tag:blogger.com,1999:blog-33052404.post7634795059063591083..comments2024-02-13T21:31:57.980-04:00Comments on Facing Autism in New Brunswick: Autism Treatments - Keeping a Disciplined but Open MindAnonymoushttp://www.blogger.com/profile/05838571980003579163noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-33052404.post-4774558881317102702007-08-10T11:12:00.000-03:002007-08-10T11:12:00.000-03:00The older post has no comment past mine. I hope I ...The older post has no comment past mine. I hope I am not the ND blogger you mean, Mr. Doherty. I DO think the two proposed treatments ARE quackery, but I do not think this is your fault. And I didn't even mention the word "quackery".<BR/>Your June 26 post reported a study on a possible treatment of fragile X that ISN'T quackery. It is published in a high-quality journal. It includes appropriate controls. And, most importantly, it is tested on an animal model before a human study is even conceived. It is difficult to say whether something good for people with fragile X will come out of it. I hope they will eventually have some biochemical means to make their life easier, as people with diabetes have their insulin and people with PKU have their diet. But even if this animal study fails to bring useful results for human patients, it is still a good study.<BR/>By contrast, quacks rushing to treat autistic children don't even attempt to test the efficacy and safety of their treatments on an animal model. They are eager to experiment directly on vulnerable humans. This makes me sick.Maya Mhttps://www.blogger.com/profile/10877457709995369246noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-18075604267941938502007-08-09T10:17:00.000-03:002007-08-09T10:17:00.000-03:00Did my last message get lost?Did my last message get lost?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-35714206329368995902007-08-08T17:50:00.000-03:002007-08-08T17:50:00.000-03:00Thank you for posting a brave piece.i see it as an...Thank you for posting a brave piece.<BR/>i see it as an olive branch between two schools of thought as it is clear that some treatments work for some kids. <BR/>I have a boy who has benefited hugely from dietary and non invasive biomed treatment, We have good data to show the benefits.<BR/>I laugh when i hear that treatments are not proved and peer reviewed, the fact is that parents are doing this in large and small groups through out the world. i can ask a question on a group about a specific treatment or behavioural issue and within an hour, I have good advice based on experience from several real parents. Then I am free to make the choice for my child.<BR/>I feel that the parrents are actually a couple of years ahead of medicine on the treatment of health issues that autistic children face. <BR/> <BR/>ND make a lot of noise on the internet about advocacy and rights, but from my point of view do little to address the world wide shortfalls in both education and health care for very autistic kids. but instead pursue quack doctors or tragic stories of abuse,or there own self promotion and fame. <BR/>Kev could be a real force for good if he would campaign for education and heath care in the UK but instead he chases Dr Wakefield , its such a waste.<BR/><BR/>again I applaud you Harold, I speak for all the proud parents who are just trying to do the best for their kids (without harm).Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-83729020969848855532007-08-08T16:16:00.000-03:002007-08-08T16:16:00.000-03:00Sorry joseph but you are wrong on all counts. Your...Sorry joseph but you are wrong on all counts. Your view that the hundreds of studies demonstrating gains for autistic children are practically worthless is inconsistent with evidence based standards of medicine and education, and with state, national and professional associations. Not to mention the thousands of parents who seek ABA for their autistic children or have their children enrolled in ABA programs. Everyone is wrong except joseph and the Neurodiversity movement? I don't think so joe.<BR/><BR/>The lesson from Secretin? You just jumped off the Empire State Bldg with that comparison joseph. Nothing remotely comparable between the large body of evidence supporting ABA and Secretin.Anonymoushttps://www.blogger.com/profile/05838571980003579163noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-79656274019212329522007-08-08T13:04:00.000-03:002007-08-08T13:04:00.000-03:00By hundreds of studies, you mean one (unsuccessful...By hundreds of studies, you mean one (unsuccessful) randomized trial and 99 or so non-randomized trials with varying degrees of outcome, right?<BR/><BR/>Is it really "hundreds" of controlled trials? I think you're exagerating.<BR/><BR/>My position is that in autism a non-randomized trial is practically worthless and often misleading. If possible a trial should be placebo-controlled and double-blind. That's the lesson from Secretin, and it doesn't matter if there are thousands or millions of studies if none of them follow a methodology that is interpretable.Anonymousnoreply@blogger.com