tag:blogger.com,1999:blog-33052404.post1256406939762848694..comments2024-02-13T21:31:57.980-04:00Comments on Facing Autism in New Brunswick: Autism Epidemic Denial : The Flip Side of the Autism Services Obtainment ArgumentAnonymoushttp://www.blogger.com/profile/05838571980003579163noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-33052404.post-13181463310286664662009-04-06T11:06:00.000-03:002009-04-06T11:06:00.000-03:00I'm going to have to say "I'm not surprised". At 2...I'm going to have to say "I'm not surprised". <BR/><BR/>At 2.5yrs old we were given Mild PDD - we should never have returned to the Dev Ped's. At 3 b/c he was just starting to talk we got "speech and language delayed with global delays". He got full preschool services - well speech and funding - and the school's comment "It's just a learning disability we don't have to do anything until Gr 3". No supports - NADA, except speech which he lost in Gr 2.<BR/><BR/>We fought for the next 18mths to get him re-dx'd by another Dev Ped. His dx currently reads "a mild form of autism spectrum disorder". Verbally I was told "NLD w/ S/L delay".<BR/><BR/>This was the end of Gr 1 and FINALLY we had access to the PDD teacher (school to school to school one) but still no supports. This is a TOILET TRAINED child that went to school in a pull-up - until I lost it at the end of Gr 1 - b/c of sensory issues in the bathroom that NOBODY would address.<BR/><BR/>After the psychometric test was completed this past Sept - Gr 4 - I was told I could have him re-dx'd. I looked at the psychometrist and said "The teacher has just asked for more EA time which he isn't going to get. The child FINALLY has OT support - that's another story - and an EA quarter time. You change that dx and we lose it all. The answer is NO."<BR/><BR/>We will look into it in Gr 8, at the next psychometry exam... he's doing AMAZING, right on Prov Standards - some above, some just below.... but I'm not parting with the supports just to remove AUTISM from his dx.<BR/><BR/>S.farmwifetwohttps://www.blogger.com/profile/02680758336779501712noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-17227851288827891262009-04-06T10:40:00.000-03:002009-04-06T10:40:00.000-03:00This is an interesting point. Here in Ontario, wh...This is an interesting point. Here in Ontario, where the CCAC (Community Care Access Centres) manage services, there are regions where people get fewer services by virtue of staff withholding information about services that are available. I had the great pleasure of telling a parent from another region about funding available to hire support for homeschooling...she was categorically told by her case manager that it did not exist, until I sent her all the legislation and pointed out the fact that in my home worked one such support person...and well paid at that. Unfortunately, it all depends on the case manager. I wonder how much pressure they are under to keep information at a minimum.Clairehttps://www.blogger.com/profile/13070297384173508509noreply@blogger.com