tag:blogger.com,1999:blog-33052404.post9130783247063722663..comments2024-02-13T21:31:57.980-04:00Comments on Facing Autism in New Brunswick: The New Autism Spectrum Disorder (NASD) in the DSM-5: Autism Minus Intellectual DisabilityAnonymoushttp://www.blogger.com/profile/05838571980003579163noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-33052404.post-24534082630046182292010-04-10T23:41:49.636-03:002010-04-10T23:41:49.636-03:00Hi, I have decided to check out your blog because ...Hi, I have decided to check out your blog because you joined mine, I decided to watch a video of Conner and I was shocked because my son Michael is always on You tube and he is forever watching Conner!!! I couldn't believe it..I had to tell you. He is such a sweet boy and I love his voice, apparently Michael does too. NaomiAnonymoushttps://www.blogger.com/profile/04826657936603510231noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-38551644162312599682010-04-06T11:12:54.461-03:002010-04-06T11:12:54.461-03:00FW2, your son's IQ is at least 2 standard dev...FW2, your son's IQ is at least 2 standard deviations below the mean. This is the definition of low-functioning autism. It does not mean your child is incapable of learning, nor does it mean that he will be denied services. It does mean that he is part of of a large population in which autism has led to significant intellectual disability.<br /><br />The worry is that treating of autism as a difference and not a disorder will drastically curtail monies devoted to research toward a cure and also possibly curtail educational programs as well. Children will simply be baby sat at schools rather than educated.<br /><br />I am extremely proud of the fine young lady my daughter has become, the leaps she has made in oral comprehension, and in her behaviors. She is greatly enjoying life. Her laughter is the nectar of the gods. <br /><br />But she would have all the above and much different and better future if she did not have autism.<br /><br />She still has significant autistic behaviors. bites herself, and needs constant supervision for her safety.<br /><br />A cure would be the best thing for her and people like her. IF autism is not presented as the horrible disorder it truly is, then people will be less likely to donate.<br /><br />Your son is following a fairly common pattern. Their are two parts to reading, one is decoding the written symbols into sounds, the other is understanding what they mean. It is not uncommon for those with autism to be able to do the former and not the latter. This does not mean he will never understand, but that he will need a great deal of help from you and others to get him to do so. Much more than if he were not autistic.<br /><br />I don't think its right to associate IQ with an age. Developmental age is based in what your child can do and not his learning skills.Ian MacGregornoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-87095014705905908622010-04-06T11:10:36.943-03:002010-04-06T11:10:36.943-03:00Jenn (Anonymous 9:57 AM):
You claimed that I have...Jenn (Anonymous 9:57 AM):<br /><br />You claimed that I have persistently stated:<br /><br />"it is hard not to be offended by your persistent statements to the effect that unless an intellectual disability is present, it's not "actual" autism."<br /><br />I have never made any such statement. I have said ... persistently ... that 75-80% of persons with Autistic Disorder, not autism, but Autistic Disorder, hae an intellectual disability. That leaves at least 20-25% of persons with Autistic Disorder diagnoses who do not have an intellectual disability.<br /><br />I too am offended ... by people who find it offensive that intellectual disability could be so closely tied to autistic disorder.Anonymoushttps://www.blogger.com/profile/05838571980003579163noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-90038383756413446802010-04-06T09:57:19.407-03:002010-04-06T09:57:19.407-03:00Our child's diagnosis (for what it's worth...Our child's diagnosis (for what it's worth) is, and always has been, "actual" autism (as distinct from PDD-NOS and Aspergers), and he is one of the 10% that does not have an intellectual disability. I realize that you advocate from the perspective of your son (which of course you should), but it is hard not to be offended by your persistent statements to the effect that unless an intellectual disability is present, it's not "actual" autism.<br /><br />JennAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-18244201150943750232010-04-04T19:54:08.473-03:002010-04-04T19:54:08.473-03:00I have a question for you from another father with...I have a question for you from another father with a child with autism to another. My son was diagnosed with autistic disorder years ago, but I wasn't very much involved in his life until now. My wife and I divorced when Austin was 1, she re-married, moved to another state, and thanks to my cancer, she won full custody of him until last month for reasons I do not want to speak of. <br /><br />Now after almost 5 years of not much interaction with my son, this is all new to me as I am currently remarried myself living with my wife and newborn twin daughters! I knew he was diagnosed with autism but now learning about his other diagnosis's such as cognitive impairments.<br /><br />Somebody mentioned to me if he has an intellectual disability, my sons iq is on the lower end, but now I'm confused what is the difference between intellectual disability and cognitive disability? <br /><br />Forgive me as although my questions seem uneducated, I'm trying to learn now about a world I never got a chance to be apart of.Unknownhttps://www.blogger.com/profile/03662401211834464728noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-55277178557028596512010-04-04T19:10:14.272-03:002010-04-04T19:10:14.272-03:00What do you mean by "actual Autistic"?What do you mean by "actual Autistic"?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33052404.post-35752534198559410212010-04-04T13:28:21.287-03:002010-04-04T13:28:21.287-03:00FW2
I am not pushing to have Intellectual Disabil...FW2<br /><br />I am not pushing to have Intellectual Disability added to severe autism. It has always been a part of it and it is being removed, starting with the DSM IV and finishing with the DSM-5. I can see no good reason for doing so.<br /><br />Do you think it is just a coincidence that approximately 80% of persons with actual Autistic Disorder are also cognitively impaired or intellectually disabled? <br /><br />I am more concerned with people being offended that intellectual disability is a part of autism. <br /><br />I am more concerned with people hiding the truth about autism and intellectual disability.Anonymoushttps://www.blogger.com/profile/05838571980003579163noreply@blogger.comtag:blogger.com,1999:blog-33052404.post-88767071643839051122010-04-04T12:50:21.865-03:002010-04-04T12:50:21.865-03:00I have trouble with your push to demand that Intel...I have trouble with your push to demand that Intellectual disability must also be part of severe autism.<br /><br />My son's psychometry report (Feb 2010) reads: reading Gr 3.5 (age appropriate), comprehension Gr 1.5, IQ btwn 60 and 70.<br /><br />60-70 is a 2 to 3 yr old. He is not 2 to 3 yrs old in behaviour, or academics. He's overally about a 5 to 6 yr old with the speech level of a 18mth to 2yr old, and an actual age of 8.5yrs.<br /><br />IQ measured alone is not an indication of how smart a person is or how much they can learn. But, gov'ts use it to decide who gets what services. By demanding that severe = Intellectual disabilities you have children like mine dealing with a system that assumes they can never learn and therefore refuse to teach them at all. "Well he's severely autistic and therefore mentally retarded so why should we waste our time and services"... I've heard it before from parents mostly. Luckily, I have proven that theory wrong to the educators we have dealt with so far.<br /><br />I am pleased that the 2 are now separate. They are separate here (school board) as well. I have spent the last 4mths getting "Developmental Delay" added to our IPRC. Unfortunately, I have opted to move him to special ed, for many reason's and I'm not truly happy about it. We weren't forced out, I triggered the IPRC process, not them. We are off to see a 10 child, multiple exceptionalities class on Apr 14th. Goal for us is to teach him curriculum at his comprehension level, yet keep him mainstreamed in classes he can do independantly and enjoys like music, phys-ed and computers. I had to add this b/c #1 - I wanted him in a slow learners, low behavioural class (BIL teaches one in another board) not a PDD one and #2 - he doesn't qualify for a PDD class since he can learn in a regular room with support, is low sensory and low behavioural.<br /><br />Dual diagnosis' are not "taboo"... we now have one and if it gets us what we need... that's what we do.farmwifetwohttps://www.blogger.com/profile/02680758336779501712noreply@blogger.com