tag:blogger.com,1999:blog-33052404.post6918760899104786342..comments2024-02-13T21:31:57.980-04:00Comments on Facing Autism in New Brunswick: No Autism. Today, Conor's Grand Mal Seizure Scared The Hell Out Of MeAnonymoushttp://www.blogger.com/profile/05838571980003579163noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-33052404.post-69560780964554944402012-11-26T16:37:45.518-04:002012-11-26T16:37:45.518-04:00So sorry to hear about this! Very frightening!
H...So sorry to hear about this! Very frightening!<br /><br />Hoping all is well.<br /><br />HeatherMommie that Gets Ithttps://www.blogger.com/profile/04507449626509854193noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-24067392013841727842012-11-25T12:18:59.629-04:002012-11-25T12:18:59.629-04:00So sorry to hear this Harold. A similar thing hap...So sorry to hear this Harold. A similar thing happened to our child last spring. It was terrifying to watch as this had never happened before either. Through many doctors visits we have discovered Dysautonomia issues and viruses trigger these problems. The MRI and EEG will be helpful. (I am assuming they did a CT at the ER right afterwards).Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-2714782304204635622012-11-24T19:17:50.954-04:002012-11-24T19:17:50.954-04:00FW2 and UseTheBrains, thank you for your thoughts ...FW2 and UseTheBrains, thank you for your thoughts and conerns. Conor is doing well now. We wait further scheduled exams .. MRI and EEG to confirm epilepsy or any other possible condition. Anonymoushttps://www.blogger.com/profile/05838571980003579163noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-33489907722005941382012-11-24T19:16:18.091-04:002012-11-24T19:16:18.091-04:00Hi Kim, Conor has been back in full "Conor mo...Hi Kim, Conor has been back in full "Conor mode" since the day after the seizure. At the emergency ward of the hospital they took blood and urine samples and we are working now to get an MRI and EEG scheduled. <br /><br />We had observed what we thought might be Petit Mal seizures, eyes rolling back and Conor "absent" from the world for brief instances in the past. We did inform the developmental pediatrician but it was decided not to do any invasive examination since he was not falling or anything else remotely like last week. We are on full alert now and I strongly suspect epilepsy given the high autism co-morbidity but I guess the further examinations will tell the tale. Thanks for your concern. Hope all is well with you and your family.Anonymoushttps://www.blogger.com/profile/05838571980003579163noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-27914856197379629592012-11-24T16:57:12.458-04:002012-11-24T16:57:12.458-04:00I'm so sorry to hear this. I hope Connor is do...I'm so sorry to hear this. I hope Connor is doing well. Is this the first one he's ever had? If so, often a full blown tonic clonic seizure is a clue that Connor may have been having undetected sub-clinical seizure activity for a long time. Is he on any new meds that may have brought the seizure on? Is he sick? Did they do a cat scan or EEG? Anonymoushttps://www.blogger.com/profile/12462216625513839942noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-58287823818893474752012-11-20T15:22:55.160-04:002012-11-20T15:22:55.160-04:00Ah, more stuff to learn about, eh? Wulf started se...Ah, more stuff to learn about, eh? Wulf started seizures after Risperdal - he was part of the pediatric protocols; a statistically significant tie to seizure activity was found. Is that the autism, the risperdal, or what? I guess I'll never know. After Wulf burned our house down and ended up (briefly) in a residential school I found he was doped to the gills, presumably to treat the seizures (grand mal, absence) but in actuality to make life easier for staff. Keep an eye on Connor, and do your reading. Oh, and get a dog, if you can - our dog is an early warning system for seizures.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-58665878108259359772012-11-19T09:02:43.150-04:002012-11-19T09:02:43.150-04:00We feel for you and Conner, epilepsy is a frighten...We feel for you and Conner, epilepsy is a frightening disease. (I have always kept one eye open for signs in Ben, but nothing so far.)Usethebrains Godgiveyouhttps://www.blogger.com/profile/05026223483117357541noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-64614801707978528262012-11-18T17:50:40.592-04:002012-11-18T17:50:40.592-04:00Russ had a febrile when an infant - high fever - a...Russ had a febrile when an infant - high fever - and the teacher thought he had an absent one earlier this year not just his regular "ignore the world" thing he can do.<br /><br />Now you have me worried and I'm going to be watching as we go through puberty shortly. Anything is possible. My eldest lost all ability to concentrate (started at Xmas, and was put on Adderall in Feb) and this past summer (June to Aug) went into an major fight/flight/anxiety/sensory overdrive (was amazing and unbelievable all at the same time) that lasted until we started Strattera (the Adderall is at 5mg since it caused some really funky side effects but even after 2mths during the summer without it things just went downhill fast) at the end of August. Thankfully, he's regained the upper hand once more on his thoughts. <br /><br />Hopefully, for Connor it was nothing more than an "oops" and he's feeling much better. Will be thinking of you and yours and hoping all is well. farmwifetwohttps://www.blogger.com/profile/02680758336779501712noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-12677075233134794662012-11-18T15:21:15.410-04:002012-11-18T15:21:15.410-04:00Anonmyous 2:54
Yesterday was the first time Conor...Anonmyous 2:54<br /><br />Yesterday was the first time Conor suffered a Grand Mal seizure. We have seen what we thought were seizure activities, Petit Mals,but we were not sure. Anonymoushttps://www.blogger.com/profile/05838571980003579163noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-19134149587088329762012-11-18T14:54:38.923-04:002012-11-18T14:54:38.923-04:00Is this the first time Conor had a seizure? Regard...Is this the first time Conor had a seizure? Regardless of whether it is or isn't, I'm sorry you all had to go through that. It sounds very scary. I'm glad you received good treatment at the hospital. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-67780139699305019842012-11-18T07:48:19.390-04:002012-11-18T07:48:19.390-04:00Hi Emma. I didn't mean that there is no connec...Hi Emma. I didn't mean that there is no connection between autism and epilepsy. I do know about the high "co-morbidity" rate between autism and epilepsy. I just meant that autism itself was not on my mind yesterday. Seeing my son in the midst of a Grand Mal seizure I had to deal with the seizure period. We spent a good part of the day at the hospital having him examined and some preliminary tests taken. We don't yet know for sure that it was epilepsy induced but I understand that it likely was. Again, thank you for your comments. Anonymoushttps://www.blogger.com/profile/05838571980003579163noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-90331775314783831702012-11-18T07:05:36.742-04:002012-11-18T07:05:36.742-04:00HI, I am so sorry that all of you went through th...HI, I am so sorry that all of you went through that and I am glad COnor is ok. I am curious though why you say it isn't about Autism? People with Autism are at higher risk of seizures, especially during puberty. My son is severely Autistic and he has abnormal EEG activity - not clearly defined seizures but we are always on the lookout. Also, I have an autustic student (high school) who is mainstreamed and just started having grand mal seizures in the last year. His are controlled by meds now but when I met with his parents they said their neurologist told them this happens more frequently with people on the spectrum. <br />Best of luck. I hope it is a one time thing and none of you ever have to experience that again.Emmahttps://www.blogger.com/profile/02859791572622007142noreply@blogger.com