tag:blogger.com,1999:blog-33052404.post7008852061664210158..comments2024-02-13T21:31:57.980-04:00Comments on Facing Autism in New Brunswick: Kevin Leitch Goes Overboard, Opposes Interests of Children with AutismAnonymoushttp://www.blogger.com/profile/05838571980003579163noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-33052404.post-32397736258317448992009-11-25T21:06:45.116-04:002009-11-25T21:06:45.116-04:00ASAN is more interested in preventing Shiny Aspies...ASAN is more interested in preventing Shiny Aspies from being aborted, even though that is not anywhere in the near future, than saving those with Autistic Disorder in institutions (e.g. JRC and state institutions) from severe psychological and perhaps even physical and sexual damage in the present that will leave them scarred for a lifetime (as in, they will be "permanently scarred.")Stephaniehttps://www.blogger.com/profile/12540927559726674184noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-18029513987942891252009-11-24T17:41:59.629-04:002009-11-24T17:41:59.629-04:00As I think everyone has said clearly: ASAN is not ...As I think everyone has said clearly: ASAN is not the sum total of adults with autism!! There are many thousands of adults with autism, who have many different levels of challenge and many different perspectives. <br /><br />Obviously it wouldn't be helpful to have a non-verbal adult with autism on the Autism Speaks board. And having an ASAN member would only create a time sink of debate. <br /><br />But there are many adults on the spectrum who are capable of advising on issues such as housing, community programs, family issues, employment, etc. What is to be gained by excluding (and, IMHO, disrespecting) the very community for whom you are working?<br /><br />LisaLisa Jo Rudyhttps://www.blogger.com/profile/07517170138121456391noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-66026167041694999092009-11-24T16:42:18.720-04:002009-11-24T16:42:18.720-04:00I really only think it's fair that ASAN let an...I really only think it's fair that ASAN let an NT parent with opposing views onto <i>their</i> board of directors if they want a high-functioning autistic person on Autism Speaks board of directors. Otherwise, they can't complain.<br /><br />This is another double standard for ASAN: protesting Autism Speaks because an autistic isn't on their board of directors but not caring one bit that everyone on their board of directors holds the same views as they; the group is starting to become too fickle for me to take seriously. <br /><br />First it was Dr. Mottron and Michelle Dawson taking half a million dollars from Autism Speaks for research and saying it is okay, even though Michelle has stated that she detests Autism Speaks, but "science isn't politics," according to Michelle. Now they complain that Autism Speaks has no autistic people on their board of directors but ASAN doesn't seem to care that there are no NT parents of opposing views on their board of directors. What next?<br /><br />Maybe someone should organize a protest towards ASAN to get an NT parent with opposing views on their board of directors.<br /><br />Nothing about us without us.Stephaniehttps://www.blogger.com/profile/12540927559726674184noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-57535480441552208542009-11-24T15:30:31.651-04:002009-11-24T15:30:31.651-04:00Autism speaks member Jon Shestack weighed in on a ...Autism speaks member Jon Shestack weighed in on a comment on my blog about how members of ND help no one by serving on the board of AS. I wrote <a href="http://autismgadfly.blogspot.com/2009/10/as-board-member-gives-take-about.html" rel="nofollow" rel="nofollow">a post</a> about this on my blog. Autism speaks has an autism in the workplace promotion yet has no paid employees with autism in their organization nor for that matter has ever contributed to finding employment of anyone on the spectrum. Talk about neurodiversity's screwed up priorities, go figure! <br /><br />Ari Ne'eman nor other high functioning persons don't have insight into what persons like Jon Shestack's son, Dov who can't speak or dress himself go through, so claiming having autistics on the board of AS because they can relate to someone like this makes no sense.jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-75939644896300719212009-11-24T15:09:53.848-04:002009-11-24T15:09:53.848-04:00Just to be clear: I'm not advocating for ASAN ...Just to be clear: I'm not advocating for ASAN and Autism Speaks to somehow join forces! <br /><br />I am saying, however, that Autism Speaks is now addressing the needs of autistic people of all ages with grants, programs and advocacy - and I can't imagine why adults with autism (who, of course, would be selected by Autism Speaks) shouldn't be included in the process of guiding that work. Their experiences and perspective would be invaluable - and their inclusion would be a much-needed mark of respect.<br /><br />Lisa (www.autism.about.com)Lisa Jo Rudyhttps://www.blogger.com/profile/07517170138121456391noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-11595560037066964722009-11-24T14:57:57.428-04:002009-11-24T14:57:57.428-04:00Lisa Jo Rudy,
Are the adults that you have in min...Lisa Jo Rudy,<br /><br />Are the adults that you have in mind dedicated to finding the cure and prevention of autism - stated goals of Autism Speaks? Would the Cancer Society take on board cancer survivors who are against preventions and cures? And then in the interest of fair play, should bio-med parents of autistic children demand a seat at ASAN's table?Sandranoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-88271475778362055132009-11-24T14:09:02.230-04:002009-11-24T14:09:02.230-04:00Kev should really take another Blogging "holi...Kev should really take another Blogging "holiday" and leave it to his Anonimous friends to run his "news" site( how LBRB ever got listed on google as a news source is a greater mystery than why all these kids have autism) <br />Kev do really want to be do this for the rest of your life?? <br />Lisa <br />No Don't think they should have a place at the table, they have created their own seperate organisation, when NT parrents with opposing views are sitting as directors of their group, they can complain.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-12977115361905459012009-11-24T11:54:29.595-04:002009-11-24T11:54:29.595-04:00Don't you think Autism Speaks should consider ...Don't you think Autism Speaks should consider the possibility that adults with autism should have a place at the table? <br /><br />There are adults on the spectrum with all sorts of perspectives, so this isn't a "neurodiverse" question. But imagine if the American Cancer Society specifically did not include cancer survivors among its advisors... it just seems very strange - especially since I, at least, can't seem to even get a comment on the issue from Autism Speaks.<br /><br />LisaLisa Jo Rudyhttps://www.blogger.com/profile/07517170138121456391noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-17215698441472218002009-11-24T10:19:34.455-04:002009-11-24T10:19:34.455-04:00While they were protesting AS and getting shunned ...While they were protesting AS and getting shunned those in the State of Mass.... were attempting to hold onto what little services they have... http://susansenator.com/blog/2009/11/stop-bleeding.html<br /><br />Yep... ASAN gives a dang about autistic adults.... NOT!!!!!<br /><br />I see they are all writing about it in their blogs, lobbying gov'ts, getting themselves in the news.... NOPE... NADA...farmwifetwohttps://www.blogger.com/profile/02680758336779501712noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-44191833146896292802009-11-24T09:57:02.121-04:002009-11-24T09:57:02.121-04:00Different subject Harold (don't even get me st...Different subject Harold (don't even get me started about Kev-there is seriously something wrong with that man) but have you seen this one yet??<br /><br /><br />GlaxoSmithKline Recalls H1N1 Vaccine in Canada Over 'Life-Threatening' Allergy Risk<br />Tuesday, November 24, 2009 <br /><br /><br />Print LONDON — The pharmaceutical company GlaxoSmithKline says it has advised medical staff in Canada to not use one batch of swine flu vaccine for fear it may trigger life-threatening allergies.<br /><br />GlaxoSmithKline spokeswoman Gwenan White said Tuesday the company issued the advice after reports that one batch of the swine flu vaccine might have caused more allergic reactions than normal.<br /><br />She says the affected batch contains 172,000 doses of the vaccine. She declined to say how many doses had been administered before the advice to stop using them was given.<br /><br />White says GlaxoSmithKline wrote to Canadian healthcare professionals advising them to stop using the batch on Nov. 18. She says a total of 7.5 million doses of the vaccine have been distributed in Canada.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-27267937025985424692009-11-24T07:39:14.252-04:002009-11-24T07:39:14.252-04:00Who's Kevin Leitch???Who's Kevin Leitch???Blogger Charles LeBlanchttps://www.blogger.com/profile/13904161889628998531noreply@blogger.com