of New Brunswick.
We have asked all parties to present their platform specific to
autism.To date, Sept. 12, we have received no reply from the New
Democratic Party. There are over 4000 persons living with autism
in NB. It is the belief of the autism community that such an
important issue must be addressed by all parties prior to the
election.
ASNB acknowledges the positive steps of the Progressive
Conservative Party have undertaken thus far. For these efforts
we are grateful. The progressive conservative government
implemented therapy services for children under age 6, provided
training for autism support workers, provided funding for a
specialized autism team at the Stan Cassidy Centre, and is presently
training 89 Teacher Assisatants and Method and Resource Teachers
at UNB-CEL. These are all excellent starts, a good beginning.
The Progressive Conservative Party is committed to:
1)implementing the recommendation of the Wayne MacKay Report
2) more training for Autism Workers/Clinical Supervisors
3) investment in Assitive Technology
4)more training for Teacher Assistants outside of instructional hours
5) work with Autism Society
First, the autism society has serious reservations in the Wayne Mackay
Report specific to autism. The report recommends the development of a
provincial autism strategy to report back in 2 years with a further
year to study alternatives. Thus we are looking 4-5 years before kick
starting MacKay's recommendation. Our children can not wait 5 years for a
meaniful,quality education. Secondly, we embrace more training for autism
support workers, and clinical supervisors. However, we need specific
information to numbers to be trained and a time frame. Thirdly, training
teacher assistants outside of instructional hours. We have serious concerns.
There is no reference to the nationally recognized autism intervention
program, UNB-CEL. Again we require a commitment to numbers, time frame and
specific training. Fourth, there is no mention of developing a strategic
plan for adult services, specific to adult residential care.
ASNB has received the following commitment from the liberal party.
1) Funding for existing autism therapy programs for children under the
age of 6 will continue
2) An additional 2.5 million dollars yearly have been set aside to
expand upon autism services.
3)1 million of the 2.5 million will target training 400 teacher
assisants and method and resource teachers at a training rate of 100 per
year over four years at UNB-CEL
4) remaining 1.5 million to attack specific issues as increase therapy
funding for young children, training through UNB-CEL, and
5) the deveoplment of a long term service plans for autistic adults
including residential care
6) ASNB will be a full member in the development of autism strategies.
We are encouraged, seeing this as a very positive direction. ASNB
views the liberal platform very favorably.
Respectfully,
Lila Barry, President
Autism Society New Brunswick
Posted by
Autism Reality NB
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1:09 PM
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Everyone wants their child to receive a good education and parents of autistic children are no different. For the most part autistic children have received only babysitting services instead of the quality learning education that all school children in New Brunswick have been promised. Now, things could change for the better. Shawn Graham's Liberal Party has made a very solid commitment to provide UNB-CEL autism training for 100 additional teaching assistants and Methods and Resource teachers each year for four years.
The UNB-CEL course was developed with input from the ASNB. Offered first at the pre-school level it gained national recognition and has helped supply the badly needed Autism Support Workers and Clinical Supervisors to work with pre-school autistic children. The course has been modified to provide training in the context of the school environment. This will allow hundreds of autistic school children to receive a real education. The Liberals have made a very solid commitment that will go along way towards helping autistic children live a fuller, richer life.
A big thank you to Shawn Graham and the Liberal Party for this strong commitment to educating autistic children.
Posted by
Autism Reality NB
at
4:03 PM
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There are an estimated 4000 persons in New Brunswick with a condition on the Autism Spectrum of Disorders. These people are in desperate need of effective evidence based early intervention, real educational opportunities and decent residential care provided by professionally trained caregivers in centres accessible to their family members. The Liberal platform at least mentions autism in promising to implement the seriously outdated (2001) Interdepartmental Committee report on the delivery of autism services and the fundamentally flawed MacKay Inclusion Report recommendations. Neither the NDP under the leadership of Allison Brewer nor Team Lord have even mentioned anything remotely connected to the issues confronting the community of 4000 autistic New Brunswickers, their families and caregivers. It appears that in the Lord and Brewer scheme of things autistic children and adults are simply not worth mentioning.
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Posted by
Autism Reality NB
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5:41 PM
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There is currently a cross
Because of differences in how the provinces fund autism treatment some families of autistic children are migrating to
Kapuskasing Northern Times - August 30, 2006
Autism ExodusThe great Oil Patch Exodus has thousands of Canadians relocating to the booming economy of Alberta hoping for a better life.
But there is a silent exodus to the centre of the country for another reason as well, one that has gotten little press. It is an exodus based on autism and it is affecting a Kapuskasing family.
Posted by
Autism Reality NB
at
9:38 PM
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After the Supreme Court of Canda decision in Auton and the Ontario Court of Appeal decision in Wynberg it appeared as though Canadian courts had turned their backs on autistic children. There may have been a win since then in BC, according to a recent news report. I have not been able to track down the actual court decision yet to confirm but if correct this could be another step forward in ensuring that autistic children receive a real education.
CKNW Local News | ||||
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Posted by
Autism Reality NB
at
9:54 AM
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Posted by
Autism Reality NB
at
8:36 AM
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Posted by
Autism Reality NB
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1:20 PM
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The MacKay Inclusion Report is being hailed as a roadmap for the strengthening of inclusive education in
MacKay recommends, 46(a), development of a provincial autism strategy – to report in no later than 2 years. Then it recommends, 46(b), that within 1 year of completion of the provincial autism strategy, the government review responses to autism in other provinces and review the pros and cons of the different models used to respond. We are now up to 3 years of delay. Assuming that the MacKay timelines are rigidly adhered to and that the autism strategy study does not fall prey to bureaucratic inertia and stalling there would still be further time required to implement the strategy, a minimum of 1 to 2 years. Essentially, the MacKay Report recommends waiting 4-5 years before ensuring that autistic children receive a real education. For the autistic children affected by MacKay’s ponderous delays those years will never be recovered. Their lives will never be as full and rich as they might have been had they received a real education during those years.
Sadly, these recommendations are unnecessary. They do not reflect the work that has been done in New Brunswick in the past several years, the Interdepartmental Committee that took almost 3 years to review the delivery of autism services, the meetings between the Autism Society New Brunswick and several Ministers of Education, the Dialogue on Education meetings that have taken place or the development by the Department of Education, in conjunction with the Autism Society New Brunswick and the Family Autism Centre for Education, of the Educating Students with Autism Handbook.
The MacKay Report also largely ignored the development by the
These MacKay recommendations for educating autistic children are not based on developments on the ground in
Posted by
Autism Reality NB
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5:45 AM
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I am a lawyer and an active member of autism organizations in
1. Document your child’s condition and school requirements. If your child is diagnosed with an autism spectrum disorder make sure that the school has a copy of the diagnosis. This may seem obvious but in some cases the school and district have been able to point out that they were unaware of any actual diagnosis of autism disorder.
2. Medical, Psychological or Therapeutic Assessments – If you think your child needs a Teacher's Assistant to learn in the school environment you should ask any pediatrician, psychologist, occupational therapist, speech language therapist or behavioural interventionist who is working with your child if they agree and would provide a written recommendation for a TA and present their recommendations to the school.
3. Be a Parent Advocate – Most parents know their autistic child better than most professionals. Do not be afraid to speak up – politely – but without fear - to express your view of what your child requires.
4. Autism Advocates – If you know an autism advocate or fellow parent of an autistic child who would be willing to attend a meeting with the school you should bring them along. They can provide you with moral support and confirmation of your experiences as a parent in describing what your child requires.
5. Safety – For many autistic children a TA is a must for safety reasons alone and this must be stressed if it is true for your child. An autistic child may not appreciate the many dangers posed by school, playground and nearby streets.
6. Individual Learning Method – If your child requires an individual based learning method using Applied Behavioural Analysis (ABA) techniques, or other individual based instructions, emphasize this with the school. For
7. IEP or SEP – If the school or district refuse a TA for your child do not sign off on the IEP/SEP for your child or if you do sign put a note beside your signature stating that you still require a TA for your child. Otherwise the school and district will argue that you agreed that a TA was not necessary.
8. Appeal – If a TA is denied for your child be ready to appeal right away under the Education Act. The School should have informational pamphlets available and forms explaining the appeal process to you. You might also want to consider hiring a lawyer to work with you on the appeal process.
Conclusion – Preparation, pressure and persistence are all required to obtain and keep a TA for your autistic child. It is a long tough fight and it is one that almost all of us have to go through to one extent or another. Stay calm but firm. Do not overreact emotionally or unduly antagonize school officials. You need their help and most want to help. Getting overheated gives an excuse to the few who do not want to help to refuse what you are looking for. Stay calm and persist.
Harold Doherty
Posted by
Autism Reality NB
at
8:48 AM
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The date, time, and place of the 2006 ASNB Annual General Meeting is set:
Posted by
Autism Reality NB
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4:10 PM
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Leadership Mr. Lord?
Posted by
Autism Reality NB
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8:31 AM
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