Autism and the Media - CNN's Shameful Non-Coverage of Severely Autistic People

CNN is continuing its shameful treatment of persons with severe Autism Disorder. If your only knowledge of autism was garnered from viewing CNN broadcasts or blogs you might think that autism is not a disorder, that every autistic person finds a way to communicate and that all autistic persons live happily ever after. You would not know that many persons with severe Autism Disorder, not Aspergers, not PDD-NOS, but Autism Disorder with profound developmental delays, require constant care and supervision. Some live their lives in residential and institutional care facilities. Some are assaulted in their residential facilities and lack the communication ability to express themselves to others. You would not know these things because CNN does not cover the "feel bad" autism stories, only the "feel good" autism stories.

CNN is a news organization and one would think that between interviews with Amanda Baggs they would find time to MENTION the fact that there are many seriously autistic persons who live desperate lives. They might, for example, cover the story of the middle aged autistic woman in a New York residential care facility who was physically abused and assaulted by attendants but lacked any means of telling anyone because she could not speak, write or type to tell what was happening to her. The situation came to light only after another attendant brought it to light and it was confirmed by video cameras in the facility. CNN might also tell the stories of autistic people who hurt themselves seriously by biting and head banging or those who simply wander off sometimes found safe and sound .... sometimes not.

CNN could tell you these stories but it won't because they are not "feel good" stories. Such stories are not as good for the ratings as the feel good stories. CNN would prefer to tell you, several times in fact, the story of Amanada Baggs an autistic persons diagnosed as an adult who types as a means of communication. CNN does not mention that Ms Baggs, before her autism diagnosis, and by her own voluminous internet writings, spoke to others, used speech to communicate, had friends, and attended Simon's Rock College for gifted young people. CNN does not give that full picture because it wouldn't make such a great feel good story. It makes for a much better story line to go along with the pretense that this person is non-verbal and communicates via technology.

At least CNN has started to feature autism stories other than Amanda Baggs of late. But once again it goes for the ratings oriented feel good stories. In Autistic poet gives rare glimpse into mystery illness CNN tells the tale of Tito Mukhopadhyay a non verbal Texas man previously thought to be retarded who can type and even write poetry. It is a genuinely heart warming story and I am happy for Mr. Mukhopadhyay and his family. And I do acknowledge that CNN does pay lip service to other more severe autism realities in this story ... with one line:

Whatever autism is, its symptoms range from a mild form to rendering individuals dependent on others for life.

Now if only CNN will actually do a feature on the lives of those autistic persons who CAN NOT communicate by keyboard or otherwise and who live their lives dependent on others. Maybe some day CNN will have an Anderson Cooper Katrina moment, cease with the "great job, Brownie" coverage of autism and show the world the harsh realities of life for those with serious Autism Disorder. Mr. Cooper has been part of the Amanda Baggs autism feel good spin so it probably won't come from him this time but maybe some younger journalist, a real journalist at CNN, will feel it is time to stop misleading the world about autism and show the whole range of autism realities. Real autism acceptance means accepting the harsher autism realities faced by many persons with Autism Disorder and their families.

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Autism and Tasers

Tasers can kill.

They do not always kill but they can kill. And they are painful. They are not used solely to protect police officers from serious threats. They are often used simply because a person is "non-compliant" with police officer commands. Lax standards for use of tasers has resulted in over use and placing of people at risk of serious pain and even death. Of particular concern for me, as the father of a 12 year old boy with Autism Disorder with profound developmental delays, is that tasers, in New Brunswick, as well as elsewhere, are used against persons with mental disorders including autism disorder.

Some people with autism disorders, including my son, have limited understanding of language. They can also become overwhelmed by overstimulation and excitement. All the ingredients necessary for a tasering if an autistic person is suffering from a meltdown in the presence of a police officer.

The United Nations Committee Against Torture in commenting on its periodic report of Portugal stated that Taser use constitutes a form of torture:

Portugal

Following its consideration of the fourth periodic report of Portugal ... The Committee was worried that the use of TaserX26 weapons, provoking extreme pain, constituted a form of torture, and that in certain cases it could also cause death, as shown by several reliable studies and by certain cases that had happened after practical use.

(Bold highlighting added - HLD)

Young people with autism disorders have been tasered to calm them down. In November 2005 in Florida a 15 year old Autistic youth was tasered after he was already down on the ground, handcuffed, with his legs tied, with four police officers on his back. The boy , although 15 functions at the level of a 6 year old. He was 5' 8", and 225 pounds but at the point the boy was tasered it is difficult to see how he could have been an actual threat to the four attending police officers.

In a November 2007 incident in California a 15 year old Autistic youth was Tasered after being approached by police and running across a roadway causing two cars to swerve. He was then tasered and handcuffed for his safety. The boy's mother contends the boy would have complied with the police instructions if he had not felt threatened.

Autistic youths here in New Brunswick have also been subjected to Taser force by police. In Connecting the Dots New Brunswick Ombudsman and Child and Youth Advocate Bernard Richard examined the criminalization of youth with mental disabilities in New Brunswick. One of the examples he used was that of Nichlas ( a pseudonym) a youth with Aspergers:

It was very clear from an early age that Nicholas had difficulty with over-stimulation. He became quickly aggressive if too much was going on around him. He’s been known to react strongly to people talking to him and to thinking they were shouting when, in fact,they were not. He was also hypersensitive to tags on his clothes. He had a fixation about singing “O Canada” at any time of the day or night. He would memorize the phone book and license plate numbers, particularly of police cars and fire engines. He obsessed over details about machines and inventions and over certain words, like “Rubbermaid.” He was very bright in reading and writing. Specialists recommended a specific approach with Nicholas: having a predictable routine, having a quiet place to go to wind down when he felt too much stimulation (“graceful exits”), breaking up his day so he could get less stimulation and more control, and reviewing rules and expectations before moving on to a new activity, because he cannot deal well with sudden changes.

Nicholas ultimately ended up in a an FCS (Family and Community Services) group home. There he ended up being tasered, on two occasions, by police:

A series of placements in FCS group homes, at home with his parents, at the Child and
Adolescent Psychiatric Unit of the Moncton Hospital, and at NBYC (even frequent
moves within NBYC) began for Nicholas. Twice the police “tasered” him. (Police use a
taser gun to immobilize an individual. The gun releases two barbed fish hooks that shoot
thousands of volts into the body.)

Mr. Richard's report is careful to point out the challenges faced by staff in the group home. He also highlights the lack of adequate placements and help for autistic youths like Nicholas. As a result of his behavior and arrests Nicholas ended up in jail on different occasions where he was repeatedly sexually abused by a guard who later pled guilty and was sentence for those abuses.

In the United States recently there have been two more incidents of deaths of persons shortly after they were Tasered. On March 20, 2008, a 17 year old Charlotte, North Carolina youth died after being Tasered by police at the grocery store where he worked. In Florida on March 21, 2008, a 41-year-old man, who wandered through traffic and violently resisted arrest, died after officers stunned him with a Taser.

Police officers perform vitally necessary services in society and they often face dangerous conditions in performing those services. But that in no way justifies distortion by anyone, including police, about the dangers of Taser use. The false belief that Tasers are harmless or cannot kill has resulted in overuse of Tasers. They are NOT used just to protect police officers or the public. University students being Tasered in a library, a man being Tasered for refusing to sign a speeding ticket,and a visitor to Canada being Tasered and dying shortly thereafter.

Autistic people are sometimes challenged in understanding language and even where they do can sometimes become over reactive to excitement and stimulation. They are inherently vulnerable to being Tasered for "non-compliance". In New Brunswick "Nicholas", a youth with Aspergers, was Tasered on two occasions.

I do not want to see my profoundly autistic son, now 12 and growing, shot with a Taser at any point. I can fully understand any person with a family member shot with a Taser pursuing every legal recourse against the officers in question and public decision makers who could permit this to occur, elsewhere or here in New Brunswick; including pursuing complaints to the United Nations which has already indicated that Taser use is a form of torture.

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Sloppy Autism Blogging - DMFP Gets It Wrong

I came across a link to one of my blog comments by daisymayfattypants of A Life Less Ordinary in which DMFP offered the following interpretation of one of my commentaries to which she had linked:

Based on a blog I just read, some parents of children with more severe autism don't consider our "high-functioning" children to be "truly" autistic. No, my son does not bang his head or try to gouge out his eyes, and no, he does not have severe developmental delays--his are moderate at worst. His intelligence test scores are wildly all over the map--in retardation territory for some things and in the highest percentiles for others. His manifestations of atpyical neurological wiring are there, and they meet current criteria for autism. I personally am not seeking a "cure" for him and don't think he needs one. Some modifications, yes. But I would think that about any six-year-old boy, regardless of his internal wiring.

The problem with DMFP's observation is that I never said that high functioning autistic children are not "truly" autistic. At no time have I ever said that persons with high functioning autism or Aspergers are not "truly" autistic as DMFP erroneously indicates. Of course DMFP's mischaracterization of my comment probably made for more entertaining reading.

Fiction is often a juicier meal than fact.

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Missing 17 Year Old Youth With Aspergers Found Safe in Manitoba

Sometimes the news is good. RCMP are reporting that a 17 year old youth with Asperger Syndrome who had gone missing without gloves or a toque has been found safe. He is receiving medical attention but is reported to be in good health.

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Vancouver Sun - The Many Faces of Autism

One fundamental point which is repeatedly ignored in discussions, debates and arguments over autism is that "autism" as discussed in the media is a spectrum of disorders which includes autism disorder and other related disorders eg. PDD-NOS, Aspergers. There are many faces of autism, many different characteristics. The Vancouver Sun has published a balanced and understandable overview of autism disorders and promises to present a series of stories portraying different aspects of the spectrum of autism realities.

http://tinyurl.com/2jxw2l

"To understand the many faces of autism, first consider what it is not

Pete McMartin, Vancouver Sun

Published: Saturday, April 21, 2007

........

Simply put, there is no one profile that fits those diagnosed with autism. So, to define what autism is, it might be best by pointing out what it is not.

IT IS NOT A MENTAL ILLNESS OR A DISEASE.

It is a neurological and, ultimately, a biological disorder that affects the normal development of the brain in areas of social interaction, communication and sometimes cognitive skills. Usually, that disorder manifests itself before the child reaches three. (More on those symptoms and their diagnosis in a later instalment.)

THE CAUSES OF AUTISM ARE STILL UNKNOWN.

.....

AUTISM IS NOT A SINGULARITY.

It is a spectrum of disorders. On that spectrum are five related disorders, the three most common of these being classic autistic disorder (AD), pervasive developmental disorder not otherwise specified (PDD-NOS) and Asperger's syndrome. They share some behaviours but not others. Those with AD, for example, are often withdrawn and can be completely non-verbal, while those diagnosed with Asperger's syndrome can have normal verbal and academic skills but have extreme difficulty interacting socially with others.

THERE IS NO MENTAL STANDARD OR MEDIAN FOR THOSE ON THE AUTISM SPECTRUM.

Some have below-average intelligence, some are average and some are above average.

Additionally, mental abilities can be uneven. A person on the autism spectrum might be able to do complex math but be unable to tie his or her own shoes.

Some are capable of holding jobs and of living independently or semi-independently; some have the intellectual capacity to work but not the social skills to make their way in the work environment; some must receive 24-hour care their entire lives.

AUTISM IS NOT CURABLE.

It is a life-long condition. As one parent of a 12-year-old girl diagnosed with severe autism said:

"Parents have to understand:

"This isn't a sprint. It's a marathon."

The initial symptoms, however, can be ameliorated through a combination of intensive early childhood therapy and, it has to be said, the fierce and protective love of parents and family.

See www.VancouverSun.com for more from the six-day special feature

TODAY:

The story of a severe case, and life at home with an autistic child.

MONDAY:

Two mothers, their tears, and the sacrifices they must make living with autism.

TUESDAY:

How the health care system discriminates against those on low income.

WEDNESDAY:

Immigrants and the special challenges they face in dealing with autism.

THURSDAY:

The high cost of therapy, and a mother's determination.

FRIDAY:

Two autistic teens and their families face an uncertain future."

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Grand Opening - Atlantic Behavioural Centre - Moncton, NB

Grand Opening Celebration


"Children become that which they do and
get better only at that which they practice." - Aristotle.


You are cordially invited to attend the Grand Opening of the Atlantic Behavioural Centre. The event will be held at our centre's new location - 700 St George Blvd, Moncton - Saturday March 31st from 12:00 to 5:00 pm. We hope that you will join us in celebrating this new endeavor.

The Atlantic Behavioural Centre was established in 2005 as a private group that consists of a clinical team of administrators, clinical supervisors, psychologists, resource teachers, occupational therapist, behavior therapists, and volunteers. The Centre provides individualized educational programs based on researched principals of applied behaviour analysis to children with neurodevelopmental disorders, namely Autism Disorder and Asperger.

The clinic first opened its doors as a private practice in psychology in 1998 serving the needs of children, adolescents and their families in the South Eastern part of New Brunswick. Over the years, this practice has developed a specialization in the assessment and treatment of disorders such as Autistic Spectrum Disorders, Language and Communication Disorders, Learning Disorders, ADHD, Oppositional Defiant Disorders, Conduct Disorders, and other disorders of childhood development.

We are very pleased to be able to increase the services provided and are committed to raising the bar in the treatment of autism. We look forward to seeing you at our Grand Opening.

Sincerely,


Suzanne Durepos, M.A.Ps., L. Psych.
Clinical Director

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Aubrey's Journey: Emerging from autism

If you do a google blog search on autism you will find many blog sites hosted by high functioning autistic persons who view autism in a positive light and characterize efforts by parents and advocates for autism cures and treatments as oppression, breaches of their human rights. There are other autistic persons, such as some who appeared before the Canadian Senate, who are supportive of efforts to assist autistic children and adults in overcoming some of the deficits associated with their autism. The Albany Democrat-Herald reports the story of Aubrey, a young lady with Aspergers' Syndrome who benefited from early intervention and left many of her autism deficits behind. Aubrey's mother, D.L. Clarke, has written a book about her daughter's story and hosts a web site where parents and other interested persons can learn more:

http://www.aubreysjourney.com/


Emerging from autism

When Aubrey was born in 1992, she looked and acted like all other babies.

But as she grew older, she began walking on her tiptoes, she pitched tantrums and she screamed when her hands got dirty. She did not want to play with other children, and she was terrified of swings and teeter-totters.

Yet, Aubrey was intelligent and often appeared normal in unfamiliar situations.

Physicians assured Clarke that her daughter was normal. Clarke knew differently in her gut, but she did not want to accept the fact that her daughter might not be “perfect.”

In a book released Jan. 15 targeted to parents of children with behavior problems, Clarke discusses ways to seek a diagnosis for various disorders in children, and she explains how to keep hope alive and not to give up in dealing with situations no one seems to understand.

It was not until Aubrey was 3 years old that an early intervention team from the Linn-Benton-Lincoln ESD used the word autism to describe Aubrey’s behavior.

“That diagnosis opened a door of support that we didn’t have before,” Clarke said. “Gradually we found out she had Asperger’s Syndrome and not full-blown autism.”

Since then, through counseling, therapy and family encouragement, Aubrey has left many of her symptoms behind.

“She’s not cured, but she’s learned to cope and adapt,” she said. “Part of what helped is I encouraged her to get involved in activities. I treated her the same way as my other two children, and told her I expected her to learn and be independent.”

Aubrey is now 14 and a freshman in high school. She has entered talent shows, been part of a singing group and a dance team. She tutors elementary students at a Boys & Girls Club, and she wants to go to college and eventually have a family.

“I can’t imagine the consequences if I hadn’t kept on pushing,” Clarke said.

Signed copies can be ordered through her Web site: aubreysjourney.com.


http://www.dhonline.com/articles/2007/02/02/news/local/3loc08_autism.txt

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